[Anonymous]

I was diagnosed with crohns disease last week. Does anyone know if it is deadly?

Does anyone on here suffer from this and can give me some advice on how to cope with it?

[BethaneyJ]

http://www.nhs.uk/conditions/Crohns-...roduction.aspx

This is a good place to start. Did your doctor not tell you about the disease? There are stories of other people living with Crohn's on the NHS site and loads of information.

Good luck and sorry to hear about your diagnosis. Things like that are never easy to hear.

[manners20]

(Original post by Anonymous)
I was diagnosed with crohns disease last week. Does anyone know if it is deadly?

Does anyone on here suffer from this and can give me some advice on how to cope with it?

I don't suffer from it but I know someone who did; a girl in my class. I don't mean to scare you because it's unlikely that you'll suffer in the way that she did but I feel that you must know. It started with 'traveller's diarrhoea' when she went on holiday to India and progressed to full loss of bowel control. She had explosive 'accidents' on more than one occasion in lessons. It was horrible for everyone involved, most of all her. She used to have to wear pull-ups. She also had a terrible problem with her stomach rumbling really loudly at all times. Some of the horrible people in our year complained that they couldn't concentrate during our GCSE exams due to the constant rumbling sound and the smell.

But, as I've said, you're not necessarily going to have the same problem, and if you do, they do really discreet adult pull-ups which are designed for older people but they're fine for you to use! Don't be embarrassed about it; it's a disease and it's not your fault. Good luck.

[louey]

Someone in my family has it and they cope really well. I'm not an expert, but I don't think it's deadly and there is medication you can take. The NHS website will help you, and there's also a website called crohnszone.org. Hope this helps.

[ThinkEmily]

I have crohns and related Ankylosing Spobdylitis.

I have periods of normality and being ill. I have finished uni and got a job and study for a masters part time with it.

I have hospital stays when very ill.

It is difficult sometimes and takes strength to keep pushing but it will not ruin your life or your dreams (unless you let it).

I have moderate crohns but have a friend with more mild. He has not been ill in 3 years. That could be you!

I was mismanaged and stuck on pred a long time. Dont let that happen to you - pred is a short term solution and should be moved toward immunosuppressants or anti tnf if not working.

Big tip: chat to your gp a lot.

This was posted from The Student Room's Android App on my GT-I9100

[Dmon1Unlimited]

While I may not have it, in my opinion learning about it and being told about it from your doctor/gp or whatever, are two different things where the latter may involve how it affects you personally rather than generally. But yh, by all means, research it if you want

[Sean3000]

(Original post by manners20)
I don't suffer from it but I know someone who did; a girl in my class. I don't mean to scare you because it's unlikely that you'll suffer in the way that she did but I feel that you must know. It started with 'traveller's diarrhoea' when she went on holiday to India and progressed to full loss of bowel control. She had explosive 'accidents' on more than one occasion in lessons. It was horrible for everyone involved, most of all her. She used to have to wear pull-ups. She also had a terrible problem with her stomach rumbling really loudly at all times. Some of the horrible people in our year complained that they couldn't concentrate during our GCSE exams due to the constant rumbling sound and the smell.

But, as I've said, you're not necessarily going to have the same problem, and if you do, they do really discreet adult pull-ups which are designed for older people but they're fine for you to use! Don't be embarrassed about it; it's a disease and it's not your fault. Good luck.

I don't think this is either helpful or accurate.

[Anonymous]

First of all, please ignore the absolutely ridiculous comment from manners20 which is a) obviously completely untrue b) extremely offensive and c) very insensitive. Crohn's disease is a pretty nasty thing to have to live with, I was diagnosed when I was 12 with the condition, though I have it very mildly and I find it really easy to cope with. Most of my problems have been with having a low immune system and trouble with malnutrition. Crohn's disease, though incurable at the moment is extremely treatable, it's just a matter of finding what the right treatment is for you. It is very very rare for Crohn's to be a cause of death, and this is only when it goes untreated. You shouldn't worry, it's a surprisingly common condition as well and most find that with the right treatment they are able to go about their lives very easily. I studied for and completed all of my GCSEs and A Levels on schedule and I am going to University in September. I would recommend you join a site or programme for other with forms of IBS as it may offer some support, being diagnosed at only 12 years old was pretty hard on me and I found a lot of comfort in speaking to others with similar, as in most cases a lot worse issues. I hope I helped. Good luck!

[SugarPuddle]

I'm 19 and I was diagnosed with Crohns when I was 16 and in college. I had to go to the hospital because of how bad the illness had got (I was sat inside for a good 5 months ill) and I was put on a drip which fixed me up amazingly. I then got it again after finishing the drips and not having any pills to control the disease and lost all ability to walk due to my joints swelling up just because I caught the flu. I'm heading to university in less than a month and freshers flu is terrifying me, I'm trying to look into getting the flu jab before leaving or as soon as I get there to cover me.

The best advice I can offer you is watch your diet, any foods which make you feel ill or give you cramps, stay away from them. Have flu vaccines every year. If you have been prescribed medication, take it religiously. Take a couple of fish oil omega 3 tablets every day, depending on how bad you are, because this is great for keeping inflammation down. Try and stay as unstressed as you possibly can, nothing is worth you getting ill. Honestly, nothing. Take things one step at a time. & never, ever smoke cigarettes. It's like throwing a live match down onto petrol, you will most definitely flare up. Go easy with alcohol too, you can still get drunk but if you get to the point where you're passing out, this could affect your Crohn's. Follow these guidelines and you'll be fine, I've learnt so much from it over the last three years and studied into it with help from my friends in medical school to ensure I stay well.

I'm the youngest person with Crohns at the hospital I attend and I'm still having the time of my life, don't let it get you down. Learn to live with it, learn everything about it and the way your body works and become the master of it so you don't flare. Look after yourself and you'll be absolutely fine.

[SugarPuddle]

(Original post by Anonymous)
I was diagnosed with crohns disease last week. Does anyone know if it is deadly?

Does anyone on here suffer from this and can give me some advice on how to cope with it?

I thought I would quote you so you definitely got my message above. You're not alone in this.

[gavineoz]

I got it but mine is Mild. I have been in remission for over a year now, you just have to listen to your body and try and manage it properly. Try stay on Pentasa tabs for as long as possible as they reduce the chance of another flare up, then simply find which foods are a go go and a no no. For me caffeine destroys me, literally. Everything else is ok

[RobJ93]

Was diagnosed with crohns 8 years ago. It's pretty awful when flaring up but you need to learn to manage it correctly.
Find your trigger foods and avoid them. Avoid stress and sleep well. Do these things and it can be easily dealt with.