I've been ill for months now, with exhaustion, constant aches, headaches, a rash across my neck and other problems. We thought it was something like ME, and I was going to go to the doctors about it, but then last month I got really ill and ended up in hospital. It started off as a UTI before becoming a kidney infection - two types of antibiotics didn't work at all, I ended up in hospital and had a different type which seemed to get rid of most of the symptoms except for the pain, and now it's come back and I've been put back on a course of antibiotics. Every time I've been assured that within 24 hours I should be back to normal, but every time, I haven't been. It's been a nasty illness, ending up in hospital and still not getting better, and the pain is still awful - I'm on 8 30mg cocodamol a day and it's only taking the edge off the pain, but it's making me go hyper before knocking me out.
It really should have eased by now, if not gone completely, but it hasn't. My mom was looking on the internet earlier to see if she could find anything that may be preventing it from getting better, and she found something that originally came up when I was having all the exhaustion and things - Systemic lupus erythematosus. She read through the symptoms and it matches exactly to things I've had, even symptoms that I didn't realize could be symptoms of anything else - attacks of severe pains in the side of my chest when I breathe deeply, which I thought was just the way I was lying as opposed to a symptom of something.
My mom has encouraged me to talk to the doctor about it, but I'm not sure how to. I know how much they hate people looking on the internet, but it all seems to match up too much to be coincidental, and it's getting in the way of my life - I haven't been to college for a month and I need to go because it's my exams at the end of May and mid-June so I was just wondering if anyone has any advice on how I could broach the subject with my GP.
(Original post by Sophiemaybabe)
print off a few web pages and circle your symptoms
dont stop persisting with the doctor, theyre there and theyre free so use them as much as you can
dont be scared to ge angry and always argue your point. if they say youre being silly then tell them you wont leave until they refer you to someone, stand your ground or theyll walk all over you
Thanks for your advice.
I think what worries me is the fact that I left hospital when I probably shouldn't have done - I was a long way from home and I was still quite ill but lied so that I could go home, and the hospital still haven't sent a report to my GP, and I was on the wrong ward (I was put on the colorectal ward), with someone else's notes at the bottom of my bed, so I just wanted to get out of there. I'm worried that if I go to the doctors and end up going back to hospital, they'll have a go at me for leaving early
But I guess I've got to bite the bullet and see what they say. Thanks for your advice
That sounds horrible I hope it's sorted out as quick as poss.
You have already received some great advice,but just to add my point haha - be very persistent and get across how it makes you feel. My mum went to her GP 2 or 3 times about her knee pain and he just prescribed her pain meds or told her it wasn't anything serious. She then took her own initiative and visited a specialist, who confirmed that actually she had very bad knee problems and since then she has had bilateral knee replacements. Of course,I'm not saying that doctors/GP's don't do their jobs properly. What I am saying is, they may not always make the right judgements, so it's really vital for you to tell them all of your symptoms and give a lot of detail. You could even keep a mini diary and feed it back to them e.g 'On monday I experienced this severe pain which continued till Wednesday' or whatever.