(Original post by Ric Schiff)
Normally I don't bother spending my time discussing Dr. Burzynski in open forums like this because it’s a waste of my time to try and educate one want-to-be medical investigator. I'm going to bother because Mr. Saunders has chosen to enter the fray, and frankly he and his child are really the point here.
Your notions about Burzynski show that you not only have a "website" understanding of him and his treatment, but you're a little slow on the realities of having cancer as well.
Randomized studies (for non-toxic treatments) are as antiquated a way for verifying efficacy in a treatment as we could possibly get. Do you still have your lava lamp? Double blind studies mean that somebody gets to die so you can prove what?
Have you missed the conclusion of Dr. Burzynski's Phase Two Brainstem Glioma Clinical trails? Hummmm....it posted better results than all brain tumor clinical trails ever done anywhere, all together? I'm not sure what science you're disputing there. I am no friend of the FDA, but it was their study. I know because I helped set Dr. Burzynski’s clinical trials with the FDA up. I guess between us, I am the only one who has ever actually met with the FDA or set up clinical trails?
When you speak of other studies, I assume that you mean our friends at the Sloan Kettering Clinic? The same ones who changed the clinical parameters of the joint trial that they were suppose to be doing? Apparently you have not viewed the letters posted on the Internet back and forth? Sloan and the NIH acted completely unethically. They admitted patients with much larger tumors than the protocol allowed for, and refused to increase the matching dosages to compensate. Burzynski withdrew his support because of their unethical actions, and you are criticizing him? Surely you saw the Burzynskimovie.com where in the director shows that the NIH was in fact trying to steal Dr. Burzynsi’s treatment? And you still believe in them?
You like Peer Review articles? What if they don't like you? What if your cure will turn their profitable "treatments" out to pasture. Who is it that you think decides what is published and what is not?
Lets look at your conventional friends shall we? As Mr. Sanders has already discovered, all of their patients die....all of them! The results for Childhood Leukemia are even higher than you claim...more like 90%. What you're missing is that they are not brain tumors. VP16. Cytosine, Vincrystine were all approved for use in Leukemia....once a treatment is approved for use, a doctor can prescribe it for literally any other purpose. You knew that right, I mean before you graced us with your "scientific" opinion? You know that none of those chemos are curative for brain tumors right?
Please, where are your precious scientific studies for toxic chemotherapy and radiation? They do exist...they just fail miserably. And they fail again and again yet they keep being the standard of care? Do you have any idea what the profit margin is for Pharmaceutical companies who "sponsor" those scientific doctors you are so fond of, running their same clinical trails over and over again while each patient dies a horrible death?
You don't like antidotal, empirical evidence? When you get a brain tumor, I hope you chose your favorite Pharmaceutically sponsored doctor to give you his favorite off the shelf treatment.
For anyone else, given the political realities of the cancer industry, I would seek out patients whom I can speak to that are still alive....apples for apples, brain tumor for brain tumor, not brain tumor for Leukemia? Strangely this is offered for leukemia patients….
Who am I? I am the guy who took his daughter to conventional treatments, made her suffer indescribably, then found doctor Burzynski. I watched UCSF document her cure, then document her death from neurological necrosis...the cure didn't matter, they had already killed her. Burzynskipatientsgroup.org Crystin Schiff.
Please, go to the website and then show me any other group of brain tumor patients who exalt their doctor similarly! Anywhere?
Mr. Saunders has a long hard road to haul. He gets no guarantees, no support for his child's treatment (even though far less costly than standard treatments). He likely gets minimal if any support from the scientific world you think that you live in. All so that he can give his daughter not only the best chance of survival that she has, but the only chance!
And helping him down that road is who.........you?
Anyone can please feel free to contact me at any time. I have been associated with Dr. Burzynski for the last 18 years, my story is no secret nor am I.
Most importantly, whatever we can do to help Mr. Saunders....it won't be enough!