The Student Room Group

Starting uni with currently undiagnosed condition

Hey,
I start uni this week, however I'm currently undergoing several tests in my local hospital for potential chrons or similar, but currently there's a big question mark over what's wrong.
I can't delay going to uni, but equally having been admitted 3 times in the last 12 months due to unbearable pain, I am worried this will happen again when I'm away, and the prospect of being alone with no idea what is going on to tell the doctors is quite scary.
will the information from the current specialists be accessible to those including my new gp when I'm away? Blood tests, ultrasounds etc?

has anyone else ever been in a similar soruation?
Original post by Anonymous
Hey,
I start uni this week, however I'm currently undergoing several tests in my local hospital for potential chrons or similar, but currently there's a big question mark over what's wrong.
I can't delay going to uni, but equally having been admitted 3 times in the last 12 months due to unbearable pain, I am worried this will happen again when I'm away, and the prospect of being alone with no idea what is going on to tell the doctors is quite scary.
will the information from the current specialists be accessible to those including my new gp when I'm away? Blood tests, ultrasounds etc?

has anyone else ever been in a similar soruation?
I've got Crohn's disease. Your new GP and consultant *should* interact with each other. Your medical records will also be passed on from your old GP to your new one. If you have any other questions, feel free to ask :smile:.
I have Crohn's and have just started university. Luckily I'm near remission, but I'm finding the moving/settling in process really stressful, and I'd hate to do it if I was poorly. I was diagnosed in January last year and was determined to go to university in 2013; but I'm so glad I chose not to, as university will always be there, whereas your health must come first. How far away is your uni from home? If someone could come to support you with appointments, it may make the process easier? :smile:

Let the university know as well, whilst you might not have been officially diagnosed, in my experience I have found them to be exceptionally understanding and willing to help.
Reply 3
Original post by chloescottt
I have Crohn's and have just started university. Luckily I'm near remission, but I'm finding the moving/settling in process really stressful, and I'd hate to do it if I was poorly. I was diagnosed in January last year and was determined to go to university in 2013; but I'm so glad I chose not to, as university will always be there, whereas your health must come first. How far away is your uni from home? If someone could come to support you with appointments, it may make the process easier? :smile:

Let the university know as well, whilst you might not have been officially diagnosed, in my experience I have found them to be exceptionally understanding and willing to help.


Thank you for responding! I will definitely speak to the university when I arrive and hopefully be able to see the new gps aswell in order to get them on the same page also.
Unfortunately the uni is about 5 hours away from home, so I will be doing it all alone. My GP has told me that if I have a flare up like I have before I need to go straight to hospital as it has a severe impact on my bp let alone all the unbearable pain, obviously with no parents to do this, I'm a bit lost as of what to do.
I'm hoping to hear the results of the latest bloods and scans before I leave, so hopefully this will give us an indication of what is going on.. And maybe even start some proper treatment rather than just symptomatically as currently..
Reply 4
Original post by luckylaurax
I've got Crohn's disease. Your new GP and consultant *should* interact with each other. Your medical records will also be passed on from your old GP to your new one. If you have any other questions, feel free to ask :smile:.


Out of interest how long did it take for them to diagnose you?
It seems they are ruling out everything to else first, my appendix was taken out last year, have been screened for kidney and gall stones multiple times due to intense colic like pains which occur. Been tested for ovarian cysts and similar issues, bloods have been taken for pretty much every thing including rare genetic diseases.. All are negative..
Have had cystoscopies.. Laparoscopies.. And still no further forward..
Reply 5
Original post by Anonymous
Hey,
I start uni this week, however I'm currently undergoing several tests in my local hospital for potential chrons or similar, but currently there's a big question mark over what's wrong.
I can't delay going to uni, but equally having been admitted 3 times in the last 12 months due to unbearable pain, I am worried this will happen again when I'm away, and the prospect of being alone with no idea what is going on to tell the doctors is quite scary.
will the information from the current specialists be accessible to those including my new gp when I'm away? Blood tests, ultrasounds etc?

has anyone else ever been in a similar soruation?


Hey, I've just finished university and got through three stressful years with manageable crohns (thank god) so if I can do it, you can do it too :smile: As mentioned, your records from your old GP will get transferred to your new GP and your new GP and consultant will interact. Definitely meet your new GP when you join uni so they know who you are and your needs and let your uni know about the condition too. I found my uni extremely helpful with my condition and that really takes the stress away. Also make sure you keep all the medication you need incase of bad pain (I've also been admitted into hospital twice this year due to intolerable pain) :/ Also, maybe if you're comfortable with it and once you get to know your flatmates/you trust them, it might be worth telling them about the condition (once officially diagnosed) so that if anything happens they can help you out.. :smile:
(edited 9 years ago)

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