Hi there,
Do you want to PM me?
I have had a lot of complications with school, work, health and attendance.
It's always difficult in a situation like that with long-term underlying health problems and it can be very confusing and stressful. I also totally understand how difficult it can be when doctors aren't sure of what's going on or haven't come up with a proper treatment plan because then it can be harder to communicate with the school.
My suggestion would be mentioning these worries about communication with either your parents or your doctor. You doctors may be able to give you a letter that you can show to anyone in school who you feel needs to know about your health condition, therefore they may gain a deeper understanding of what's going on. I'm sure they'd love to try and help but from the sound of things, they're just not being made aware of enough to be able to help you. You could also get your parents to go in and have a meeting with the school to explain to them.
Try and be pro-active about things. I know it can be hard talking about personal health problems with teachers, but the more open you are with them, the easier it may be. If you have meetings with your teachers to explain it and to voice your concerns about the amount of work you have and how behind you are then they're much more likely to be able to help you. If you work together with them then I'm sure they'll be more flexible and help you sort out all of the work you have to do.
They shouldn't be able to kick you out, especially if you have a letter from the doctor explaining your condition.
But remember, the most important thing is your health. Obviously you don't want to have to leave school because of it, but if you get too stressed out and that makes you more ill, then leaving may be the only option. So just try to put a little less pressure on yourself. You're right, you can't help being ill. It is not your fault and you're not responsible for it. The best thing you can do is focus on yourself and look after yourself as best you can. It's the easiest way that you'll be able to catch up and carry on because the more stressed you let yourself become, the harder it'll be to get better. Obviously I don't know what your health condition is, but stress is proven to make you ill.
I can imagine it's scary for you at the moment, especially with having to go into hospital and trying to sort all of this out. So just try to look after yourself.
I hope you're feeling better soon and good luck with sorting this out and explaining it to the school.
I'm always here if you need a chat - I've been in your situation so I know how you feel. xxxx