Anyone with Scoliosis or other Joint problems?

So I have had a LOT of spinal surgery since the age of seven. I was just wondering if anyone else had growth rods, back braces, costaplasty (getting rid of the hump (I also can't spell)), had to go on a stryker frame or had spinal fusion? I was also wondering anyone else still gets knee pain or pain in other joints?

Thanks! xx
P.S. I have had 12 spinal surgeries if your interested!

I think we may be twins... My op was in May 2011. I still have a mini hump but it's not to bad. My fusion is a bit lower than yours - T2 - L2. I have two rods, one hook and seventeen screws. I was just wondering if maybe the traction did something to my knees because they were fine until then!

So I have had a LOT of spinal surgery since the age of seven. I was just wondering if anyone else had growth rods, back braces, costaplasty (getting rid of the hump (I also can't spell)), had to go on a stryker frame or had spinal fusion? I was also wondering anyone else still gets knee pain or pain in other joints?

Thanks! xx
P.S. I have had 12 spinal surgeries if your interested!

Yes. Very complicated but I will try to be as short as possible.

When I was around 12, in 2012 (starting puberty) a hunch started to form in my back, so my mum took me to the GP. It was very mild at this point to the doctor didn't really say too much. My mum was still concerned though so we went private and the specialist I saw there told me it was 'mild' Scoliosis, that I wouldn't need any surgery and if I did have surgery it would only be for cosmetic reasons.

A few months on and the curve in my spine had got rapidly worse and was continuing to worsen, the hunch was very noticable, my breathing was horrendous, my ribs were painful- it was agony. So we went back to the NHS. The consultant I saw there was very shocked at how bad it was and told me it was one of the most severe cases he had seen (it had progressed so quickly and as I went through puberty it would get so bad that I would probably die if nothing was done. My ribs actually punctured my lung at one point) my breathing capacity was at 20% and I was in constant pain so they put me through for surgery. Even then I had to wait months.


The months leading up to the surgeries were a living Hell. I was very deformed, people in the street would stare and point at me- a 13 year old girl. I couldn't walk far without needing to sit down. I wanted to die.

There were complications with the surgery, my brain was settled too low so they had to move my brain up and they took a rib to insert into my spine. Then I had the main operation. I had the metalwork all the way up my spine and the operation was successful. It was horrible learning to walk again but I was so happy to have it over with. My back was almost perfectly straight.

ANYWAY, fast forward to 2014 and my body had a delayed reaction to the metalwork and decided to reject it. I developed several spinal abscesses. After months of seeing different doctors and backwards and forwards from my GP and A&E (and lots off time of work) they sent me back to my original consultant, who told me I needed an urgent operation to take it all out.

So finally, last October (2014) I had all my metalwork removed. There was still a risk that my spine would go back to the previous state, but last week I had my last X-Ray and have been fully discharged from the consultant. My back is better than ever.

A very touching and inspirational story

I'm glad that your back is feeling better.

Yes. Very complicated but I will try to be as short as possible.

When I was around 12, in 2012 (starting puberty) a hunch started to form in my back, so my mum took me to the GP. It was very mild at this point to the doctor didn't really say too much. My mum was still concerned though so we went private and the specialist I saw there told me it was 'mild' Scoliosis, that I wouldn't need any surgery and if I did have surgery it would only be for cosmetic reasons.

A few months on and the curve in my spine had got rapidly worse and was continuing to worsen, the hunch was very noticable, my breathing was horrendous, my ribs were painful- it was agony. So we went back to the NHS. The consultant I saw there was very shocked at how bad it was and told me it was one of the most severe cases he had seen (it had progressed so quickly and as I went through puberty it would get so bad that I would probably die if nothing was done. My ribs actually punctured my lung at one point) my breathing capacity was at 20% and I was in constant pain so they put me through for surgery. Even then I had to wait months.


The months leading up to the surgeries were a living Hell. I was very deformed, people in the street would stare and point at me- a 13 year old girl. I couldn't walk far without needing to sit down. I wanted to die.

There were complications with the surgery, my brain was settled too low so they had to move my brain up and they took a rib to insert into my spine. Then I had the main operation. I had the metalwork all the way up my spine and the operation was successful. It was horrible learning to walk again but I was so happy to have it over with. My back was almost perfectly straight.

ANYWAY, fast forward to 2014 and my body had a delayed reaction to the metalwork and decided to reject it. I developed several spinal abscesses. After months of seeing different doctors and backwards and forwards from my GP and A&E (and lots off time of work) they sent me back to my original consultant, who told me I needed an urgent operation to take it all out.

So finally, last October (2014) I had all my metalwork removed. There was still a risk that my spine would go back to the previous state, but last week I had my last X-Ray and have been fully discharged from the consultant. My back is better than ever.

God, That all sounded horrific. So glad it all worked out in the end.

I think in my case it's because I'm a triplet. Somehow I've ended up with most of the health issues, kind of the runt haha

Wow. Triplets?? Are you genetically identical triplets? Also don;t you mean you were 12 in 2002 and not 2012?