10 years ago 'X' a healthy female patient donated a blood sample to screen and research 10 genes known to be frequent in many types of cancer. Patient 'X' did not have the mutations and the blood samples were later stored. She signed a sample consent form which did not specify how the samples may later be used. Last year, scientists decided to screen 1000 random patients for a gene now thought to be associated with genetic predisposition to Alzheimer's disease. Patient 'X' was found to be heterozygous for this gene (she had 1 but not 2 copies for people who don't know) She now lives in a different country.
Should the researchers locate patient 'X' and tell her about the findings?
1) The house believes 'X's risk is very small and there is no need to find her
2) The house believes 'X' has the right to know about these latest findings
Which motion would you support and why ?
debate (LAW and (BIO)MEDICAL students please)
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