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Eczema

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Reply 20
Original post by missygeorgia
Regular sunbeds don't work- it's UVA light whereas the light that helps eczema is UVB.


thanks for the correction. i think you can get referred to a specialist though, i presume they must be UVB.... you have to get past beaurocratic GPs first though...
Original post by meowmeowmutiny
Really? I get pretty bad flare ups and rashes and what have you if I stop using it.


betnovate? yeah, me too- I don't really like betnovate, it only really seems like it works in the very short term alongside other treatment. Because when you use it it's great, and the eczema goes away straight away, but then as soon as you stop it flares up even worse than before.
(edited 13 years ago)
Reply 22
Original post by QI Elf
Hi, I have it on my arms and my hands.

I don't really know of any good treatments, for me its a case of controlling it. My doctor prescribes me Dermovate for bad flair ups and I also use E45 cream on the areas once I've showered in a morning and just before I go to bed the rest of the time.

I'm really sorry its affecting your confidance, I don't know really what to suggest apart from getting into a good routine to help it which you've probably got going on already if you've had it a while.



Original post by I'm_Unsafe.
I had it terribly when I was little, then it flared up again due to what I expect was exam stress etc. It's not so bad, just a bit on the creases of my elbows and sometimes a bit on my hands...however, it seems to have spread so I have very dry eyelids and underneath my eyes. I just use some creams I got prescribed last year -wish it would just go away tbh.



Original post by katyness
I have it on my hands and behind my legs. It does knock my confidence such that I never used to take my gloves off during winter and never used to paint my nails or use rings or bracelets so that no-one notices my hands.
Now, it completey went away :yay: I didnt do anything special but it's just not here anymore so I just finished painting my nails for the first time ever!!!! :biggrin:



Original post by HeatherHatter
I have it on my legs, the palm of my hand, my fingertips and under my eyes.

I use 50/50 cream (50% liquid paraffin, 50% white paraffin) at night, but it's like putting Vaseline on so I have to wear gloves if I use it on my hands, and can't use it on my legs... plus, it gets everywhere so my hair looks greasy when I wake up in the morning.. apparently I keep touching it in my sleep :biggrin:.
Hydro-cortisone cream works, and diprobase, aqueous cream, simple moisturiser, Fucibet, soap substitutes, Betnovate cream. Different things work for different people :smile:.

Mine is bad at the minute, it keeps bleeding and it's gotten infected a lot lately, but other than creams, there's not much you can do about it :frown: Don't let it get you down :smile:



Original post by Simbarashe
its a common problem... mine is terrible at times... not seen many people with worse so i think what i say comes with good authority

it really is different for different people(flakiness, dryness, seeping, inflamation, itchiness, sores, redness combination of all of them like me lol), its a question of keeping it under control. when i was younger it used to bug me so much, i used to hate it or people mentioniing, i used to pretend it doesnt exist. now i realise that theres nothing less of a turn off than being shy and the way that i usually go about it is with openness and honesty (without being gross) if people ask. its not nice, i get it on my face and im sure people do look from time to time and think ewww but you know confidence does count for a lot - theres a lot of psychological studies to show that.

just find a way to keep it under control... i don't know if anyone has heard of abido cream?
its honestly like a miracle cure for me when i'd tried everything else... cleared my eczema right up (and i think ive stressed how bad it cud get) in a matter of days... maybe 5 days tops. its in a tiny tub as well, costs about a tenner... i'd get thru about 3 in the whole of winter maybe because once ur skin is good its not so hard to keep it under control. inbox me if ur not comfortable talking on public forum, always happy to help.


in other news (may as well ask) could anyone inbox me about how MAs work at Aberdeen/Dundee? im wanting to study business/politics there but im confused by the prospectuses etc dont want to mess up my application. im an english student looking to apply for 2011 entry. :smile: tyyyy



Original post by wtfCharlie
Dead sea mud and salt are good, also going to sleep with hydrocortisone and aqueous on :smile:



Original post by missygeorgia
I had it really, really badly in the last couple of years- I think at one point last year I had it on my face, my scalp, my torso, my arms, my legs- all at once, and all bleeding and seeping too. Gross. Also my hair is ridiculously thin because it's all falled out cos of my scalp eczema. Luckily I don't have any balding patches but my ponytail looks like it's only half my hair up there.

Anyway I see a dermotologist now and it's way better, and if you can get your doctor to refer you to one it can make all the difference (e.g. before I saw a dermotologist my eczema had been diagnosed as psoriasis, doh).

I've been put on oral steroid for it (basically a month of not sleeping but my skin was amazing) antibiotics for an infected scalp (really bitter taste in my mouth all the time, had to eat mints constantly for a few weeks) and now it's settled down so I'm just using some creams and scalp applications.

At the moment Protopic is working for me really well- it's not a steroid cream but it has similar effects, but without the flare ups that you get when you stop using something like betnovate. On my scalp I'm using betnovate along with a steroid shampoo, forgotten its name.

Yeah, I've had it since I can remember and it can really knock your confidence. I'm a lot better with it now but I used to avoid going out if it was bad, and I haven't had a haircut in over 2 years. It really sucks but I think there's always something you can do to make it better, and there are SO many treatments out there that you're never really going to run out of trying something new.



Original post by Liam 09
I used to have it bad as a real young child, basically my whole body was red and/or bleeding, I also remember the day I completely lost all of my Eczema when we arrived in Paris for a holiday, it was a really strange feeling.
Since then i've barely ever had it again altough i've got a horrible bit of eczema on my inner thighs and between my neck and shoulders.



Original post by missygeorgia
Yeah, I went out with a guy for like 3 years and we never, ever mentioned it. I just pretended it wasn't there and I think he felt like he'd left it too long to ask, so it was really awkward cos I had it pretty much all over me. I'm way more open about it now and it's so much better, such a relief to not be embarassed or awkward about it.



Original post by ArtemisRose
I had it extremely bad as a kid all over my body. My face was the worst. My mum didn't want to use any steroid creams on me when I was younger so after that's all the GP had to offer she took me to a Chinese herbalist.

He gave me a cream as well an absolute vile concoction of herbs to drink, all this really done was made me feel cold but it did clear up some of the eczema.

After she had taken me there she took me to a homeopathic doctor who gave me a sort of powder to take and that cleared my eczema up within a year. My eczema has been basically gone since I was about 8.

I still have really dry skin and I'm almost constantly itchy but you wouldn't
Even be able to tell now that I've got it.

If you havent already I would suggest busting a homeopath. Also
completely cut out fizzy juice and as much chocolate as you can. I was also told to stop eating and drinking dairy products, was told to have goats milk instead. Another thing I was told to stay away from was citrus fruits.

Try to use baby johnsons or simple shower gel, it's less harsh on your skin and also be careful what shampoo you buy. I use E45 as a moisturiser and that gets rid of most of the dryness.

I know people are skeptical about homeopaths but that was the only thing that got rid of my eczema and since then it's never came back. My sister had it too but not as severe, she didn't get any homeopathic treatment and hers is still behind her knees and on her arms.



Original post by Kerbing
I've Psoriasis.. Not too different. Got it on my arms, legs, torso, back, scalp, neck, face..

Had it since I was 3, and now 19. Used to be wayyyyy worse when I was younger, but I got a decent treatment for it about 9 months ago and it helped a lot. Used to have massive patches, but now it's just small outbreaks.

Got teased about it lots when I was younger so didn't really have much confidence and tried to do everything to hide it. But now it's cleared up well, I'm not as paranoid about it, but still be aware when meeting new people and stuff..

Diprobase is great for keeping the skin moist and smooth. Pretty much only steriod creams work on the outbreaks that takes away the scaleyness/redness.



Original post by raveen789
Hey i have it all over my body, and have had it since i was young. When it really gets bad i take steroids that are in creams as a last resort it really does calm it down. But usually i just keep my skin moist with oil after a shower or Vaseline usually in the day. I find a hot shower often calms it down a little but it is a persistent think. It has had not affect on my confidence, does not bother me but when i get wet like in a swimming pool or rain or whatever i find it very annoying or when i get a hair cut.

On the bright side it gives me something to talk about if i decide to apply to medicine, since i used to constantly have to see a dermatologist. :smile:



Original post by Anonymous
DO NOT USE E45!!

I used it everyday for like 2 years and I swear it made it worse. There was stuff in the papers about it being bad. If you are going to use a cream, dont use an E45 water based type one. Use an oil based cream!



Original post by Hylean
My doctor has given me diprobase; betnovate ointment; lotraderm, which is antifungal with steroids, for my feet; and fuicidin, which is antibiotic with steroids, for my nipples.

I have it on my legs, feet, my nipples, my arms, armpits, and my genitalia and now my left ear canal. The hard water in Iceland appears to aggravate my condition so it's flaring up far worse than it usually does.



Original post by LawBore
I use hydrocortisone, substitute soap, and betnovate (for more regular use). I have it on my hands, and more occasionally on my forehead. I also hoover pretty much daily. On bad days, an antihystamine tablet is good.

With regards to confidence, I know how you feel. I'd often be quite paranoid about people seeing or touching my hands etc, lest they think me disgusting. Anyone I've mentioned it to, though, apparently hardly noticed I had it at all.



Original post by xNoleGirlx
Coconut oil is great if you're diligent enough to apply it throughout the day! :smile:



Original post by Simbarashe
also try tanning salons if the pain of eczema overweighs the risk of skin cancer in later life. im mixed race so ive guess ive always thought i'd be less affected.. i've never been but in the summer my skin clears up entirely and if this BLOODCLART COLD WEATHER CONTINUES FOR MUCH LONGER i might just buy one of these cheap return flights to portugal for a weekend lol



Original post by missygeorgia
Regular sunbeds don't work- it's UVA light whereas the light that helps eczema is UVB.



Original post by meowmeowmutiny
Really? I get pretty bad flare ups and rashes and what have you if I stop using it.



Original post by missygeorgia
Regular sunbeds don't work- it's UVA light whereas the light that helps eczema is UVB.


thanks for all your messages.. atm im having a flare up and its on my neck, forehead, around my mouth, arms and on my chest.. its like the worst one i've had in agess!
:frown:
but im actually going to try everything you guys have suggested.. i already use betnovate, but apparently you shouldnt really use it on your face often and thats where i get it the most!! and for every day use i use emulsifying ointment.. this is ok but its a bit greasy.. :s-smilie:

my friends dont really mention it, and i dont either.. but if i do it just feels really awkward, they dont make it awkward i do :P

good luck with all of it :smile:
xxx
Reply 23
I used to have it on my arms - it was there for quite a while. I tried quite alot of creams to get rid of it - I found that E45 had absolutely no effect and actually seemed to make it worse. I eventually got rid of it with diprobase and hydrocortisone cream, which were amazing :biggrin:.
Then recently I got eczema on my head, and tried some of the shampoos and stuff you can get in Boots and such, but nothing worked. Then eventually I decided to go to the doctors and she gave me some steroid stuff (betnovate?) which made it completely disappear within a few days! I'm still having to use it now to keep it at bay though.
I have some form of it on my face, I think (my skin is generally dry but the skin on my face gets red too). For a couple of weeks, I put on cocoa butter cream (similar to aqueous cream) before I went to bed and although it took a while, it did get rid of some of the redness and some of the dry/flaky/dead skin.

I stopped using it about a week ago and just continued to wash my face with cold water and I had no problems until today where it's flared up a bit. However, I didn't go out much at the weekend whereas I went out a fair bit during the week. I think my skin reacted badly to being kept in warm conditions (thanks to my house's central heating) so soon after being exposed to the cold air during the week.

TL;DR - cocoa butter helped a fair bit for me and try and notice patterns in your flare ups. For example, I think mine are caused by a change in air.
Original post by amelle
thanks for all your messages.. atm im having a flare up and its on my neck, forehead, around my mouth, arms and on my chest.. its like the worst one i've had in agess!
:frown:
but im actually going to try everything you guys have suggested.. i already use betnovate, but apparently you shouldnt really use it on your face often


Tbh, I think NHS doctors are overly cautious about that. Like, when I saw my GP he was always like OMG you're using Betnovate for a prolonged period of time?!?!?!
but when I started seeing my dermotologist he's much more relaxed about it, and is more concerned with making it better than with being paranoid about side affects. The way I look at it, the worst that could happen is that my skin might thin a bit, and that's hardly worse than eczema.
Oh- also- get dust-mite resistant covers for your duvet/pillows/mattress. I thought my mum was silly when she made me get them but now I've noticed I'm REALLY itchy when I stay in a bed without them on, because dust mites can aggravate it.
Original post by missygeorgia
betnovate? yeah, me too- I don't really like betnovate, it only really seems like it works in the very short term alongside other treatment. Because when you use it it's great, and the eczema goes away straight away, but then as soon as you stop it flares up even worse than before.


Ah no, protopic. To be fair I've been on it since it was first on trial. I think I'm only a few years away from skin cancer now >_>
Reply 28
I've had eczema since I was about 5 and I hate it, I have it mostly on the backs of my knees but recently my hands and elbows have started to become itchy, might just be because of the weather though. I went on holiday with my friends this summer and I was so self conscious about going swimming because I had a flare up, it's really annoying :frown:
I use Diprobase and sometimes E45 cream, I have hydrocortisone as well but apparently you're not meant to use it too often so I only use it when I have bad flare ups.

It's nice to know I'm not alone though, when I was younger it seemed like I was the only one with eczema, now I know I'm not I feel a bit happier :smile: Does anyone else have asthma as well? I've heard the two are linked.
Original post by meowmeowmutiny
Ah no, protopic. To be fair I've been on it since it was first on trial. I think I'm only a few years away from skin cancer now >_>


oh right. Yeah I'm pretty sure by the time I'm 30 I will have NO SKIN. which will be a blessing.

I've only been on Protopic since the summer, I quite like it so far but I'm really rubbish at putting creams on so I forget about it for ages.
Original post by missygeorgia
Tbh, I think NHS doctors are overly cautious about that. Like, when I saw my GP he was always like OMG you're using Betnovate for a prolonged period of time?!?!?!
but when I started seeing my dermotologist he's much more relaxed about it, and is more concerned with making it better than with being paranoid about side affects. The way I look at it, the worst that could happen is that my skin might thin a bit, and that's hardly worse than eczema.


I'm using Hydro-cortisone at the moment, but I'm going to stop soon, since the skin-thinning is not nice at all. I used the cream for 2 months straight at one point, and my legs looked almost reptilian... the eczema looked far more attractive, and I'd refuse to go out without 3 layers over it when it was just the eczema.

With any cream which can cause skin to thin, I really advise not using it for too long, and if you notice your skin looking different, then stop (: (purely from personal experience)

And E45 cream is apparently a waste of time and money. My mum (a pharmacist) says she'd advise aqueous cream, simple moisturiser or Diprobase rather than E45.
Original post by JKGB
Does anyone else have asthma as well? I've heard the two are linked.


:eek: Are they?
I have it (:
*goes off to Google this* :u:

EDIT:
There is a link :eek:

Learn something new every day :smile:
(edited 13 years ago)
Reply 32
Original post by missygeorgia
I had it really, really badly in the last couple of years- I think at one point last year I had it on my face, my scalp, my torso, my arms, my legs- all at once, and all bleeding and seeping too. Gross. Also my hair is ridiculously thin because it's all falled out cos of my scalp eczema. Luckily I don't have any balding patches but my ponytail looks like it's only half my hair up there.

Anyway I see a dermotologist now and it's way better, and if you can get your doctor to refer you to one it can make all the difference (e.g. before I saw a dermotologist my eczema had been diagnosed as psoriasis, doh).

I've been put on oral steroid for it (basically a month of not sleeping but my skin was amazing) antibiotics for an infected scalp (really bitter taste in my mouth all the time, had to eat mints constantly for a few weeks) and now it's settled down so I'm just using some creams and scalp applications.

At the moment Protopic is working for me really well- it's not a steroid cream but it has similar effects, but without the flare ups that you get when you stop using something like betnovate. On my scalp I'm using betnovate along with a steroid shampoo, forgotten its name.

Yeah, I've had it since I can remember and it can really knock your confidence. I'm a lot better with it now but I used to avoid going out if it was bad, and I haven't had a haircut in over 2 years. It really sucks but I think there's always something you can do to make it better, and there are SO many treatments out there that you're never really going to run out of trying something new.


don't want to alarm you, but protopic use increases the risk of getting skin/lymph cancer. Some specialists in america have advised against its use. Some specialists say the risk is small. protopic is better than steriod creams as it doesn't thin the skin like steroids.

Temped as a secretary for a dermatologist and he prescribed protopic a fair bit.

Diet/deficiencies plays a massive role (although there are some specialists who wouldn't agree!) in conditions such as eczema/psoriasis.
Original post by HeatherHatter


I'm using Hydro-cortisone at the moment, but I'm going to stop soon, since the skin-thinning is not nice at all. I used the cream for 2 months straight at one point, and my legs looked almost reptilian... the eczema looked far more attractive, and I'd refuse to go out without 3 layers over it when it was just the eczema.

With any cream which can cause skin to thin, I really advise not using it for too long, and if you notice your skin looking different, then stop (: (purely from personal experience)


Yeah, I spose it's easy for me to say when (luckily) I've never had skin thinning.
Original post by missygeorgia
oh right. Yeah I'm pretty sure by the time I'm 30 I will have NO SKIN. which will be a blessing.

I've only been on Protopic since the summer, I quite like it so far but I'm really rubbish at putting creams on so I forget about it for ages.


Don't let me put you off it, it really is a miracle cure compared to the alternatives, especially if you only have to use it every now and again.
Reply 35
Original post by HeatherHatter
:eek: Are they?
I have it (:
*goes off to Google this* :u:


both are linked to the immune system/allergies
I have psoriasis, which I imagine is quite similar in terms of treatment. I've had it since I was 6 and at times all over my body :frown: It used to knock my confidence, but you work through it, you realise that noone really cares what you look like and most importantly you only live once :wink: I know these are just words, and these words, you have most likely heard before, but say these words with deliberance, fully process your brain into believing them and your life will be so much better :biggrin: Plus, mines is nearly away now, with the use of methotrexate, dovobet, protopic and a myriad of other treatments. The ones that I have stated, I would say were the most effective for me :smile: Plus betnovate for scalp. I hope you start to feel better about yourself and get out of this rut, because I know how hard it is and I know the psychological warfare can be hindering to your social life and just life in general, but just try battle through it and hopefully you begin to feel better about yourself :^_^:
Original post by bunty64
don't want to alarm you, but protopic use increases the risk of getting skin/lymph cancer. Some specialists in america have advised against its use. Some specialists say the risk is small. protopic is better than steriod creams as it doesn't thin the skin like steroids.


Well, yeah, but sun also causes cancer and I get as much as that as possible for my eczema. I'd rather sort my skin out now and risk illness later than be miserable with terrible eczema and a slightly lower chance of cancer (I'm sure most sufferers would agree to be honest).

Original post by bunty64

Diet/deficiencies plays a massive role (although there are some specialists who wouldn't agree!) in conditions such as eczema/psoriasis.


Why do you think so?
Reply 38
Original post by HeatherHatter


I'm using Hydro-cortisone at the moment, but I'm going to stop soon, since the skin-thinning is not nice at all. I used the cream for 2 months straight at one point, and my legs looked almost reptilian... the eczema looked far more attractive, and I'd refuse to go out without 3 layers over it when it was just the eczema.

With any cream which can cause skin to thin, I really advise not using it for too long, and if you notice your skin looking different, then stop (: (purely from personal experience)

And E45 cream is apparently a waste of time and money. My mum (a pharmacist) says she'd advise aqueous cream, simple moisturiser or Diprobase rather than E45.


apparently aqeuous cream is not good for moisturising eczematous skin (some will disagree), rather should be used as a soap substitute.
Aveeno range meant to be good for eczema.
Reply 39
Original post by missygeorgia
Well, yeah, but sun also causes cancer and I get as much as that as possible for my eczema. I'd rather sort my skin out now and risk illness later than be miserable with terrible eczema and a slightly lower chance of cancer (I'm sure most sufferers would agree to be honest).



Why do you think so?

yeh I see your point :smile:
read up quite a bit on it and spoken to patients who provide anecdotal evidence.
Niece has eczema and she's been tested for allergies etc.

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