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Psoriasis
I was just wondering whether anyone on TSR had psoriasis. It is relatively common, but not as much as something like eczema.
I was first diagnosed by my GP who recognised my 'dry' scalp patch as psoriasis. But, the actual psoriasis started to present from as far back as 2010. I didn't think much of it as it must have been a couple of millimeters in length and diameter, but when I was admitted into hospital it got drastically worse. I have a feeling the stress of the situation exacerbated its condition (I was sectioned after trying to commit suicide a couple of times). Research has indicated that stress can worsen psoriasis.
Since then i've been using coal tar shampoos, coal tar based oitnments and betnovate (a potent corticosteroid). Nothing has really helped, so i'll be asking for a referral to a dermatologist.
I've also done some research into it. It is a life long condition and may well spread and get worse, but I still have the option of phototherapy and biologics/systemics if it becomes severe.
I was thinking that this thread could be used to share tips on what has worked, what hasn't and how we can be proactive about our treatment.
Share your experiences.
I was first diagnosed by my GP who recognised my 'dry' scalp patch as psoriasis. But, the actual psoriasis started to present from as far back as 2010. I didn't think much of it as it must have been a couple of millimeters in length and diameter, but when I was admitted into hospital it got drastically worse. I have a feeling the stress of the situation exacerbated its condition (I was sectioned after trying to commit suicide a couple of times). Research has indicated that stress can worsen psoriasis.
Since then i've been using coal tar shampoos, coal tar based oitnments and betnovate (a potent corticosteroid). Nothing has really helped, so i'll be asking for a referral to a dermatologist.
I've also done some research into it. It is a life long condition and may well spread and get worse, but I still have the option of phototherapy and biologics/systemics if it becomes severe.
I was thinking that this thread could be used to share tips on what has worked, what hasn't and how we can be proactive about our treatment.
Share your experiences.
Scroll to see replies
Original post by Coffinman
How did you get diagnosed and what tests were done?
My GP took a scraping from my scalp to have it tested, but that was primarily to check that it had not been infected. It's really quite simple. It may be more difficult for other areas of the body and the type of psoriasis. I have plaque psoriasis on my scalp, which is the most common type. Other types include guttate, inverse...etc.
Do you think you have it?
Original post by Anonymous
X
Hey there,
Hope this thread isn't too old to add to. Anyway, I've had psoriasis for as long as I can remember. It used to just be my legs and scalp, but it has become considerably worse over the years, so that it's now on my arms, back and chest, even my face. Stress exacerbates things for me (on my own anecdotal evidence), and it's worse in the winter than the summer. I have no idea about diet.
What's worked: Betnovate works really well on my scalp and clears things up pretty well (though they just come back the next day). I find the coal tar shampoos are a bit of a waste of time compared to that.
Of course, you get prescribed different stuff depending on the area of the body, so the stuff I have for other areas is similar, but creams instead of an ointment. I have tried a lot of different topical treatments, largely without success. Most can reduce the scaliness of the plaques, which is good; but the redness remains, so my skin is still noticeable.
I have probably exhausted the topical treatments. I haven't tried any of the phototherapy options, so I can't comment.
On a different note, I guess that the real heart of psoriasis, at least for me, is as a psychological, rather than physical, problem. I get barely any irritation from my skin, but feel a great deal of self-consciousness in my day to day life. People will look at you because you look different, because there is something wrong with you. I know that there's nothing outwardly malicious in that, and we all do it ... I just hate getting judged.
My friends never mention it or give any sign of noticing ... I have no idea what they think or feel about it. I guess they just try to ignore it so as not to make me feel bad. Guys just don't sit down and talk about that sort of thing, after all.
Occasionally strangers like to be rude or cruel in their commentary, just because. Nothing ruins your day like being the subject of a negative conversation within earshot. In winter, I can get away with covering up, but the summer does not allow such cowardice.
I guess I've had it for so long that it festers as a sort of deep-seated barrier to my own self-confidence. It gives me problems with everything from going swimming to relationships. I should have done something earlier, before it became a really integral part of my own self-image and psyche.
Speaking from experience (and my own mistakes), the best advice I can give is to work hard to maintain your body confidence, particularly while your psoriasis is less severe. Also, be proactive in seeing specialists - feel like you have goals and a solution in place. Make sure that you talk about how you feel emotionally, not just physically. CBT is quite popular in cases where the patient has strong emotional concerns about the condition.
Finally, don't ever feel ashamed of yourself.
Hope I helped a little bit - anyone is free to ask what they want about it or PM me.
Original post by Perdiccas
Hey there,
Hope this thread isn't too old to add to. Anyway, I've had psoriasis for as long as I can remember. It used to just be my legs and scalp, but it has become considerably worse over the years, so that it's now on my arms, back and chest, even my face. Stress exacerbates things for me (on my own anecdotal evidence), and it's worse in the winter than the summer. I have no idea about diet.
What's worked: Betnovate works really well on my scalp and clears things up pretty well (though they just come back the next day). I find the coal tar shampoos are a bit of a waste of time compared to that.
Of course, you get prescribed different stuff depending on the area of the body, so the stuff I have for other areas is similar, but creams instead of an ointment. I have tried a lot of different topical treatments, largely without success. Most can reduce the scaliness of the plaques, which is good; but the redness remains, so my skin is still noticeable.
I have probably exhausted the topical treatments. I haven't tried any of the phototherapy options, so I can't comment.
On a different note, I guess that the real heart of psoriasis, at least for me, is as a psychological, rather than physical, problem. I get barely any irritation from my skin, but feel a great deal of self-consciousness in my day to day life. People will look at you because you look different, because there is something wrong with you. I know that there's nothing outwardly malicious in that, and we all do it ... I just hate getting judged.
My friends never mention it or give any sign of noticing ... I have no idea what they think or feel about it. I guess they just try to ignore it so as not to make me feel bad. Guys just don't sit down and talk about that sort of thing, after all.
Occasionally strangers like to be rude or cruel in their commentary, just because. Nothing ruins your day like being the subject of a negative conversation within earshot. In winter, I can get away with covering up, but the summer does not allow such cowardice.
I guess I've had it for so long that it festers as a sort of deep-seated barrier to my own self-confidence. It gives me problems with everything from going swimming to relationships. I should have done something earlier, before it became a really integral part of my own self-image and psyche.
Speaking from experience (and my own mistakes), the best advice I can give is to work hard to maintain your body confidence, particularly while your psoriasis is less severe. Also, be proactive in seeing specialists - feel like you have goals and a solution in place. Make sure that you talk about how you feel emotionally, not just physically. CBT is quite popular in cases where the patient has strong emotional concerns about the condition.
Finally, don't ever feel ashamed of yourself.
Hope I helped a little bit - anyone is free to ask what they want about it or PM me.
Hope this thread isn't too old to add to. Anyway, I've had psoriasis for as long as I can remember. It used to just be my legs and scalp, but it has become considerably worse over the years, so that it's now on my arms, back and chest, even my face. Stress exacerbates things for me (on my own anecdotal evidence), and it's worse in the winter than the summer. I have no idea about diet.
What's worked: Betnovate works really well on my scalp and clears things up pretty well (though they just come back the next day). I find the coal tar shampoos are a bit of a waste of time compared to that.
Of course, you get prescribed different stuff depending on the area of the body, so the stuff I have for other areas is similar, but creams instead of an ointment. I have tried a lot of different topical treatments, largely without success. Most can reduce the scaliness of the plaques, which is good; but the redness remains, so my skin is still noticeable.
I have probably exhausted the topical treatments. I haven't tried any of the phototherapy options, so I can't comment.
On a different note, I guess that the real heart of psoriasis, at least for me, is as a psychological, rather than physical, problem. I get barely any irritation from my skin, but feel a great deal of self-consciousness in my day to day life. People will look at you because you look different, because there is something wrong with you. I know that there's nothing outwardly malicious in that, and we all do it ... I just hate getting judged.
My friends never mention it or give any sign of noticing ... I have no idea what they think or feel about it. I guess they just try to ignore it so as not to make me feel bad. Guys just don't sit down and talk about that sort of thing, after all.
Occasionally strangers like to be rude or cruel in their commentary, just because. Nothing ruins your day like being the subject of a negative conversation within earshot. In winter, I can get away with covering up, but the summer does not allow such cowardice.
I guess I've had it for so long that it festers as a sort of deep-seated barrier to my own self-confidence. It gives me problems with everything from going swimming to relationships. I should have done something earlier, before it became a really integral part of my own self-image and psyche.
Speaking from experience (and my own mistakes), the best advice I can give is to work hard to maintain your body confidence, particularly while your psoriasis is less severe. Also, be proactive in seeing specialists - feel like you have goals and a solution in place. Make sure that you talk about how you feel emotionally, not just physically. CBT is quite popular in cases where the patient has strong emotional concerns about the condition.
Finally, don't ever feel ashamed of yourself.
Hope I helped a little bit - anyone is free to ask what they want about it or PM me.
Hi, this is great! I was hoping the thread would be quite popular so that we could share our experiences, but we may be the minority on TSR who have psoriasis.
I do feel for people that have the condition all over their body, I can't imagine the psychological toll it would have and the constant hassle of applying the treatments. I suppose in comparison I am lucky. But, I have a patch on my scalp and recently discovered that I have it in my groin area. Although, it's appearance is very much like my normal skin. I think the fact that psoriasis is such a recent diagnosis makes me overestimate how bad it is. Of course no one ever sees the plaques because they're in such discreet places. I just worry about the condition spreading.
Do you mind me asking in what sort of timescale the psoriasis spread across your body and when you were first diagnosed?
Original post by Anonymous
Hi, this is great! I was hoping the thread would be quite popular so that we could share our experiences, but we may be the minority on TSR who have psoriasis.
I do feel for people that have the condition all over their body, I can't imagine the psychological toll it would have and the constant hassle of applying the treatments. I suppose in comparison I am lucky. But, I have a patch on my scalp and recently discovered that I have it in my groin area. Although, it's appearance is very much like my normal skin. I think the fact that psoriasis is such a recent diagnosis makes me overestimate how bad it is. Of course no one ever sees the plaques because they're in such discreet places. I just worry about the condition spreading.
Do you mind me asking in what sort of timescale the psoriasis spread across your body and when you were first diagnosed?
I do feel for people that have the condition all over their body, I can't imagine the psychological toll it would have and the constant hassle of applying the treatments. I suppose in comparison I am lucky. But, I have a patch on my scalp and recently discovered that I have it in my groin area. Although, it's appearance is very much like my normal skin. I think the fact that psoriasis is such a recent diagnosis makes me overestimate how bad it is. Of course no one ever sees the plaques because they're in such discreet places. I just worry about the condition spreading.
Do you mind me asking in what sort of timescale the psoriasis spread across your body and when you were first diagnosed?
As you said in your first post, psoriasis is actually not as uncommon as you might think (Wikipedia says about 1.5%). Maybe most people feel uncomfortable (I notice, for example, that you are posting anonymously), or just don't know that the thread is here.
I am not so sure that the psychological toll of the condition has been commensurate with the severity. I mean, it will get better or worse over time and I do not find that my mind shifts in one direction or the other. As long as its there, no matter how discreetly, it will bother me. It was hard growing up, because I lacked the maturity to deal with it, and I was at an impressionable age. Being older (well, 20), I get on a little better and try hard to be more positive.
I feel for you because it's new and probably a little bit scary. It's not that well known as a condition, despite its apparent ubiquity. You don't know if it's going to get worse, whether you're stuck with it. Your mind probably dwells on it and overestimates its severity, particularly in other people's eyes.
I can't promise that everything will come up roses. The rational parts of my brain say that most people probably look because it's a bit unusual and that a career as a model or porn star (the option would have been nice, at least
) is out of the question -- apart from that, no one really cares (if they do, they're probably not worth your time). But then I think about modern society's fixation on aesthetic perfection, the unnecessary negative comments that have come my way (almost entirely from girls my age unfortunately - at least the ones that I heard); I wonder how it will impact my future. Yet, everyone has these concerns growing up, and everyone has something about themselves that they'd change, so I try to focus on the positives. What I shall say is that the condition spreads for some people, but not for others. I have known people who have small outbreaks on their hands every once in a while, but it is confined to that area. If you have a family history of the condition, that would probably provide a reliable yardstick. If not, who knows? Keep on top of your treatments, and you'll do ok.
I was first diagnosed with psoriasis when I was about 6 or 7. Obviously I had it by that time, possibly even from when I was a baby (I know that I had cradle cap as a baby, which is a related condition - either a misdiagnosis or just lousy skin).
It was definitely diagnosed from the appearance of the plaques on my legs, because they were already reasonably severe by that point. I presume that my scalp got worse later and went unnoticed at that time, since I can't recall it being mentioned. I also had trouble with my face at that time, but it later cleared up of its own volition.
It just got more severe on my legs and scalp over the years, and didn't spread to my upper arms and shoulders until I was about 15/16. In the last few years, it has got much worse, spreading to my back, chest, lower arms, face. I also find that if I get cuts anywhere on my skin, they tend to heal poorly and often become sites for plaques, which is possibly why plaques emerged on my arms and back (I got a lot of small cuts from playing rugby). Funnily enough, the likely areas for a sufferer nails and outside of joints) have only appeared very recently for me. It's different for everyone.
The mechanism, causes and general pathology of psoriasis remains poorly understood. There is no good reason to expect the condition to spread or get worse (some people find that it improves with age). One person's experience is not a worthwhile representation. I have found my skin to have good or bad periods almost idiopathically. It may remain constant for a long time, then get suddenly better or worse.
I would tell you to keep up with the treatments that you have been prescribed at the moment. Whilst they may not 'cure' you, they'll certainly keep on top of things, and keep the condition manageable. Part of the reason my skin got so much worse after about 15/16 is that I completely lost my **** in frustration at poor results, and just completely gave up on it. I wouldn't see doctors, lost what remained of my self-confidence etc.. I'd just had enough by that point.
That set me back a long way, and I would not advise it
By the time that I got back on track (relatively recently), things had got worse. On the plus side, these more recent patches do at least respond much better to treatment, while the older stuff just won't really budge.As for the present day, I'm having a bit of a flare-up because of exam stress (I presume), but the summer weather is often very effective in clearing it up (assuming, of course, that I go outside). My doctor suggests phototherapy as a next step. I don't know why I don't go for it. I guess it's because I know that it will only work temporarily work and stave off the condition for perhaps a year or two before it comes back. Then again, talking about it as I have not done for a long time makes me think that it's probably the right choice now. Maybe I'll mention it to my GP when I next see him.
I've probably written enough for today, so I'll leave it there. Also, anything you don't feel comfortable writing on the forum, you can always PM to me
You should definitely try the phototherapy. I had it last summer and it really worked for me, my skin was completely clear for my summer holiday which made me enjoy it so much more because I wasn't concerned about other people looking at me. I had to go 3 times a week for about 2 months which was a bit of an inconvenience but it was worth it. My psoriasis has come back in places but it is nowhere near as bad as it was before I had the phototherapy and it is much easier to manage.
Posted from TSR Mobile
Posted from TSR Mobile
I also have psoriasis, developed after my BCG jab it seems and has spread to be mainly on scalp and elbows, but also smaller patches on my back. It's a pain in the arse to deal with, and embarrassing when the skin flakes in places, but as a med student I can understand it a bit at least.
My main issue is actually doing what I'm meant to, I'm self-medicating atm with emollients (E45 cream) and a weak steroidal cream which seems to be helping a little, but is doing nothing for my scalp as can't apply it there, recently started trying a shampoo that is supposed to help, so will see how that goes.
BTW reason for self-medication is lack of GP during term time, intending to get proper stuff over summer
My biggest worry now are other autoimmune conditions.. don't fancy getting psoriatic arthritis, or any other autoimmune condition
Has anyone on here managed to clear the condition with creams etc? Any has it then come back at a later date?
My main issue is actually doing what I'm meant to, I'm self-medicating atm with emollients (E45 cream) and a weak steroidal cream which seems to be helping a little, but is doing nothing for my scalp as can't apply it there, recently started trying a shampoo that is supposed to help, so will see how that goes.
BTW reason for self-medication is lack of GP during term time, intending to get proper stuff over summer
My biggest worry now are other autoimmune conditions.. don't fancy getting psoriatic arthritis, or any other autoimmune condition
Has anyone on here managed to clear the condition with creams etc? Any has it then come back at a later date?
I have it, though fairly mild compared to many. I've heard goats milk can help?
If I am stressed it flares up and If I have an injury it does as well - I burnt my hand and the flare up I had was horrific
I didn't even know I had it until I went to uni, and had my first deadline - BOOM psoriasis everywhere.
You seem to have tried the same things as me, I don't find they really help much either, but they seem better than nothing at all (and at least they "cool" the area).
I think diet may also be a factor, I notice that if I eat rubbish or drink a lot of booze I get a flare up. Might be an idea to try yourself, maybe keep a food diary and see if there are any links?
Good luck getting it sorted, I know it's a pain in the bum!
If I am stressed it flares up and If I have an injury it does as well - I burnt my hand and the flare up I had was horrific
I didn't even know I had it until I went to uni, and had my first deadline - BOOM psoriasis everywhere.You seem to have tried the same things as me, I don't find they really help much either, but they seem better than nothing at all (and at least they "cool" the area).
I think diet may also be a factor, I notice that if I eat rubbish or drink a lot of booze I get a flare up. Might be an idea to try yourself, maybe keep a food diary and see if there are any links?
Good luck getting it sorted, I know it's a pain in the bum!
Original post by Perdiccas
As you said in your first post, psoriasis is actually not as uncommon as you might think (Wikipedia says about 1.5%). Maybe most people feel uncomfortable (I notice, for example, that you are posting anonymously), or just don't know that the thread is here.
I am not so sure that the psychological toll of the condition has been commensurate with the severity. I mean, it will get better or worse over time and I do not find that my mind shifts in one direction or the other. As long as its there, no matter how discreetly, it will bother me. It was hard growing up, because I lacked the maturity to deal with it, and I was at an impressionable age. Being older (well, 20), I get on a little better and try hard to be more positive.
I feel for you because it's new and probably a little bit scary. It's not that well known as a condition, despite its apparent ubiquity. You don't know if it's going to get worse, whether you're stuck with it. Your mind probably dwells on it and overestimates its severity, particularly in other people's eyes.
I can't promise that everything will come up roses. The rational parts of my brain say that most people probably look because it's a bit unusual and that a career as a model or porn star (the option would have been nice, at least ) is out of the question -- apart from that, no one really cares (if they do, they're probably not worth your time). But then I think about modern society's fixation on aesthetic perfection, the unnecessary negative comments that have come my way (almost entirely from girls my age unfortunately - at least the ones that I heard); I wonder how it will impact my future. Yet, everyone has these concerns growing up, and everyone has something about themselves that they'd change, so I try to focus on the positives.
What I shall say is that the condition spreads for some people, but not for others. I have known people who have small outbreaks on their hands every once in a while, but it is confined to that area. If you have a family history of the condition, that would probably provide a reliable yardstick. If not, who knows? Keep on top of your treatments, and you'll do ok.
I was first diagnosed with psoriasis when I was about 6 or 7. Obviously I had it by that time, possibly even from when I was a baby (I know that I had cradle cap as a baby, which is a related condition - either a misdiagnosis or just lousy skin).
It was definitely diagnosed from the appearance of the plaques on my legs, because they were already reasonably severe by that point. I presume that my scalp got worse later and went unnoticed at that time, since I can't recall it being mentioned. I also had trouble with my face at that time, but it later cleared up of its own volition.
It just got more severe on my legs and scalp over the years, and didn't spread to my upper arms and shoulders until I was about 15/16. In the last few years, it has got much worse, spreading to my back, chest, lower arms, face. I also find that if I get cuts anywhere on my skin, they tend to heal poorly and often become sites for plaques, which is possibly why plaques emerged on my arms and back (I got a lot of small cuts from playing rugby). Funnily enough, the likely areas for a sufferer nails and outside of joints) have only appeared very recently for me. It's different for everyone.
The mechanism, causes and general pathology of psoriasis remains poorly understood. There is no good reason to expect the condition to spread or get worse (some people find that it improves with age). One person's experience is not a worthwhile representation. I have found my skin to have good or bad periods almost idiopathically. It may remain constant for a long time, then get suddenly better or worse.
I would tell you to keep up with the treatments that you have been prescribed at the moment. Whilst they may not 'cure' you, they'll certainly keep on top of things, and keep the condition manageable. Part of the reason my skin got so much worse after about 15/16 is that I completely lost my **** in frustration at poor results, and just completely gave up on it. I wouldn't see doctors, lost what remained of my self-confidence etc.. I'd just had enough by that point.
That set me back a long way, and I would not advise it By the time that I got back on track (relatively recently), things had got worse. On the plus side, these more recent patches do at least respond much better to treatment, while the older stuff just won't really budge.
As for the present day, I'm having a bit of a flare-up because of exam stress (I presume), but the summer weather is often very effective in clearing it up (assuming, of course, that I go outside). My doctor suggests phototherapy as a next step. I don't know why I don't go for it. I guess it's because I know that it will only work temporarily work and stave off the condition for perhaps a year or two before it comes back. Then again, talking about it as I have not done for a long time makes me think that it's probably the right choice now. Maybe I'll mention it to my GP when I next see him.
I've probably written enough for today, so I'll leave it there. Also, anything you don't feel comfortable writing on the forum, you can always PM to me
I am not so sure that the psychological toll of the condition has been commensurate with the severity. I mean, it will get better or worse over time and I do not find that my mind shifts in one direction or the other. As long as its there, no matter how discreetly, it will bother me. It was hard growing up, because I lacked the maturity to deal with it, and I was at an impressionable age. Being older (well, 20), I get on a little better and try hard to be more positive.
I feel for you because it's new and probably a little bit scary. It's not that well known as a condition, despite its apparent ubiquity. You don't know if it's going to get worse, whether you're stuck with it. Your mind probably dwells on it and overestimates its severity, particularly in other people's eyes.
I can't promise that everything will come up roses. The rational parts of my brain say that most people probably look because it's a bit unusual and that a career as a model or porn star (the option would have been nice, at least
) is out of the question -- apart from that, no one really cares (if they do, they're probably not worth your time). But then I think about modern society's fixation on aesthetic perfection, the unnecessary negative comments that have come my way (almost entirely from girls my age unfortunately - at least the ones that I heard); I wonder how it will impact my future. Yet, everyone has these concerns growing up, and everyone has something about themselves that they'd change, so I try to focus on the positives. What I shall say is that the condition spreads for some people, but not for others. I have known people who have small outbreaks on their hands every once in a while, but it is confined to that area. If you have a family history of the condition, that would probably provide a reliable yardstick. If not, who knows? Keep on top of your treatments, and you'll do ok.
I was first diagnosed with psoriasis when I was about 6 or 7. Obviously I had it by that time, possibly even from when I was a baby (I know that I had cradle cap as a baby, which is a related condition - either a misdiagnosis or just lousy skin).
It was definitely diagnosed from the appearance of the plaques on my legs, because they were already reasonably severe by that point. I presume that my scalp got worse later and went unnoticed at that time, since I can't recall it being mentioned. I also had trouble with my face at that time, but it later cleared up of its own volition.
It just got more severe on my legs and scalp over the years, and didn't spread to my upper arms and shoulders until I was about 15/16. In the last few years, it has got much worse, spreading to my back, chest, lower arms, face. I also find that if I get cuts anywhere on my skin, they tend to heal poorly and often become sites for plaques, which is possibly why plaques emerged on my arms and back (I got a lot of small cuts from playing rugby). Funnily enough, the likely areas for a sufferer nails and outside of joints) have only appeared very recently for me. It's different for everyone.
The mechanism, causes and general pathology of psoriasis remains poorly understood. There is no good reason to expect the condition to spread or get worse (some people find that it improves with age). One person's experience is not a worthwhile representation. I have found my skin to have good or bad periods almost idiopathically. It may remain constant for a long time, then get suddenly better or worse.
I would tell you to keep up with the treatments that you have been prescribed at the moment. Whilst they may not 'cure' you, they'll certainly keep on top of things, and keep the condition manageable. Part of the reason my skin got so much worse after about 15/16 is that I completely lost my **** in frustration at poor results, and just completely gave up on it. I wouldn't see doctors, lost what remained of my self-confidence etc.. I'd just had enough by that point.
That set me back a long way, and I would not advise it
By the time that I got back on track (relatively recently), things had got worse. On the plus side, these more recent patches do at least respond much better to treatment, while the older stuff just won't really budge.As for the present day, I'm having a bit of a flare-up because of exam stress (I presume), but the summer weather is often very effective in clearing it up (assuming, of course, that I go outside). My doctor suggests phototherapy as a next step. I don't know why I don't go for it. I guess it's because I know that it will only work temporarily work and stave off the condition for perhaps a year or two before it comes back. Then again, talking about it as I have not done for a long time makes me think that it's probably the right choice now. Maybe I'll mention it to my GP when I next see him.
I've probably written enough for today, so I'll leave it there. Also, anything you don't feel comfortable writing on the forum, you can always PM to me
Hi again
I'm actually fairly open about my psoriasis towards family and friends alike, but I don't tell them that I have it on my genitals because it just seems like a topic that would be frowned upon, I know that I was devastated when I first noticed the signs. Also, most people would associate the common appearance of plaques to be present on my genital skin, but for me, it's just more red than anything...inverse psoriasis and whatnot. Of course I can't prove this to my friends by giving a visual like my scalp.
That's really the only reason why i'm posting Anonymously. Other TSR members know me personally and I haven't disclosed my genital psoriasis. As you can imagine, it's quite a sensitive subject. I'm female btw. 
Despite being diagnosed formally a year or so ago, I have suspicions that I had psoriasis from as young as 6 or 7 because my genital skin always had the psoriasis-like appearance. I just never showed my parents or GP out of embarrassment. I also had moderately severe eczema, which has just confused and compounded everything really. I'm still unsure as to whether I have psoriatic-eczema or psoriasis alone.
I can empathise with feeling the need to cover your psoriasis, not from the plague point of view, but from my experience with scarring, I have old self harm scars on my arms, which I religiously keep covered with clothing. I also have hyperpigmentation from my eczema on the backs of my knees and the insides of my elbows. For that reason, i've always ensured my legs and arms were covered because, to me, they were unsightly. I'm asian, so severe scarring takes a lot longer to fade compared to those with fair skin.
Although, I am scheduled to see a dermatologist in a couple of weeks where i'll be able to query camouflage makeup. I've done a lot of research to finally find that there is a temporary solution. Hopefully, it'll enable me to get my legs and arms out fully for the forthcoming summer.
I don't seem to have any family history of psoriasis, so it's hard to track whether I will have flare ups in the future. It truly is a new phenomenon in my family and not one that is welcomed. Most of my family are disgusted by it's appearance, even though it's only 2p sized patch on my scalp.
You mentioned that you seem to get psoriasis lesions when a new cut appears, i'm pretty sure that's called the Koebner effect. You should look into it if you haven't already. Thanks for the advice on keeping on top of my treatments, I was beginning to lose hope with my scalp. It just won't go into remission! Grr.
Thanks for the reply and advice and I sincerely hope your psoriasis improves.
Original post by Banana28
You should definitely try the phototherapy. I had it last summer and it really worked for me, my skin was completely clear for my summer holiday which made me enjoy it so much more because I wasn't concerned about other people looking at me. I had to go 3 times a week for about 2 months which was a bit of an inconvenience but it was worth it. My psoriasis has come back in places but it is nowhere near as bad as it was before I had the phototherapy and it is much easier to manage.
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Thanks for the feedback. I've heard some horror stories where the phototherapy has worsened psoriasis and even caused new lesions to appear.
Do you think i'd be able to get localised phototherapy for my scalp and groin area? It seems a bit tricky and i'm not entirely sure as to whether it's possible. From what i've heard it's reserved for those with psoriasis all over the body.
Original post by Anonymous
I also have psoriasis, developed after my BCG jab it seems and has spread to be mainly on scalp and elbows, but also smaller patches on my back. It's a pain in the arse to deal with, and embarrassing when the skin flakes in places, but as a med student I can understand it a bit at least.
My main issue is actually doing what I'm meant to, I'm self-medicating atm with emollients (E45 cream) and a weak steroidal cream which seems to be helping a little, but is doing nothing for my scalp as can't apply it there, recently started trying a shampoo that is supposed to help, so will see how that goes.
BTW reason for self-medication is lack of GP during term time, intending to get proper stuff over summer
My biggest worry now are other autoimmune conditions.. don't fancy getting psoriatic arthritis, or any other autoimmune condition
Has anyone on here managed to clear the condition with creams etc? Any has it then come back at a later date?
My main issue is actually doing what I'm meant to, I'm self-medicating atm with emollients (E45 cream) and a weak steroidal cream which seems to be helping a little, but is doing nothing for my scalp as can't apply it there, recently started trying a shampoo that is supposed to help, so will see how that goes.
BTW reason for self-medication is lack of GP during term time, intending to get proper stuff over summer
My biggest worry now are other autoimmune conditions.. don't fancy getting psoriatic arthritis, or any other autoimmune condition
Has anyone on here managed to clear the condition with creams etc? Any has it then come back at a later date?
Wow, that must be annoying. I can't pinpoint the cause of my psoriasis, but i'm guessing my flare up is do to the stress i've been under over the past few years.
I'll be moving away to university in the new academic year, which means i'll have to change my GP. One of my fears are that the university GP won't be very understanding or will be bogged down with too many patients to consider my treatment plan thoroughly. Having said that, my current GP is pretty useless as it is.
I don't fancy psoriatic arthritis either, or the psoriasis spreading in any shape or form.
I worry myself into the ground about my psoriasis, which is probably counterproductive because of the link between stress and flare ups. Good luck with clearing your psoriasis. I hope things get better soon.
Original post by Anonymous
Thanks for the feedback. I've heard some horror stories where the phototherapy has worsened psoriasis and even caused new lesions to appear.
Do you think i'd be able to get localised phototherapy for my scalp and groin area? It seems a bit tricky and i'm not entirely sure as to whether it's possible. From what i've heard it's reserved for those with psoriasis all over the body.
Do you think i'd be able to get localised phototherapy for my scalp and groin area? It seems a bit tricky and i'm not entirely sure as to whether it's possible. From what i've heard it's reserved for those with psoriasis all over the body.
Honestly it really worked for me and they monitored it really closely, so I assume if it appears to be getting any worse they will stop the treatment and recommend something else. The only thing was my skin got a lot drier during the treatment but I just moisturised all the time and it was fine.
As for treating the groin, they made me go in without any clothes on at all (I don't know whether this was because mine was widespread, or if they do this with all patients?!) but this cleared my whole body including the groin area...I'm not entirely sure if phototherapy can treat the scalp, it did nothing for mine but the hospital were great at giving me plenty of creams and ointments to use on my scalp. I would really recommend giving the phototherapy a go! It's really improved my condition and has helped greatly with my confidence!
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I've had psoriasis of the scalp for probably a couple of years now (I'm 22, so I first noticed it at 19 or 20 I think). However, mine is about as mild as you can get- I get those tell-tale plaques on my scalp around my forehead but they're not noticeable, mainly because of my hair which is long and thick, and having a fringe helps too. Sometimes it feels a bit irritated and I've noticed it's worse when I'm on my period (because periods are so much fun anyway, haha) but it really is very, very mild and sometimes almost clears up completely.
I'm very much with you guys that stress seems to be a factor somewhat, and like you, I find myself worrying about my psoriasis at times which probably doesn't help! But I'm very lucky in that I don't have it anywhere else on my body and so when I've told close friends that I have psoriasis in the past (say if we're talking about different medical ailments- I don't just bring it up randomly in conversation haha) their usual reaction is, "oh, you do? I never noticed". But I do fear it spreading because well, that would suck.
I have been to the doctor about it and was given some sort of oil-based steroid treatment, but I never really used it because I didn't really want to put steroids on my skin when it's such a mild problem anyway. Hence I've just left it alone for the time being, so I'm not very helpful when it comes to different treatments, sorry.
I was wondering if any of you suffered from flaking nails as a result of your psoriasis? Recently I've had one fingernail that's sort of flaking off at the end and I'm concerned that might be a new development of my psoriasis (though it could just be a lack of vitamins from eating so much crap during exam season, haha).
Anyway, I also wanted to say that I really respect you guys for plugging away and keeping your heads up, even though I don't have it severely it gets me down and worries me sometimes so I can empathise with you guys. I really hope a more effective and long-term treatment is developed for the condition soon, though phototherapy does sound really promising!
I'm very much with you guys that stress seems to be a factor somewhat, and like you, I find myself worrying about my psoriasis at times which probably doesn't help! But I'm very lucky in that I don't have it anywhere else on my body and so when I've told close friends that I have psoriasis in the past (say if we're talking about different medical ailments- I don't just bring it up randomly in conversation haha) their usual reaction is, "oh, you do? I never noticed". But I do fear it spreading because well, that would suck.
I have been to the doctor about it and was given some sort of oil-based steroid treatment, but I never really used it because I didn't really want to put steroids on my skin when it's such a mild problem anyway. Hence I've just left it alone for the time being, so I'm not very helpful when it comes to different treatments, sorry.
I was wondering if any of you suffered from flaking nails as a result of your psoriasis? Recently I've had one fingernail that's sort of flaking off at the end and I'm concerned that might be a new development of my psoriasis (though it could just be a lack of vitamins from eating so much crap during exam season, haha).
Anyway, I also wanted to say that I really respect you guys for plugging away and keeping your heads up, even though I don't have it severely it gets me down and worries me sometimes so I can empathise with you guys. I really hope a more effective and long-term treatment is developed for the condition soon, though phototherapy does sound really promising!
I googled this condition and it put my eczema into perspective mines not even bad although sometimes I year up my face leaving big scabs
If psoriasis itches put something cold on it and the itching will stop
I realised this because when I itch my skin gets really hot so I just put something cold on it ie. Plastic bottle ,an ice pack
Posted from TSR Mobile
If psoriasis itches put something cold on it and the itching will stop
I realised this because when I itch my skin gets really hot so I just put something cold on it ie. Plastic bottle ,an ice pack
Posted from TSR Mobile
Original post by Banana28
Honestly it really worked for me and they monitored it really closely, so I assume if it appears to be getting any worse they will stop the treatment and recommend something else. The only thing was my skin got a lot drier during the treatment but I just moisturised all the time and it was fine.
As for treating the groin, they made me go in without any clothes on at all (I don't know whether this was because mine was widespread, or if they do this with all patients?!) but this cleared my whole body including the groin area...I'm not entirely sure if phototherapy can treat the scalp, it did nothing for mine but the hospital were great at giving me plenty of creams and ointments to use on my scalp. I would really recommend giving the phototherapy a go! It's really improved my condition and has helped greatly with my confidence!
Posted from TSR Mobile
As for treating the groin, they made me go in without any clothes on at all (I don't know whether this was because mine was widespread, or if they do this with all patients?!) but this cleared my whole body including the groin area...I'm not entirely sure if phototherapy can treat the scalp, it did nothing for mine but the hospital were great at giving me plenty of creams and ointments to use on my scalp. I would really recommend giving the phototherapy a go! It's really improved my condition and has helped greatly with my confidence!
Posted from TSR Mobile
Perhaps the person that had the bad experience had undergone the treatment during it's introduction. I'm guessing things have come along way now.
I'm definitely going to push for the phototherapy when I see the dermatologist. Thank you!
Original post by llacerta
I've had psoriasis of the scalp for probably a couple of years now (I'm 22, so I first noticed it at 19 or 20 I think). However, mine is about as mild as you can get- I get those tell-tale plaques on my scalp around my forehead but they're not noticeable, mainly because of my hair which is long and thick, and having a fringe helps too. Sometimes it feels a bit irritated and I've noticed it's worse when I'm on my period (because periods are so much fun anyway, haha) but it really is very, very mild and sometimes almost clears up completely.
I'm very much with you guys that stress seems to be a factor somewhat, and like you, I find myself worrying about my psoriasis at times which probably doesn't help! But I'm very lucky in that I don't have it anywhere else on my body and so when I've told close friends that I have psoriasis in the past (say if we're talking about different medical ailments- I don't just bring it up randomly in conversation haha) their usual reaction is, "oh, you do? I never noticed". But I do fear it spreading because well, that would suck.
I have been to the doctor about it and was given some sort of oil-based steroid treatment, but I never really used it because I didn't really want to put steroids on my skin when it's such a mild problem anyway. Hence I've just left it alone for the time being, so I'm not very helpful when it comes to different treatments, sorry.
I was wondering if any of you suffered from flaking nails as a result of your psoriasis? Recently I've had one fingernail that's sort of flaking off at the end and I'm concerned that might be a new development of my psoriasis (though it could just be a lack of vitamins from eating so much crap during exam season, haha).
Anyway, I also wanted to say that I really respect you guys for plugging away and keeping your heads up, even though I don't have it severely it gets me down and worries me sometimes so I can empathise with you guys. I really hope a more effective and long-term treatment is developed for the condition soon, though phototherapy does sound really promising!
I'm very much with you guys that stress seems to be a factor somewhat, and like you, I find myself worrying about my psoriasis at times which probably doesn't help! But I'm very lucky in that I don't have it anywhere else on my body and so when I've told close friends that I have psoriasis in the past (say if we're talking about different medical ailments- I don't just bring it up randomly in conversation haha) their usual reaction is, "oh, you do? I never noticed". But I do fear it spreading because well, that would suck.
I have been to the doctor about it and was given some sort of oil-based steroid treatment, but I never really used it because I didn't really want to put steroids on my skin when it's such a mild problem anyway. Hence I've just left it alone for the time being, so I'm not very helpful when it comes to different treatments, sorry.
I was wondering if any of you suffered from flaking nails as a result of your psoriasis? Recently I've had one fingernail that's sort of flaking off at the end and I'm concerned that might be a new development of my psoriasis (though it could just be a lack of vitamins from eating so much crap during exam season, haha).
Anyway, I also wanted to say that I really respect you guys for plugging away and keeping your heads up, even though I don't have it severely it gets me down and worries me sometimes so I can empathise with you guys. I really hope a more effective and long-term treatment is developed for the condition soon, though phototherapy does sound really promising!
Thanks for the contribution. I haven't really noticed any fluctuations in my psoriasis during my period, but I did notice that using pads made my genital psoriasis more dry and itchy. I overcame that by switching to tampons, which has helped somewhat.
My main concern, like you, is the psoriasis spreading. But, hopefully a healthy diet and keeping stress at bay should help. :crossed:
Original post by llacerta
I've had psoriasis of the scalp for probably a couple of years now (I'm 22, so I first noticed it at 19 or 20 I think). However, mine is about as mild as you can get- I get those tell-tale plaques on my scalp around my forehead but they're not noticeable, mainly because of my hair which is long and thick, and having a fringe helps too. Sometimes it feels a bit irritated and I've noticed it's worse when I'm on my period (because periods are so much fun anyway, haha) but it really is very, very mild and sometimes almost clears up completely.
I'm very much with you guys that stress seems to be a factor somewhat, and like you, I find myself worrying about my psoriasis at times which probably doesn't help! But I'm very lucky in that I don't have it anywhere else on my body and so when I've told close friends that I have psoriasis in the past (say if we're talking about different medical ailments- I don't just bring it up randomly in conversation haha) their usual reaction is, "oh, you do? I never noticed". But I do fear it spreading because well, that would suck.
I have been to the doctor about it and was given some sort of oil-based steroid treatment, but I never really used it because I didn't really want to put steroids on my skin when it's such a mild problem anyway. Hence I've just left it alone for the time being, so I'm not very helpful when it comes to different treatments, sorry.
I was wondering if any of you suffered from flaking nails as a result of your psoriasis? Recently I've had one fingernail that's sort of flaking off at the end and I'm concerned that might be a new development of my psoriasis (though it could just be a lack of vitamins from eating so much crap during exam season, haha).
Anyway, I also wanted to say that I really respect you guys for plugging away and keeping your heads up, even though I don't have it severely it gets me down and worries me sometimes so I can empathise with you guys. I really hope a more effective and long-term treatment is developed for the condition soon, though phototherapy does sound really promising!
I'm very much with you guys that stress seems to be a factor somewhat, and like you, I find myself worrying about my psoriasis at times which probably doesn't help! But I'm very lucky in that I don't have it anywhere else on my body and so when I've told close friends that I have psoriasis in the past (say if we're talking about different medical ailments- I don't just bring it up randomly in conversation haha) their usual reaction is, "oh, you do? I never noticed". But I do fear it spreading because well, that would suck.
I have been to the doctor about it and was given some sort of oil-based steroid treatment, but I never really used it because I didn't really want to put steroids on my skin when it's such a mild problem anyway. Hence I've just left it alone for the time being, so I'm not very helpful when it comes to different treatments, sorry.
I was wondering if any of you suffered from flaking nails as a result of your psoriasis? Recently I've had one fingernail that's sort of flaking off at the end and I'm concerned that might be a new development of my psoriasis (though it could just be a lack of vitamins from eating so much crap during exam season, haha).
Anyway, I also wanted to say that I really respect you guys for plugging away and keeping your heads up, even though I don't have it severely it gets me down and worries me sometimes so I can empathise with you guys. I really hope a more effective and long-term treatment is developed for the condition soon, though phototherapy does sound really promising!
Thanks for the contribution. I haven't really noticed any fluctuations in my psoriasis during my period, but I did notice that using pads made my genital psoriasis more dry and itchy. I overcame that by switching to tampons, which has helped somewhat.
My main concern, like you, is the psoriasis spreading. But, hopefully a healthy diet and keeping stress at bay should help.
Original post by diggy
I googled this condition and it put my eczema into perspective mines not even bad although sometimes I year up my face leaving big scabs
If psoriasis itches put something cold on it and the itching will stop
I realised this because when I itch my skin gets really hot so I just put something cold on it ie. Plastic bottle ,an ice pack
Posted from TSR Mobile
If psoriasis itches put something cold on it and the itching will stop
I realised this because when I itch my skin gets really hot so I just put something cold on it ie. Plastic bottle ,an ice pack
Posted from TSR Mobile
My scalp psoriasis sometimes itches, but the itch isn't as strong as eczema. I used to have eczema when I was younger and the itch was intolerable. I'd wake up with bloody fingernails, not realising that i'd scratched my skin raw.
Original post by Anonymous
Perhaps the person that had the bad experience had undergone the treatment during it's introduction. I'm guessing things have come along way now.
I'm definitely going to push for the phototherapy when I see the dermatologist. Thank you!
I'm definitely going to push for the phototherapy when I see the dermatologist. Thank you!
Yeah they check your skin type and everything so you'll be grand! Good luck
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