This year, I peed blood for about a week. I went to the doctor, I was given antibiotics (despite no infection signs) and that didn't clear it. I went back, they were concerned, but nothing came of it.
Before this, I had had three bouts of bleeding from my bowel; large blood clots, abdominal pain and feeling very unwell (severe fatigue, sensitivity to light, very cold) whenever it happened. My bowel was swollen with patches of inflammation in the first investigation (when I was still unwell), but they've ignored that because my second examination that took place when I was well, came out clear unsurprisingly (and the pictures showed me just how swollen my bowels were compared to what a normal bowel should look like). So they've swept it under the rug with a "well you're not ill now so what's the problem?" attitude.
The first time I was ill, I had to go to hospital on my college trip! Months after this, a doctor who was keeping an eye out on me, who I gave another sample with blood in, sent me to hospital immediately and told me to exaggerate and make out I was in agony, as that would be the only way they would give me an investigation, which just shows how terrible the NHS is. I didn't overreact or lie, though my stomach was so bloated, I could barely move. After about 5 hours in A&E, I was sent home with no answers or investigation.
I've gone to the doctors a few times, asking for answers, but nothing. Not even a urology referral. I've had gastroenterology (extremely rude nurses to add), ironically, talking out their ass with ridiculous "ideas" of what could've happened like a cut bowel. But a cut bowel doesn't cause patches of inflammation, swollen bowels, with no sign of a cut, making you very unwell and happens three times. They just said I had bad bowels. Bleeding from the bladder months later with no other symptoms just added to my concern.
I am constantly going back to the doctors, them looking at me in wonder and then sending me for blood tests or urine samples which always come back normal as I am not unwell at the time. I feel like I have been forgotten and left in the dark.
I have health conditions that are a result of a genetic mutation. In that gene, the immune system is affected (I have always had a terrible immune system*) and I have had Erythyma Nodosum in the past (this should've been investigated more thoroughly to find a cause, but I only received a blood test), which is basically where my immune system attacked my leg.
Many people with my conditions have MCAS which is a similar thing of the immune system messing up. I am wondering if maybe my immune system is attacking the cells in my bladder and bowels, causing inflammation and bleeding. I brought this up to a doctor but got nothing out of it, just blood test and sample again; I was hoping to see an immunologist.
* At the end of last year and into this year, I had tonsillitis 4 times, a chest infection and a bad head cold, one after the other. They were unrelenting, every week I was getting ill and I had to have antibiotics to stop this onslaught of illnesses!