The Student Room Group

Disability CHAT/HELP Thread

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Original post by 04MR17
Well maybe your Dad just needs reminding. I suppose it all depends on how you view your disability. Because I tend to have a take-no-prisoners kind of attitude, I'm not afraid to shout "speak up I'm deaf" to anyone, as long as I'm with people who know me. If I was on my own in a crowd it would be different because I'd just look like a rude bas****.


It doesn't matter how loud you speak. It's just that some sounds sound similar.
Original post by Tiger Rag
It doesn't matter how loud you speak. It's just that some sounds sound similar.
Yeah:yep: I've just noticed that when you mention it people also speak more clearly.
Oooh lots of talking about hearing going on, so I figured I should probs stop lurking and actually say hi :colondollar: :lurk: :ninja:

I'm TLG/Shan. My primary disability is the mental health condition schizoaffective disorder (if you haven't heard of it, it's like a cross between schizophrenia and bipolar). Specialists also think that I probably have Auditory Processing Disorder but they couldn't prove it because I passed all the hearing tests. Despite my huge difficulties in hearing, I have highly trained ears due to being a music student :musicus: So I can't officially get any support from uni/DSA for it because they weren't actually able to diagnose it because I'm just way too confusing :moon:

:wavey:
Original post by The_Lonely_Goatherd
Specialists also think that I probably have Auditory Processing Disorder but they couldn't prove it because I passed all the hearing tests. Despite my huge difficulties in hearing, I have highly trained ears due to being a music student :musicus: So I can't officially get any support from uni/DSA for it because they weren't actually able to diagnose it because I'm just way too confusing :moon:

:wavey:


Audiology told me I can't have hearing problems because I have sight problems. Erm, what? Both are possible together.

APD won't be picked up on the normal hearing tests. But I had one done involving voices and background noise - you repeat what the voices say. But as the tests go on, the background noise increases. And that's my problem.
Original post by Tiger Rag
Audiology told me I can't have hearing problems because I have sight problems. Erm, what? Both are possible together.

APD won't be picked up on the normal hearing tests. But I had one done involving voices and background noise - you repeat what the voices say. But as the tests go on, the background noise increases. And that's my problem.


That's a seriously weird commment for audiology to have made about you :lolwut: :facepalm: :erm:

I don't remember what tests I had done exactly, but it was at the National Hospital for Neurology in Central London, so I imagine I had beyond the normal hearing tests done. They also sent me to a neuropsychologist within the same hospital but as I was hearing voices during the extensive tests she did, she said she had no way of saying what was going on :frown:

I'm absolutely hopeless when there's background noise, and/or when people speak quietly, quickly, or with a foreign accent. My BFF has all three of those qualities, so I gave up talking to her on the phone several years ago :colondollar:
Original post by The_Lonely_Goatherd
That's a seriously weird commment for audiology to have made about you :lolwut: :facepalm: :erm:


Indeed. When I've seen them before for other hearing issues, they've picked them up straight away.

I'm absolutely hopeless when there's background noise, and/or when people speak quietly, quickly, or with a foreign accent. My BFF has all three of those qualities, so I gave up talking to her on the phone several years ago :colondollar:


Accents bother me too. I was in Dublin recently and struggled a lot. I struggle with Essex accents too - a lot of dad's family are from there. They don't really understand me when I talk either. (it has been explained why and I can't remember the reason why)
Original post by Tiger Rag

Accents bother me too. I was in Dublin recently and struggled a lot. I struggle with Essex accents too - a lot of dad's family are from there. They don't really understand me when I talk either. (it has been explained why and I can't remember the reason why)


:five: I think I'm not too bad with Essex accents but I do struggle with most types of accents. Even people who come from the same country as my parents :getmecoat:
Original post by 04MR17
:lol: I'm also colour-blind.:rofl:

I know what you mean though. I think from birth is often different in this sense to those people who's hearing has deteriorated. I have never known what full hearing sounds like, so I do not know how bad my hearing actually is.


Ouch, that means you have no chance of being a pilot.

You never had a hearing test? I'm sick of taking them and having to press a button whenever I hear a beep. Then they add some background noise on random volumes of annoyance, whilst a beep will come here and there.
Original post by 04MR17
:lol: I'm also colour-blind.:rofl:

I know what you mean though. I think from birth is often different in this sense to those people who's hearing has deteriorated. I have never known what full hearing sounds like, so I do not know how bad my hearing actually is.


I'm colourblind too.

I've had hearing issues since I was 23-ish. (so around 2012) It started getting worse again in 2015. Audiology couldn't find anything wrong and it took ENT 2 minutes. :rolleyes: They suspect it's the medication I'm on.
Original post by Heptagon
Ouch, that means you have no chance of being a pilot.

You never had a hearing test? I'm sick of taking them and having to press a button whenever I hear a beep. Then they add some background noise on random volumes of annoyance, whilst a beep will come here and there.
Yep. I've had about 20. I preferred it when they started to introduce background noise though. I remember before they did that, it was just beeps. And because you're trying to concentrate, the previous beep is echoing around in your head. Because your head is empty.
Original post by Tiger Rag
I'm colourblind too.

I've had hearing issues since I was 23-ish. (so around 2012) It started getting worse again in 2015. Audiology couldn't find anything wrong and it took ENT 2 minutes. :rolleyes: They suspect it's the medication I'm on.
1/8 men.:cool:


wow ok. so what is losing your hearing like?
Original post by 04MR17
1/8 men.:cool:


wow ok. so what is losing your hearing like?


It's weird. It's been sensitive since 2012. In 2015, it started to go funny again - I used to attend a music group and I was struggling more and more to separate the music from peoples' voices and it would just go into one loud horrible noise. I had to leave in the end because I was just getting so frustrated.

I'm not so deaf that I can't hear and I don't need hearing aids. It's a problem when there's background noise.
Original post by Tiger Rag
It's weird. It's been sensitive since 2012. In 2015, it started to go funny again - I used to attend a music group and I was struggling more and more to separate the music from peoples' voices and it would just go into one loud horrible noise. I had to leave in the end because I was just getting so frustrated.

I'm not so deaf that I can't hear and I don't need hearing aids. It's a problem when there's background noise.
Yep.:yep: It's all about the background noise. Are you worse on any particular side?
Original post by 04MR17
Yep.:yep: It's all about the background noise. Are you worse on any particular side?


I'm slightly deaf in my right and too sensitive in my left; so not really.
Looks like this thread is slowly working after all...
Sickening.

https://uk.news.yahoo.com/dwp-spends-39m-defending-decisions-213129841.html
Original post by Heptagon


I can't say I'm surprised. They wanted to save 20%. It's probably cost them that. But hey, they've probably got what they want - they want more people off benefits.

It was never going to save money at all. I mean, I've got life long medical problems. What's the point of assessing me again in 10 years? My vision isn't likely to suddenly get better and I'm never likely to be able to hear properly again. (the nerves and hair are damaged)
Original post by Tiger Rag
I can't say I'm surprised. They wanted to save 20%. It's probably cost them that. But hey, they've probably got what they want - they want more people off benefits.

It was never going to save money at all. I mean, I've got life long medical problems. What's the point of assessing me again in 10 years? My vision isn't likely to suddenly get better and I'm never likely to be able to hear properly again. (the nerves and hair are damaged)


I was a victim of the assessment and of course I scored zero points like many other people who are genuinely ill or disabled.

I have an appointment at the hospital tomorrow and will ask my consultant or a registrar about my situation.
Original post by Heptagon
I was a victim of the assessment and of course I scored zero points like many other people who are genuinely ill or disabled.

I have an appointment at the hospital tomorrow and will ask my consultant or a registrar about my situation.


I scored 4 points on care and 0 on mobility. I had it looked at again and got 11 on care and 12 on mobility. Utterly ridiculous. I'm now in the rubbish situation that my needs have changed. They tell you to inform them if your needs have changed; but there's a chance I could lose the lot.

She even went as far to say my GP and ENT doctor are both lying. Neither have any reason to lie.

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