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Disability CHAT/HELP Thread

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Original post by 04MR17
Also, have you done me that favour yet?:curious:


I HAVE! Well I've tried at least. I'll tag you somewhere or PM you in a moment (need to put food on first). :biggrin:
Original post by Kindred
Oh you're going to make me do check in are you?


Hi, I'm Kindred. I have a few conditions including ADD, dyslexia, hypothyroidism, IBS and some history with depression and OCD. And I'm still doing the rounds to work out if that's everything or if there's more to discover.
I was diagnosed with most of my conditions around the end of college because I just stopped being able to cope with anything and eventually worked out it was a good idea to see a doctor.

I'm happy to talk about any of my stuff so if anybody wants to know anything just ask. :smile:
:h:

What is your opinion towards your conditions?:holmes:
Original post by Kindred
I HAVE! Well I've tried at least. I'll tag you somewhere or PM you in a moment (need to put food on first). :biggrin:
Ooh okay thank you!!!:dance:
Original post by 04MR17
:h:

What is your opinion towards your conditions?:holmes:


They suck. For the physical ones anyway.
With my ADD and dyslexia it's honestly not been too bad. I seem to have found coping mechanisms at an early age so still did well in school (past junior anyway) and I think it does play a big part in who I am and how I think so if it was a matter of trading me for being able to read a bit better and not confusing brown and grey I wouldn't take it.
Original post by Kindred
They suck. For the physical ones anyway.
With my ADD and dyslexia it's honestly not been too bad. I seem to have found coping mechanisms at an early age so still did well in school (past junior anyway) and I think it does play a big part in who I am and how I think so if it was a matter of trading me for being able to read a bit better and not confusing brown and grey I wouldn't take it.
Thanks for that, I guess you really did promote.:lol:

Next question in this random and spontaneous questioning, How, if at all, have your conditions affected your plans for the future?:holmes:
Original post by 04MR17
Thanks for that, I guess you really did promote.:lol:

Next question in this random and spontaneous questioning, How, if at all, have your conditions affected your plans for the future?:holmes:


Quite a bit. I had to drop out of uni (twice) due to health issues and I'm currently unable to work or do much else due to them.
I'm having to work out what's up with my health issues before I can do anything so my life is kinda paused right now.

I'll have to start questioning you too soon :tongue:
Picked up my deaf alerter pager today.:h:
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Original post by Kindred
Quite a bit. I had to drop out of uni (twice) due to health issues and I'm currently unable to work or do much else due to them.
I'm having to work out what's up with my health issues before I can do anything so my life is kinda paused right now.

I'll have to start questioning you too soon :tongue:
But there is a permanence associated with at least some of your conditions right?
Original post by 04MR17
But there is a permanence associated with at least some of your conditions right?


Most of them should be things that can be managed, but for some reason I'm still feeling rather heavily affected while on medication and everything (thus still seeing drs). In the long run I should be able to live a full life with some medication and not pressuring myself too much, but I guess I'm just not there yet.

So... I can't hunt down your intro which means my first question is: What's up with you?
And (double whammy) since you just posted you sparkly new deaf alert... what's that? :smile:
Original post by Kindred
Most of them should be things that can be managed, but for some reason I'm still feeling rather heavily affected while on medication and everything (thus still seeing drs). In the long run I should be able to live a full life with some medication and not pressuring myself too much, but I guess I'm just not there yet.

So... I can't hunt down your intro which means my first question is: What's up with you?
And (double whammy) since you just posted you sparkly new deaf alert... what's that? :smile:
What I was really asking was whether you can be cured.:tongue: Like any of us, our conditions need to be managed and adapted around. Some take a lot more effort than others (I am quite lucky in that regard).

Long story short, I have one ear. And as such am severely deaf on one side, but have perfect hearing on the other. It's since birth, and it's called right-sided microtia (google images give you a little indication, but mine isn't as extreme as some of the gruesome pictures).

Deaf alerter goes off in an emergency in case I don't hear an alarm (e.g. if I'm in deep sleep on my bad side)
Original post by 04MR17
What I was really asking was whether you can be cured.:tongue: Like any of us, our conditions need to be managed and adapted around. Some take a lot more effort than others (I am quite lucky in that regard).

Long story short, I have one ear. And as such am severely deaf on one side, but have perfect hearing on the other. It's since birth, and it's called right-sided microtia (google images give you a little indication, but mine isn't as extreme as some of the gruesome pictures).

Deaf alerter goes off in an emergency in case I don't hear an alarm (e.g. if I'm in deep sleep on my bad side)


No actual cures for me, but the treatments are easy enough (just tablets) and that seems about as good as it gets for most conditions. :smile:

That answers just about everything. Deaf alerter sounds like an awesome idea. Congrats on your new kit. :biggrin:

So do you have any special help in place for uni with lectures and everything?
Original post by Kindred
No actual cures for me, but the treatments are easy enough (just tablets) and that seems about as good as it gets for most conditions. :smile:

That answers just about everything. Deaf alerter sounds like an awesome idea. Congrats on your new kit. :biggrin:

So do you have any special help in place for uni with lectures and everything?
Yep.:yep:

Fortunately, disability support in most universities is a bit more well established than other similar support like mental health, which is why you'll find this sub-forum a lot quieter than mental health. I've had discussions though about making links a bit stronger though.:colondollar:
Original post by 04MR17
What I was really asking was whether you can be cured.:tongue: Like any of us, our conditions need to be managed and adapted around. Some take a lot more effort than others (I am quite lucky in that regard).

Long story short, I have one ear. And as such am severely deaf on one side, but have perfect hearing on the other. It's since birth, and it's called right-sided microtia (google images give you a little indication, but mine isn't as extreme as some of the gruesome pictures).

Deaf alerter goes off in an emergency in case I don't hear an alarm (e.g. if I'm in deep sleep on my bad side)


Interesting. I tend to use things that vibrate (such as alarms) because too much noise can give me migraine.
Original post by 04MR17
Yep.:yep:

Fortunately, disability support in most universities is a bit more well established than other similar support like mental health, which is why you'll find this sub-forum a lot quieter than mental health. I've had discussions though about making links a bit stronger though.:colondollar:


To be honest I found the MH support at university way better than on the NHS lol.
Original post by Pathway
To be honest I found the MH support at university way better than on the NHS lol.
Yeah but NHS is a different kettle of fish.:s-smilie: Disability support at uni is more well-established because the support service has simply been there longer.

Since Mental Health is much more of a new issue, the same level of support is not always there as disability support.:sadnod:

This is of course a generalisation and a lot of universities have fantastic support services for mental health, but people in the MH forum will tell you how bad it can be.:s-smilie:
Original post by 04MR17
Yeah but NHS is a different kettle of fish.:s-smilie: Disability support at uni is more well-established because the support service has simply been there longer.

Since Mental Health is much more of a new issue, the same level of support is not always there as disability support.:sadnod:

This is of course a generalisation and a lot of universities have fantastic support services for mental health, but people in the MH forum will tell you how bad it can be.:s-smilie:


Yeah, I know. I mean, I had disability support and MH support - but I guess it was sort of different at my university/for me because I was known to student support and already had a disability support worker who saw my mental health deteriorate even more. :dontknow: My university went out of their way to help me when I was struggling a lot with my mental health in second year and third year - it actually prevented me from dropping out.

Not sure how things are now though, I had a specialist MH mentor in my final year to help me but that might not be a thing for DSA anymore because they keep getting rid of stuff.

I guess I got lucky with my university!
Original post by Pathway

Not sure how things are now though, I had a specialist MH mentor in my final year to help me but that might not be a thing for DSA anymore because they keep getting rid of stuff.


It's still a thing! :biggrin: Unless postgrads/I are/am an exception to the rule :ninja:

:penguinhug:
Original post by The_Lonely_Goatherd
It's still a thing! :biggrin: Unless postgrads/I are/am an exception to the rule :ninja:

:penguinhug:


Good to hear! :hugs:

Just keep seeing that they're cutting funding for DSA, it's awful. :frown: Always get worried about going back to university for postgrad in the future (maybe, still not sure if that's even possible with everything that's going on with me) and having no support, lol.
Original post by Pathway
Good to hear! :hugs:

Just keep seeing that they're cutting funding for DSA, it's awful. :frown: Always get worried about going back to university for postgrad in the future (maybe, still not sure if that's even possible with everything that's going on with me) and having no support, lol.


Yeah I was very lucky in that the year I got DSA was (I believe) the last academic year where the laptop was fully provided by them (no £200 needed from me). The cuts to it do sound worrying, though I don't know huge amounts about it.

One thing that has changed is who is allowed to be a speciaist mental health mentor though. They either have to have suitable prior qualifications, or to do further training in order to be/continue to be a specialist mental health mentor :ninja:
Original post by The_Lonely_Goatherd
Yeah I was very lucky in that the year I got DSA was (I believe) the last academic year where the laptop was fully provided by them (no £200 needed from me). The cuts to it do sound worrying, though I don't know huge amounts about it.

One thing that has changed is who is allowed to be a speciaist mental health mentor though. They either have to have suitable prior qualifications, or to do further training in order to be/continue to be a specialist mental health mentor :ninja:


Yeah I remember that! I know it was also hard to get the difference back in accommodation too. That's what my needs assessor told me anyway, but he still recommended it because I need adapted accommodation. My university ended up helping me with the accommodation costs instead, aha.

Ohh, really? I didn't know that changed for the mentors. I know mine was a private psychotherapist though. Were they allowed to not have MH-related qualifications before? :s-smilie:

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