living with epilepsy - a flashy lifestyle for a photosensitive girl

greenapples2

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(edited 2 years ago)

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Reply 1

The_Lonely_Goatherd

Posting to subscribe :smile:

I'm photosensitive

My partner has epilepsy and has both grand mal fits and absence seizures - though he's adamant he doesn't get those. Either he does, or he just zones out when I'm speaking to him in the morning, regularly! It's a possibility I suppose..

His fits are almost completely controlled by Epilim, and because he only ever has them upon waking (approx 2-3 a year) it doesn't affect his driving, as he's never ever had one more than 10 mins after waking. So that's good at least.

The reason he still has some fits is because he completely ignores the "don't drink much alcohol" rule. Whenever he has one it's always because he's been drinking a lot the night before, and it messes him up. I strongly believe he wouldn't have had one for years if he didn't drink.

I hope you manage to find the right meds for you. I'm sure you will, as there are plenty you can choose from that your GP can try you with. Not all will have the same side effects so I don't think it should affect your future career choice :smile:

Reply 4

gjd800

Original post by mpaprika

do you have photosensitive epilepsy? Is it a big problem in everyday life (work, school etc). For me, in an exam a girl in front of me was nervously shaking her feet and the shaking and change of light is all I could see in my peripheral vision, and I struggled to concentrate so much

Yes, but it is rare that it kicks off these days. I need to be careful at gigs or in bars with strobes (such a cliché!), or if I take some anti-inflammatories. But it's largely dormant for me these days, thankfully! I don't fit, I have what they call absence seizures, so I go blank and zone out, trip/fall over etc. Runs in the family.

Reply 5

The_Lonely_Goatherd

Hope you've had a safe journey and that you enjoy your holiday :h:

Reply 6

The_Lonely_Goatherd

Yay for work experience! And yay for Greece! I hope you pranced around near the sea singing ABBA songs on my behalf?! :hmmm:

4am is not a time :no:

Also sorry to hear about the hand shaking for 20 mins, sounds worrying :frown:

Sorry to hear you're feeling stressed about results day but YAY for birthday. I've a memory like a sieve, so please allow me to wish you a happy bday in advance :party:

I love that your nan has a picture of Pope Francis in her bedroom. Pretty sure if my paternal grandmother were alive, she'd have one too :jebus:

Reply 9

Anonymous #1

i had about 7 fits between 15 and 19. i take lamotrigine and now im clean for almost 6 years. the side effects on the leaflet is just bs - i get abit of acne but thats it. what helped for me is clearing up the bad habits - no wonder why it happened i barely slept, was stressed out by nothing and used intensive escapism i.e. hammering brain with a cocktail of porn, video games, social media, yotube

why? r u ok?

Just a quick update because I’m leaving tomorrow and need to pack.
Neurologist went well, I have to take pregnancy tests every month (sob). However I was prescribed a supplement so I can get my metabolism back.

Neurologist ordered a liver function test and blood work. I got the blood work back in 3 hours and I have an increased number of monocytes why could this be? I had 14.2% whilst the average is from 10-12%

Reply 12

The_Lonely_Goatherd

Did you have a good bday @mpaprika ? Or is that tomorrow? I can't count... :getmecoat:

Reply 13

The_Lonely_Goatherd

Original post by mpaprika

Tomorrow! But thank you for remembering, it means a lot to me :smile:

I actually had a lovely pre birthday celebration with my family abroad since I’m leaving tomorrow :biggrin:

Ah that's great you had a lovely time, so pleased to hear that. A very happy bday for tomorrow, and all the best for the year ahead :penguinhug:

Reply 14

The_Lonely_Goatherd

HAPPY BIRTHDAAAAAAAAAAAAAAAAAAAAAY! :ahee:

Happy birthday 😁

You did 15 GCSEs?! Holy **** :eek3:

I thought my doing 10 was exhausting enough, lol. Well done on those stellar results! :king1:

Sorry to hear you have to stay on the sodium valproate though :frown:

Big hugs!

What is bumping?

Oh ok thanks

All the best. With a title for a thread like that, I think it is sarcasm too far in my opinion. My condolences to anyone who suffers from anything.

So, are you careful with how you approach playing video games?