I have Crohn’s Disease - Ask Me Anything.

How often do you use the restroom ?

Reply 2

Original post by CaptainDuckie

How often do you use the restroom ?

Firstly, for everyone with CD it’s different. For me personally it can be totally different on a day to day basis. Without being graphic I could have to go once a day, or I could have to go 5 times a day. It’s a constant uncertainty.

Reply 3

What time do you sleep at night?

Reply 4

Original post by CaptainDuckie

What time do you sleep at night?

Changes every night haha. That isn’t a Crohn’s thing though - just getting lost on my phone.

Reply 5

username5347244

do you have a specific diet?

Reply 6

Foxehh

How does it affect your daily life?

Reply 7

Do you feel different from everyone else?

Reply 8

Original post by sunny.side.up

do you have a specific diet?

No I don’t! There are some things that may aggravate it in a flare up like spicy foods but in general for me diet doesn’t make a massive impact. In fact once my consultant told me to eat whatever I want.

For some people it could be a totally different scenario. However Crohn’s is an autoimmune chronic condition that affects the gastrointestinal tract - where some people actually think it’s purely diet related!

Reply 9

Original post by LovelyMrFox

How does it affect your daily life?

It affects it a lot actually. I mean I have other medical problems which I won’t divulge into but Crohn’s is particularly bad in public when I have a flare. I could be fine one minute and have really bad cramps the next and need to run to a toilet. There are mechanisms available that might help that such as a can’t wait card or a key which unlocks disabled toilets but it’s also not a complete godsend so to speak.

Another thing is fatigue. I can have quite a lot of energy one day and feel wiped out the next. I don’t like going far.

So it affects my daily like quite a lot.

Reply 10

Original post by CaptainDuckie

Do you feel different from everyone else?

Yes.

Reply 11

Original post by Bailey14

Yes.

Why?

Reply 12

Original post by CaptainDuckie

Why?

Because everything in my life has changed. I have constant cramps. I have 8 weekly infusions of a drug. I have occasional colonoscopies and MRI scans. I am constantly tired. I have to be careful when I go out. To name a few.

Reply 13

If someone had Crohn’s disease, what advice would you give them ?

Reply 14

Original post by CaptainDuckie

If someone had Crohn’s disease, what advice would you give them ?

- Don’t consult Dr Google. Direct questions to Crohn’s & Colitis UK, a charity, your consultant, and people who’ve had experiences of Crohn’s. I’m sure I’ve been told by google I have Bowel Cancer before - and of course it can be very very helpful with research on your condition but sometimes it just directs you to the worst case scenario.
- It’ll always seem strange at first but know that there are people in the same boat as you.
- Join a support group!

Reply 15

How do you deal with friendships / relationships while having Crohn’s disease?

Reply 16

Original post by CaptainDuckie

How do you deal with friendships / relationships while having Crohn’s disease?

Friendships - talk. talk. talk. explain what you’re going through and how you may have to adapt / change things.

Reply 17

Hmmm

Do you ever feel really sad about this?

Reply 18