(Original post by Helenia)
Coeliacs yes - sjogrens is probably something most GPs will only come across a handful of times in their lifetime. Unfortunately the nature of coeliac disease means it often is not the first diagnosis that springs to mind (and shouldn't be) when a patient presents. However, in your case it seems you had a really awful time - sounds like the GP did the only-too-easy thing of assuming the initial hypothesis was right after all those years rather than going back to question it.
In general though, I'm inclined to think that people haven't read the few posts in here from actual medics/doctors and really don't understand just how complex clinical medicine is.
My problem is that I was investigated at
. A basic blood test when I was 15 and that was it. I also don't think anxiety should be the first diagnosis for abdominal pain. I think one of the many GPs I saw at my practice could have referred me to a gastro for endoscopy/colonoscopy a lot earlier. You and I both know the risks of untreated coeliacs, and also the risk of sjogrens. And I already have generalised lymphadenopathy both superficial and deep which I was CT scanned for about 3 weeks ago
With the Sjogren's, I can understand missing that. However, having a raised ESR, AST, IgG, WBC - you might want to look into it rather than ignore it. I'm not saying Sjogrens would jump out at you but you might think hmm, I wonder where that inflammation is coming from. Indeed, my GP phoned me a few weeks after the rheumatologist diagnosis, telling me I had a normal blood result. I had to tell him no, I have Sjogrens, unless it's magically disappeared, they're not normal.
When my gastroenterologist saw the blood results, he went on and tested me and I had loads of rheumatoid factor swimming about and was anti-ro, anti-la +ve. It's not that big of a deal to know you have Sjogren's but if I'd gone on to have a kid, I might have got a shock, being anti-ro +ve and all
I think the point people are trying to make is that having a medical degree doesn't make you a good doctor. I don't think it should mean that their mistakes should be swept under the carpet because medicine is complex. I can understand their frustration because my life would have been a lot simpler. And I don't think coeliac's is so rare that it wouldn't be considered - especially with a family history
I don't have a conscious memory prior to my diagnosis of a pain-free day, and that could easily have been avoided if my GP had just pulled the finger out and endoscopied me several years go.