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M.e..

tomorrows_apple

Is anyone else with M.E. headed for uni this september..? :smile:

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Reply 1

Hoofbeat

my friend has ME and is off to Uni in Sept. She suffered very badly with it a couple of years ago but seems generally much better now.

Reply 2

Taker4376

Yeah, I've had M.E for nearly 6 years now. Was really bad a couple of years ago but I'm mostly ok now. I get really anxious about things though. For example going to uni. Really worried I won't cope. What about u?

Reply 3

Multiplexed

What's M.E.? Inform us.

Reply 4

Fresh Prince

Multiplexed

What's M.E.? Inform us.

Major Fatigue? I think that's it.

Reply 5

Taker4376

I'ld spell it but I don't know how

Its also known as Chronic Fatigue Syndrome.

Basically its overwhelming Exhaustion that doesn't go away when you've rested. There are different degrees of it. Some people are bed ridden with it and other can live a relatively normal life. But there are many more aspects to it

Reply 6

fonzievision

Taker4376

I'ld spell it but I don't know how

myalgic encephalopathy i think

My brother has it.

I've suffered from it for nearly 5 years. Had to take a couple of years out of college but seem to be improving and I'm planning on going to uni next September.

Reply 9

Irrational Pi

I've often wondered if I've got a form of this, I always feel pretty knackered, even after sleep...
Is it a genetic condition etc, or can it be brought on by stress? (had a very stressful 12 months so far, and its just got worse, no thanks to yesterday :frown:

)

Reply 10

tomorrows_apple

Taker4376

Same..
I've had it for nearly 7 years, though it's varied quite a lot in intensity. I could only manage 3 days a week at college last year, but getting into this particular art college has been my dream for a while and i currently seem to be having more good days than bad. The uni is being really helpful though; i phoned them up a couple of weeks ago and explained my situation, and theyre going to provide a quiet room where i can go rest if i need to, and let me jump the enrolment queue, etc. If you havent already it's definitely worth contacting yours about it. But yeah, still im really worried that i won't be able to keep up with everyone else. Without the M.E it wouldn't be an issue, and im really looking forward to everything, but i know im pretty bad at pacing when there are lots of people around to meet. I keep thinking that fresher's week will probably knock me out for the start of term...
But i guess the worst that can happen is that i wont be able to manage it and will have to drop out and reapply for next year. Several people have been questioning why im going ahead with such big plans (moving to the opposite side of the country, very intense course, etc) when im not yet 100%, but the truth is i dont know when i next will be. It could be a year from now, or five, and i cant bare the thought of just kicking around until i do. You don't know if you don't try!
*ahem* sorry for the long post..

Oh, and for those who asked, here is a good site for everything you might want to know about M.E:

http://www.sleepydust.net/POST-VIRAL-FATIGUE-SYNDROME-cfsme-imagine-having-cfs.html

Reply 11

tomorrows_apple

bwgames

)

It's not a genetic condition no, but i think you can inherit a greater likelihood of contracting it, for example a weaker than average immune system. The form i have was diagnosed as Post Viral Fatigue Syndrome; i had a bad bout of flu then never really fully recovered from it, but im not sure about what else can bring it on. One thing i know is that stress is not good..When youre stressed then the body focusses all of its energy making you work at your utmost ability by draining resources to make the heart beat faster, your blood pressure rise, converting all stores to glucose, etc, as it does with the fight/flight situation. When all this is going on it puts all of its long term recovery/recouperation plans to one side, so your body isnt being repaired sufficiently.

Reply 12

Sophdoph

A friend of mine has it and is at uni, she manages very well and when she has bad days she just stays in bed and tells her tutor and her flatmates look after her. Being open about your situation is important so people can help you and you can still have a good uni experience.

Reply 13

Em444

hey,

i hav it and im hoping to start uni in 2006 (im goin in2 yr 13). im on my way 2 recovery bt still not 100%. i can understand wot ur all saying about worrying about not keeping up with everyone. all i can relly suggest is to be careful and play it by ear?.. im not too sure what to suggest. ive got this all to look forward to next year!!

if any1 wants 2 get in touch i think my email addys in my profile!

em xxxx ps: are you members of ayme? www.ayme.org.uk they are very good and have a university coordinator person who can help you out with this kinda stuff

Reply 14

Taker4376

I know its not meant to be genetic, but I know that my brother and I both have it. But we both had weak immune systems as kids and got everything. My brother had the post-viral version and mine was after a LOT of stress and stuff.

Reply 15

Taker4376

Em444

ps: are you members of ayme? www.ayme.org.uk they are very good and have a university coordinator person who can help you out with this kinda stuff

I was a member but I lost my password and stuff ages ago, lol

Keep meaning to re-register but I'm always losing my envelopes with the membership number on

Reply 16

Vitriol01

I had it following a bout of meningitis. Was really ill for a couple of years.

Finished my A-Levels and Uni fine though and will be starting my job as a trainee solicitor next year.

Keep your chin(s) up. It can and often does get better. :smile:

Reply 17

tomorrows_apple

Em444

ps: are you members of ayme? www.ayme.org.uk

Unfortunately by the time i got round to applying i was over 18. It's a little less tempting when membership sets you back £25 or so..

Reply 18

tomorrows_apple

Vitriol01

Keep your chin(s) up. It can and often does get better. :smile:

I was told by a specialist that the likelihood of recovery depends on whether you got it as a child or as a young adult.. The majority of childhood cases recover by the age of 21, so chances are ive only got a couple of years of it left :rolleyes: