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Cholinergic Urticaria watch

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    http://dermnetnz.org/reactions/choli...urticaria.html

    Long shot, If you do/did suffer from this what was your cure?

    (Ive been on 7 drugs including steriods and nothing works)

    Cheers

    If your interested in my case click here
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    Sorry the only heat bumps Ive had were few and far between
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    Fexofenadrine combined with rainitidine helped me, though the type I had was never confirmed, I had urticaria and it was worsened by heat for sure! I took a massive dose though, double the recommended in the leaflet, told to by my dermatologist. The normal dose wasn't effective. I have also used cetirizine but it wasn't strong enough.

    Have you seen a dermatologist? I would highly recommend it, they know so much more.
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    (Original post by krisblade)
    Fexofenadrine combined with rainitidine helped me, though the type I had was never confirmed, I had urticaria and it was worsened by heat for sure! I took a massive dose though, double the recommended in the leaflet, told to by my dermatologist. The normal dose wasn't effective. I have also used cetirizine but it wasn't strong enough.

    Have you seen a dermatologist? I would highly recommend it, they know so much more.
    Yeah Ive seen a dermatologist about 5 times. Im going to see an urticaria specialist soon in Norwich. I have been on Fexofenodine double dose randitidine and singulair, did nothing! Also prednisolone again nothing. It seems to be getting worst too starting to get it when eating food now

    Cheers for the advice though! Nice to know someone else is out there with the same thing! Has yours gone now?
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    (Original post by willdev)
    Yeah Ive seen a dermatologist about 5 times. Im going to see an urticaria specialist soon in Norwich. I have been on Fexofenodine double dose randitidine and singulair, did nothing! Also prednisolone again nothing. It seems to be getting worst too starting to get it when eating food now

    Cheers for the advice though! Nice to know someone else is out there with the same thing! Has yours gone now?
    Mine turned out to be a symptom of a very rare disease =P so once I received treatment for that it stopped completely. I used to have it a couple of times a week really bad, as in my legs would become so covered it hurt to walk! (I think mine was urticarial vasculitis?) But I haven't had it in about 8months since I started high dose steroids (60mg) and immunosuppressents for my main condition.
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    (Original post by krisblade)
    Mine turned out to be a symptom of a very rare disease =P so once I received treatment for that it stopped completely. I used to have it a couple of times a week really bad, as in my legs would become so covered it hurt to walk! (I think mine was urticarial vasculitis?) But I haven't had it in about 8months since I started high dose steroids (60mg) and immunosuppressents for my main condition.
    The prednisolone was steroids (Corticosteroid) (20mg) did nothing except give me swine flu and as I was on steroids that suppressed the immune system, suffered quite badly. . I have a feeling my urticaria is my body trying to indicate that my body is not happy with something. How did you find out about this disease? Did they do normal blood test or something more extensive? All they have done to me is 6 blood tests all have come clear except for my immune system which is highly active (my IgE levels). Do you also suffer from asthma badly? In the summer I get covered all over my body within 10 minutes of walking outside. Really gets me down sometimes! :mad:
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    (Original post by willdev)
    The prednisolone was steroids (Corticosteroid) (20mg) did nothing except give me swine flu and as I was on steroids that suppressed the immune system, suffered quite badly. . I have a feeling my urticaria is my body trying to indicate that my body is not happy with something. How did you find out about this disease? Did they do normal blood test or something more extensive? All they have done to me is 6 blood tests all have come clear except for my immune system which is highly active (my IgE levels). Do you also suffer from asthma badly? In the summer I get covered all over my body within 10 minutes of walking outside. Really gets me down sometimes! :mad:
    Trust me there is a big difference between a 60mg dose and a 20mg dose, 20 isn't considered that high a dose! And I know it is, I'm a med student =P I had constant eosinophilia (high white cell count for a particular white cell) and to be honest a LOT of random other tests results they never really could explain, I also had high IgE. I saw doctors for about 3 years before I was diagnosed. IT started at the same time as my asthma, randomly on holiday when I was 15. It used to happen on the undersides of my legs when I was sitting on the summer and under my breasts, places where you sweat bascially. But then a year later it started happen from the friction of my trousers or tights rubbing on my legs when I walked, straps rubbing, anything. The rash got infected ALL THE TIME and my legs would swell massively. It just got worse and worse.

    Basically in the end I was hospitalised because I got so ill, not just with the rash. I had a skin biopsy, it leaves a little scar, but without that you cant really get a proper diagnosis its just guess work. It's hard to define based on the appearance alone. I also had an endoscope, but probs not relevant to the rash! And at this point I'd had about 100 different blood tests! So after nearly four years and a lot of missed school, I was diagnosed with Churg Strauss. I'd seen two rheumatologist, two dermatologists, a neurologist, a gastroenterologist, four respirologists and a immunologist at this point. And yes I do have asthma, I wouldn't say it was massively bad, but probably worse than the average person.
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    (Original post by krisblade)
    Trust me there is a big difference between a 60mg dose and a 20mg dose, 20 isn't considered that high a dose! And I know it is, I'm a med student =P I had constant eosinophilia (high white cell count for a particular white cell) and to be honest a LOT of random other tests results they never really could explain, I also had high IgE. I saw doctors for about 3 years before I was diagnosed. IT started at the same time as my asthma, randomly on holiday when I was 15. It used to happen on the undersides of my legs when I was sitting on the summer and under my breasts, places where you sweat bascially. But then a year later it started happen from the friction of my trousers or tights rubbing on my legs when I walked, straps rubbing, anything. The rash got infected ALL THE TIME and my legs would swell massively. It just got worse and worse.

    Basically in the end I was hospitalised because I got so ill, not just with the rash. I had a skin biopsy, it leaves a little scar, but without that you cant really get a proper diagnosis its just guess work. It's hard to define based on the appearance alone. I also had an endoscope, but probs not relevant to the rash! And at this point I'd had about 100 different blood tests! So after nearly four years and a lot of missed school, I was diagnosed with Churg Strauss. I'd seen two rheumatologist, two dermatologists, a neurologist, a gastroenterologist, four respirologists and a immunologist at this point. And yes I do have asthma, I wouldn't say it was massively bad, but probably worse than the average person.
    Sorry for the late reply, cheers for the info . I haven't had many tests apart from a few blood tests, which I think should not be the case but meh. Ive only seen my local gp and two dermatologists. Condition is becoming worse recently becoming very asthmatic and getting rashes when I eat food. I see another specialist in urticaria dermatologist on Friday (waited 3 months) so excited to see if they can cure me :woo: (although trying to keep hopes down).
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    Aww OP :hugs:

    Mods- please keep anon!

    I had a horrible case of this a year ago during summer and it was really awful Do you know whats causing yours? At first I was given ceterizine hydrochloride (sp?) which had no effect. And my GP had no idea what caused it, and it was so hot and unbearable :cry: after some blood tests I found out it was soya that was causing it, which was a right pain because soya is practically in everything.

    In terms of medication I took fexofenadrine during the day which worked great, but they'd come back during the night, so my GP recommended I take Piriton at night (cause it made me super drowsy during the day) and fexofenadrine in the day. Weird thing though, after a few months it went away completely and I've been able to have soya since.

    Sorry if my post was useless, just wanted to share my experience and say don't lose faith! I know how it feels, and its just so frustrating. I guess one of the most hardest things is trying to work out what causes it. :sad: I was also about to look into homeopathic remedies (recommended by my local pharmacist) :dontknow: all the best OP!
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    (Original post by Anonymous)
    Aww OP :hugs:

    Mods- please keep anon!

    I had a horrible case of this a year ago during summer and it was really awful Do you know whats causing yours? At first I was given ceterizine hydrochloride (sp?) which had no effect. And my GP had no idea what caused it, and it was so hot and unbearable :cry: after some blood tests I found out it was soya that was causing it, which was a right pain because soya is practically in everything.

    In terms of medication I took fexofenadrine during the day which worked great, but they'd come back during the night, so my GP recommended I take Piriton at night (cause it made me super drowsy during the day) and fexofenadrine in the day. Weird thing though, after a few months it went away completely and I've been able to have soya since.

    Sorry if my post was useless, just wanted to share my experience and say don't lose faith! I know how it feels, and its just so frustrating. I guess one of the most hardest things is trying to work out what causes it. :sad: I was also about to look into homeopathic remedies (recommended by my local pharmacist) :dontknow: all the best OP!
    No idea whats causing it, made a little list of triggers in the link above, no identifable cause though. I think it might be to do with food though, had no food tests so that could be a route to take. Do you know what kind of tests you had? And how you got them to test you? Never tried Piriton so might get down the pharmacy to try that soon . Taken a prescribed over dose of Fexofenadine doesn't work. Certizine does abit though . All the Dr's/GP's have no idea what's causing it either

    I might look at homeopathic remedies too, however as im becoming so sensitive to food I am wary about it. Thanks for the support, your post wasn't useless and I will try Piriton soon
 
 
 
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