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H Pylory negative

Some of you may remember i posted a thread about a blood test getting tested for H Pylory. Wel it came back negative today :frown:

So i am back to square 1 with feeling ill and i need to go back the doctors and see what he has to see. He was thinking about putting a camera down in my stomach via putting it through my nose/mouth and down my food tube. Now to me that sounds painful. Anyone know anything useful about it? I googled it but it was all jiberish. :frown:

Reply 1

Fleece

15

It wont be painful if you're under anaesthetic - you'll just wake up with a sore throat is all.

Reply 2

Ellie4

2

My friend had to have that done when she found out she had crohn's disease. I don't think it's very pleasant :frown:

Reply 3

LPK

OP

20

Ellie4

My friend had to have that done when she found out she had crohn's disease. I don't think it's very pleasant :frown:

My mum has suffered with that for years. I think that might be what the doctor will be looking at next. :frown:

Reply 4

Ellie4

2

LPK

My mum has suffered with that for years. I think that might be what the doctor will be looking at next. :frown:

Hope you haven't got it. Poor sausage :hugs:

Reply 5

LPK

OP

20

Ellie4

Hope you haven't got it. Poor sausage :hugs:

I hope i do not have it. From what i have seen and read, it looks really nasty. :eek:

Reply 6

Paeony

11

I had something similar done a couple of years ago, and it was ok ... they put the endocope down through my mouth and into my stomach. More than likely you will be sedated during the procedure so you won't feel (or remember) anything, and for me it wasn't painful afterwards. My throat was a little sore for a couple of days but lozenges sorted that. It really wasn't too bad at all, and if it helps you then you shouldn't be scared of having it done :smile:

Reply 7

emporium

My friend had an endoscopy a while back, he said it wasn't painful, just a little uncomfortable as it feels like your choking on something - probably because that's whats happening really! He did say that he wished he'd said yes to the sedative they offered, would take away from the discomfort significantly Id imagine.
I had a colonoscopy a month or so ago to diagnose my Crohn's disease, but hopefully you don't have that, good luck.

Reply 8

LPK

OP

20

Paeony

I had something similar done a couple of years ago, and it was ok ... they put the endocope down through my mouth and into my stomach. More than likely you will be sedated during the procedure so you won't feel (or remember) anything, and for me it wasn't painful afterwards. My throat was a little sore for a couple of days but lozenges sorted that. It really wasn't too bad at all, and if it helps you then you shouldn't be scared of having it done :smile:

Thanx for the info. :smile:

I am not really that worried because i am not sure whether i will need it done. I think i probably will though seen as it was mentioned last time i went there.

emporium

My friend had an endoscopy a while back, he said it wasn't painful, just a little uncomfortable as it feels like your choking on something - probably because that's whats happening really! He did say that he wished he'd said yes to the sedative they offered, would take away from the discomfort significantly Id imagine.
I had a colonoscopy a month or so ago to diagnose my Crohn's disease, but hopefully you don't have that, good luck.

You were diagnosed with Crohns disease? I have never known so many people to have it. :eek:

If you do not mind me asking, when do you most feel worse? Morning or night?

Reply 9

RetiredAccount89

18

MEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE

There isn't a person on this site who could possibly know more about endoscopy than me. Including any proper docs!

The test they want to do is an OGD - it involves getting a camera the diameter of your index finger and pushing over your tongue and down your throat. Thats the worse part of the procedure - the first 10 seconds. It then goes down your food pipe, and can look for tell tale signs - a hiatus hernia, redness in the food pipe both indicate that acid might be coming up your food pipe where it shouldn't.
Then into the stomach and the first bit of your small bowel.
H.pylori is a bacteria that can live in your stomach and duodenum and cause you to feel ill. some people ahve it and are fine, but in many it causes ulcers. it actually causes over 90% of duodenal ulcers.
Theres a few parts of the stomach where if you do have this bacteria then it will likely be. so they take a small piece of tissue (using a tiny claw in the camera bit) - you don't feel this by the way. (they could cut chunks off you and you wouldn't know - you can't feel pain there). they then take the camera and pieces of flesh (biopsies) out.
Whole thing takes no more than 3-4mins.

The biopsy is put ina little plastic thing with some urea and litmus solution. if the bacteria is in your stomach (and hence the sample) then it will make the solution go red. The results of this are very quick - if not within a few hours, then within a day. they team will tell your gp the result, and he will treat you accordingly. If you DO have H.pylori then they will give you a weeks worth of antibiotics to clear it - and it shouldnt ever come back.

AS for the procedure, there are two ways to do it.
One with just some throat spray that numbs your throat.
Or you can be sedated (relaxed) with a drug called medazolam. Note you WON'T be knocked out. you'll be awake throughout the procedure.

if you want sedating you'll need an injecion, and need someone with you to take you home as you'll be really dozy/sleepy afterwards.
throat spray you can go on as normal - tho you cant eat or drink for 45 mins afterwards.

Some peoiple are fine with just throat spray, some fine with sedation, others buck and fight and gag with max sedation (rarely though!). its quite random, there is no way of predicting it.

Anymore questions about it let me know.
Jamie

PS if you are having it done in Kings hospital then I'll see you soon lol.

Reply 10

RetiredAccount89

18

LPK

Thanx for the info. :smile:

I am not really that worried because i am not sure whether i will need it done. I think i probably will though seen as it was mentioned last time i went there.

You were diagnosed with Crohns disease? I have never known so many people to have it. :eek:

If you do not mind me asking, when do you most feel worse? Morning or night?

crohns can affect anywhere in the GI tract from top to tail, you'll find some people with it feel worse at night, some in morning - depending on where is affected.

Reply 11

emporium

LPK

You were diagnosed with Crohns disease? I have never known so many people to have it. :eek:

If you do not mind me asking, when do you most feel worse? Morning or night?

Yeh, I feel alright now after a few weeks of popping pills, but before I was diagnosed I would get severe abdominal pain, mainly 3-6 hours after meals, but also at random times, daytime and nightime, I also had fevers and lightheadedness assoicaited with the anaemia I developed because I wasn't eating nearly enough (because it hurt my tummy :frown:

) and lost stupid amounts of weight as a result, but there are other symptoms for Crohn's, like diarrhea (which forutnately I don't get, but I understand most with Crohn's do) and mouth ulcers, I got a bout of those too which wasn't very nice.
There's more info here: http://nacc.org.uk/content/ibd.asp
Did your doctor mention that Crohn's might be a reason for your symptoms? It's just that by far the most common places in the GI tract affected by Crohn's are the colon and terminal iliem (end of the small intestine where it meets the large intestine), and these areas can't be reached during an endoscopy but can during a colonoscopy (going in the 'back entrance').
Endoscopys are usually used to check out peptic ulcers in the stomach, coeliac disease in the upper small intestine and that sort of thing.
I hope you get sorted out soon anyhow.

Reply 12

LPK

OP

20

Hey,
thanx for that info Jamie :smile:

emporium: My mum was diagnosed with Crohns disease when she was 13, so the doctor has taken that into account. He did think it was Acid Relux at first, also thought the bug called H Pylory was also causing it. But the blood test i had, the results i got today say it is negative, so i think the next move will be a camera in the stomach. If that fails then i think i will be tested for Crohns.

Reply 13

mangomaz

14

If you don't mind me asking, what is Crohn's disease and what do you mean by feeling ill?

Reply 14

Sophdoph

1

My mum had an endoscopy with sedation..she said it felt a bit funny but she was groggy so really didn't know what was going on apart from she started to come round a bit early. She said itt just feels like your throat is full and it makes you gag a bit, it's uncomfortable but not painful. Good luck, I hope it all goes ok xxx

Reply 15

LPK

OP

20

mangomaz

If you don't mind me asking, what is Crohn's disease and what do you mean by feeling ill?

Crohns Disease is inflammation of the Intestine.

I do always seem to be really ill of a morning. I got sent home 30 times this year form school with being sick because of whatever it is i have. It has also affected my teeth because the 2 front ones have been attacked from the stomach acid causing they teeth layers to file down. So now i can't have braces because if they put them on there is a high chance my teeth could just break away from the brace because they are so weak.

Saying that though, the more i read about Crohns, the more i seem to notice things that happen to me that also happened to my mum. But i am not going to jump to far ahead.

Reply 16

RetiredAccount89

18

LPK

Hey,
thanx for that info Jamie :smile:

emporium: My mum was diagnosed with Crohns disease when she was 13, so the doctor has taken that into account. He did think it was Acid Relux at first, also thought the bug called H Pylory was also causing it. But the blood test i had, the results i got today say it is negative, so i think the next move will be a camera in the stomach. If that fails then i think i will be tested for Crohns.

OK, crohns VERY much runs inf amilies unlike other inflammatory boewl disease (like ulcerative colitis). Infact twin studies have shown a 50% concordance with monozygotic twins, 14% with dizygotic.
Basically that means if your mum has it then you have much much higher risk of devloping it than most other people.

Get it checked. its very important.

Reply 17

music_fan

hey, sounds like your going through the same as what i was. i had a test a few years ago for h pylori and then they thought i had an ulcer. i had to take tablets and was sent for an endoscopy(the camera thing you metioned), it doesn't hurt, it just feels slightly uncomfortable,it goes in your mouth. i was sedated but some people are fully anaesthetised(put to sleep fully).

while i was there they decided that if they didnt find anything, then they wouldd do a 24hr pH monitoring, ( atube down up nose and down to my stomach to test acid, for 24 hrs, not the most pleasant thing!)

this link may help clear up the basics, the doctor should explain everything to you before they start.
www.gicare.com/pated/epdgs18.htm

good luck, hope everything is sorted out :hugs:

Reply 18

LPK

OP

20

Hey,

Thanx for the advice Jamie.

Thanx for the link and info music fan. :smile:

Reply 19

emporium

Jamie

OK, crohns VERY much runs inf amilies unlike other inflammatory boewl disease (like ulcerative colitis). Infact twin studies have shown a 50% concordance with monozygotic twins, 14% with dizygotic.
Basically that means if your mum has it then you have much much higher risk of devloping it than most other people.

Get it checked. its very important.

Well, while it is true that if a parent has Crohn's their child is more likely to develop it than if they didn't, it is still fairly unlikely, "probably about 1 in 100" - so says the information I've recieved from the NACC (national association for colitis and crohn's), as apposed to 1/1200 in the general population.
I agree it's important to get it checked out, which it sounds like you're doing, step by step, but don't worry about it too much LPK :smile:

Just get down to your GPs and request some tremadol hydrochloride (painkiller) and let all your ailments float away in a morphine induced dizzy haze - just kidding, good thing my drug treatment is working, I think I was starting to get hooked on those tremadol :eek:

H Pylory negative

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