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    Perhaps some girls out there have the same problem.. I havent met one yet but I thought I might ask here...

    Cystitis is an infection that comes and goes very easily
    Ive had it on and off for about 2 years now and over that period of time, it has pretty much RUINED my life.
    I have no interest in sex anymore
    I have to be VERY careful with what I eat
    Im on a constant supply of antibiotics
    I wake up at least once a week in utter agony that can last upto 9 hours
    Ive seen over 30 GP's and doctors in those 2 years, and theyve all told me its incurable and the only way is to man-up and be careful with your diet. Thing is, its at the point now where Ive considered the 'worst' to make the pain go away...

    Does anybody have the same issue? This might be a long shot...
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    I feel so sorry for you. I have experienced the pain and discomfort from it too a few times and kind of learnt from it.
    The only simple things I know you can do to prevent it from happening is drinking plenty of water and going to the toilet when you feel the need, not holding it in. Drinking pure cranberry juice, cranberry tea and anything else cranberry.

    I'm sure you will know this by now though. The problem for you being on the antibiotics is that the bacteria has probabaly developed resistance against it and it will be much less effective, especially if you had this on and off for so long.

    I'm surprised GPs and Doctors can't help. Have you seen a specialist doctor dealing with bladder problems? :/
    I think it's one of the worst things to have and most women experience is at least once in their lifetime...
    I really hope you can find something that works for you to ease this.
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    Might be interstitial cystitis?

    I feel for you, having recurrent cystitis too plus some continence issues right now - basically I can't wee and then when I do it's only a very small amount, plus dribbling after weeing - nasty!

    Have you ever asked to see a urologist or gynaecologist, might be worth a try?
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    Gosh, that's awful. I had it for a few days and I couldn't stand it. The one tip I picked up (which you might already know) is that if you're in pain when you wee, pour a cup of warm water down yourself whilst you do it and it won't hurt so much.
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    have you had ultrasounds? i had recurring cystitis (bit weird for a guy to have) for about 6 months. GP sent me to the hospital to get scanned incase something was messed up with all my tubes inside, luckily i was fine. but it could be an issue for you. its at least worth being referred to a proper urologist (or whatever the female equivalent is)
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    (Original post by riotgrrl)
    Gosh, that's awful. I had it for a few days and I couldn't stand it. The one tip I picked up (which you might already know) is that if you're in pain when you wee, pour a cup of warm water down yourself whilst you do it and it won't hurt so much.
    this definitely helped! when i had it really really bad, i basically could only pee if i stuck my penis in a glass of warm water. not the most sanitary thing in the world, but a dirty cup was definitely worth being able to pee!
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    i get cystitis fairly frequently and the only advice i can give is to reiterate the thing about cranberry juice, have a wee before and after sex (romantic!) and drinks LOADS and LOADS of water. ive never had antibiotics for them because after a while it becomes resistant anyway.
    also try drinking a small glass of salted water (dont do this often!!!)not sure why but it works like Oasis which is the cystitis thing they sell over the counter in chemists
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    Whilst I don't suffer from it as badly as you do, I have had it quite a few times in the past. All I can recommend is to drink loads of water and cranberry juice, make sure you're really hydrated. Ask to see a specialist? You need to keep bugging the GP until he refers you high up - you don't want to end up with a kidney infection! I had one after a bad case of cystitis two years ago and it was horrible.
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    I feel your pain.
    I'm 18 now and have been getting Cystitis since I was about 13/14. I started getting it about once every few months, then once a month, then once a fortnight until a period when I was 16/17 where I just had it every week for about 4 days. It is the most horrendous pain ever, that dull, uncomfortable feeling where you just want to lie on the bathroom floor in a ball, even then you feel no relief. It's impossible to explainn to ther people, the burning wee like acid and I often weed blood out and had the most incredibly awful pain in my kidneys.
    It actually ruined my first year of college, I was off all the time, broke up with my boyfriend because he just didn't understand, lost touch with friends. It was awful.
    I saw about 10 doctors, I had a scan, was prescribed antibiotics and nothing ever really worked. Sometimes the antibiotics worked, sometimes they didn't. I had to try my own methods and although it hasn't gone all together, I only get it once every 2/3 months now.
    You might know some of these tricks but they've helped me...
    I kept a diary writing down when I felt it was "coming on" as I could just feel it and I marked down when I actually had it. I realised I always got it really badly at the end of my period and did anything that supposedly prevents it like drinking lotssssssssssssss of water, cranberry juice, no caffeine, no acidic food and I did this a few days before the end of my period and funny enough I stopped getting cystitis at that time of the month and if I did (rarely) it was, bearable.
    The other time I noticed it was when I was having a bath, the next day I'd get cystitis really badly. I then identified Radox bubble bath can bring it on, I now only use natural products from Lush.
    I also noticed I got it worse in winter and was told it can be due to tight pants/tights so I now wear leggings as they aren't as restrictive as tights, this also helped.
    Sex wise, weeing before and after sex to get rid of any shared bacteria.
    Cranberry capsules from the health shop, aviding paracetemols and alcohol.
    If all else fails, sitting on the toilet with erm... ice cold NATURAL greek yoghurt on your... bits is quite relieving.
    You may know all these tips but I hope I have shared something new and I really hope one day there is a permanent cure for cystitis. xxx
 
 
 
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