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PCOS - Poly Cystic Ovarian Syndrome
I've just been diagnosed with PCOS (Poly Cystic Ovarian Syndrome), does anybody on here have it? I am a bit worried now, although I think it's nothing to worry about, I do want to have children in the future!
I personally dont have it, but its very common - I believe its as much as 1 in 10 women. It shouldn't really adversely affect your chances of having children, it does make it a little more difficult, thats true, but I know that Victoria Beckham has PCOS and she has three kids!
I think some practitioners advise certain changes to diet and lifestyle to help control any symptoms though - depends how severe you have it. Your doctor should have given you some info, or you can look on the web for more insight.
I think some practitioners advise certain changes to diet and lifestyle to help control any symptoms though - depends how severe you have it. Your doctor should have given you some info, or you can look on the web for more insight.
Anonymous
I've just been diagnosed with PCOS (Poly Cystic Ovarian Syndrome), does anybody on here have it? I am a bit worried now, although I think it's nothing to worry about, I do want to have children in the future!
I'm sure you'll be fine. i understand the concrn i feel like something similar might be wrong with me but all they've done is a PaP so far and nothings coem up what did they do to diagnose you if you don't mind me asking. best wishes, hang in there, its really comon and there are treatments.
pinkismycolor
I'm sure you'll be fine. i understand the concrn i feel like something similar might be wrong with me but all they've done is a PaP so far and nothings coem up what did they do to diagnose you if you don't mind me asking. best wishes, hang in there, its really comon and there are treatments.
No problem asking me! Well, I had a talk with my doctor first and he checked for lumps around my stomach area to rule out tumours or something I guess. Then referred me to the hospital for an Ultra Sound Scan, then my mum rang the doctors up after 3 weeks as nobody had got back to me. They said I have PCOS. So I heard over the phone today and I have to see a gynaecologist! I hadn't had periods for an astonishing time, it's 21 months now, but I was scared to sort my problem out. I'm a hypochondriac!
xx
I have it 
The first thing is don't panic - it doesn't automatically mean you're going to have fertility difficulties or develop any range of illnesses that some PCOS website scare you into thinking you're going to get.
Dependant on what symptoms you have the treatments, if any, will be different. There is no cure for PCOS itself but there are drugs/therapies that deal with the associated symptoms, like irregular periods, weight gain, skin discolouration etc. The gynaecologist will discuss these with you once you've ascertained what effect it's currently having on you. Some people have it for years without ever noticing because they have no reason to think there's anything wrong.
So, don't panic and just make sure you have your questions ready for when you go to see the gynaecologist
The first thing is don't panic - it doesn't automatically mean you're going to have fertility difficulties or develop any range of illnesses that some PCOS website scare you into thinking you're going to get.
Dependant on what symptoms you have the treatments, if any, will be different. There is no cure for PCOS itself but there are drugs/therapies that deal with the associated symptoms, like irregular periods, weight gain, skin discolouration etc. The gynaecologist will discuss these with you once you've ascertained what effect it's currently having on you. Some people have it for years without ever noticing because they have no reason to think there's anything wrong.
So, don't panic and just make sure you have your questions ready for when you go to see the gynaecologist
I have it too, and I ran an awareness campaign here at uni last year about it
I think the tricky thing with PCOS is that because the symptoms vary from person to person and because so many of them just seem like normal 'growing-up symptoms' (bad acne, period pains, irregular periods etc.) it can be very difficult to diagnose.
It is great that you have it diagnosed now, because some women go on the pill at 16, which masks the symptoms. If they come off it 10/15 years later because they want to have a baby, they might only be diagnosed then and it may by then be too late for them to conceive (difficulty conceiving being one symptom). It is best to have children earlier (ie. don't wait until 30s/40s if you can avoid it!).
I have met some PCOS sufferers who have it at an extremely serious level, some to the extent that they have already been told by the doctors that they cannot have children. (This is quite rare in PCOS sufferers btw!) Depending on how seriously you have it, chances are it won't affect your life in a huge way, but do look after yourself.
I think the tricky thing with PCOS is that because the symptoms vary from person to person and because so many of them just seem like normal 'growing-up symptoms' (bad acne, period pains, irregular periods etc.) it can be very difficult to diagnose.
It is great that you have it diagnosed now, because some women go on the pill at 16, which masks the symptoms. If they come off it 10/15 years later because they want to have a baby, they might only be diagnosed then and it may by then be too late for them to conceive (difficulty conceiving being one symptom). It is best to have children earlier (ie. don't wait until 30s/40s if you can avoid it!).
I have met some PCOS sufferers who have it at an extremely serious level, some to the extent that they have already been told by the doctors that they cannot have children. (This is quite rare in PCOS sufferers btw!) Depending on how seriously you have it, chances are it won't affect your life in a huge way, but do look after yourself.
My mum has it and was told at the age of 18 that she could never have children - 2 years later I came along So don't panic.
I sometimes wonder if I might have it actually. I used to have really irregular periods but went on the pill at 16 and so have no idea what my natural cycle is like any more (I'm now 20). I also get excess dark hairs on my chin and neck and below my bellybutton, which I know can be a symptom of something hormonal. But that's the extent of my symptoms, so I don't know. Does anyone know if there's any genetic link and if I'm more at risk from my mother having it?
So don't panic.I sometimes wonder if I might have it actually. I used to have really irregular periods but went on the pill at 16 and so have no idea what my natural cycle is like any more (I'm now 20). I also get excess dark hairs on my chin and neck and below my bellybutton, which I know can be a symptom of something hormonal. But that's the extent of my symptoms, so I don't know. Does anyone know if there's any genetic link and if I'm more at risk from my mother having it?
Anonymous
My mum has it and was told at the age of 18 that she could never have children - 2 years later I came along So don't panic.
I sometimes wonder if I might have it actually. I used to have really irregular periods but went on the pill at 16 and so have no idea what my natural cycle is like any more (I'm now 20). I also get excess dark hairs on my chin and neck and below my bellybutton, which I know can be a symptom of something hormonal. But that's the extent of my symptoms, so I don't know. Does anyone know if there's any genetic link and if I'm more at risk from my mother having it?
So don't panic.I sometimes wonder if I might have it actually. I used to have really irregular periods but went on the pill at 16 and so have no idea what my natural cycle is like any more (I'm now 20). I also get excess dark hairs on my chin and neck and below my bellybutton, which I know can be a symptom of something hormonal. But that's the extent of my symptoms, so I don't know. Does anyone know if there's any genetic link and if I'm more at risk from my mother having it?
I think there is something genetic involved! Thanks for the reassurance, I'm just very worried about the not having children thing. Hopefully now everybody knows I will be ok! I haven't had periods for 21 months which is awful, but I didn't want to go to the doctors. I worry so much about things
It runs in my family as my great aunty was never able to have children and my nanna had countless miscarriages and still borns so there is something genetic there!
Just like anonymous user two has said, my mum has it, she was told she would probably not be able to conceive, and yet still managed to have me :P
Also, anonymous user 2, I sometimes get a little paranoid about having it, worrying that I have excess facial/ bodily hair etc. Like you I went on the pill at 16, so I don't have any symptoms concerning periods. When I mentioned this to my mum, she asked her doctor about it - and was told that although there is some evidence of a genetic link, it is a reasonably low one there was absolutely nothing to say that I would have it. The rest of the women on that side of the family have managed to have plenty of children between them! Therefore, I've put it to the back of my mind
cxxxx
Also, anonymous user 2, I sometimes get a little paranoid about having it, worrying that I have excess facial/ bodily hair etc. Like you I went on the pill at 16, so I don't have any symptoms concerning periods. When I mentioned this to my mum, she asked her doctor about it - and was told that although there is some evidence of a genetic link, it is a reasonably low one there was absolutely nothing to say that I would have it. The rest of the women on that side of the family have managed to have plenty of children between them! Therefore, I've put it to the back of my mind
cxxxx
Anonymous
I think there is something genetic involved! Thanks for the reassurance, I'm just very worried about the not having children thing. Hopefully now everybody knows I will be ok! I haven't had periods for 21 months which is awful, but I didn't want to go to the doctors. I worry so much about things It runs in my family as my great aunty was never able to have children and my nanna had countless miscarriages and still borns so there is something genetic there!
It runs in my family as my great aunty was never able to have children and my nanna had countless miscarriages and still borns so there is something genetic there!There's a lot you can do yourself to help regulate your hormones, and diet and exercise play a massive factor, so perhaps it's worth you researching these aspects to try and improve your fertility later on? Google is full of info or go onto Amazon and search for 'PCOS' - there are a number of books detailing lifestyle changes which might help and, at the worst, will at least be good for your overall health.
Lots and lots of luck - I'm sure you'll be fine and I hope everything works out brilliantly for you
shinyhappy
Just like anonymous user two has said, my mum has it, she was told she would probably not be able to conceive, and yet still managed to have me :P
Also, anonymous user 2, I sometimes get a little paranoid about having it, worrying that I have excess facial/ bodily hair etc. Like you I went on the pill at 16, so I don't have any symptoms concerning periods. When I mentioned this to my mum, she asked her doctor about it - and was told that although there is some evidence of possible genetic links, there was absolutely nothing to say that I would have it, and if there is a link, it is a reasonably low one. Therefore, I've put it to the back of my mind
cxxxx
Also, anonymous user 2, I sometimes get a little paranoid about having it, worrying that I have excess facial/ bodily hair etc. Like you I went on the pill at 16, so I don't have any symptoms concerning periods. When I mentioned this to my mum, she asked her doctor about it - and was told that although there is some evidence of possible genetic links, there was absolutely nothing to say that I would have it, and if there is a link, it is a reasonably low one. Therefore, I've put it to the back of my mind
cxxxx
That's really interesting to know, thank you for that
I think I won't worry about it unless my symptoms change or become problematic. Hopefully we'll both be fine! 
I have it too - was diagnosed when I was 19, just after I started uni. See your gynaecologist as there are many things that can be done for you - it could be as simple as going on the contraceptive pill...........I can't take the combined pill because of migraines so am on the POP instead, which hasn't really helped as one of the effects is that you might not get any periods lol! I was on metformin as a trial when I was at university (its a diabetic drug as there is a link between PCOS and hyperinsulinamia.....................)..........it didn't agree with me so I came off it. Now I see a specialist and basically they've just advised me to eat less rubbish, and do more exercise.....
as another poster said, the effects and symptoms vary from person to person so seeing your doctor is the best way as they can find a treatment thats best for you
And as for fertility - there are plenty of people with PCOS who have children - some people have PCOS and don't even know......................to affect your fertility PCOS has to be particularly severe and again, there are treatments to help you conceive (my mate had a hormone injection and got pregnant on her first try lol!)
as another poster said, the effects and symptoms vary from person to person so seeing your doctor is the best way as they can find a treatment thats best for you
And as for fertility - there are plenty of people with PCOS who have children - some people have PCOS and don't even know......................to affect your fertility PCOS has to be particularly severe and again, there are treatments to help you conceive (my mate had a hormone injection and got pregnant on her first try lol!)
ive got it; apparently there was some connection (they think) with my having an eating disorder. Something to do with hormone irregularity etc etc.
anyway, mine isnt serious at all, i have very few symptoms and life is fine; the only thing my doctor did tell me was that if and when i do decide to have children i may need to have hormone injections to help things along.
either way, theres alot of help out there for people with PCOS, its just a pity you have to look so hard for it, it affects to many people that information should be much more readily available (i think anyway)
anyway, mine isnt serious at all, i have very few symptoms and life is fine; the only thing my doctor did tell me was that if and when i do decide to have children i may need to have hormone injections to help things along.
either way, theres alot of help out there for people with PCOS, its just a pity you have to look so hard for it, it affects to many people that information should be much more readily available (i think anyway)
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