Marfans Syndrome and Elite Fitness Blog.Watch
I will start by talking a bit about where I stand currently.
Recently been diagnosed with Marfan's Syndrome, a genetic tissue disorder that means I am at risk of aortic aneurysm among other things. As a consequence I have been given advice not to do any isometric exercise or weight lifting, as the sudden spike in blood pressure this involves massively increases my risks.
Before my diagnosis I was your typical skinny guy wanting to get in shape. Having had an eating disorder I started out at 6'4 and 57kg, and through strength training (5x5 mainly) gained weight and was sitting at around 77kg, squat 100kg, dead 140kg, Bench 85kg, Clean and press 55kg all for 5x5. Obviously now I am no longer able to peruse strength training, which makes any kind of bodybuilding activity fairly limited. Cardio wise, I was in fairly good shape, this summer running the length of Wales, which was 25 miles per day over 9 days, running 20-25 miles each day in 4.5-5.5 hours.
I am allowed to do very light weights, cardio and sports, and I aim to work hard in conjunction with a good diet to be as fit as I physically can be.
I will be using a 20kg barbell with high reps, 2x 10kg dumbells, an exercise bike, swimming pool and will run.
My aims are to develop my body aesthetically, currently sit at 70kg and would like to be at 85-90 in an ideal world. I will also aim to run a 50 mile race next year, and to be swimming at a good level several times per week.
*Disclaimer* I do not advocate this type of routine for anyone with any condition, speak to your doctor first. I have at the moment got a healthy heart.
If you can keep your blood pressure under control, either by sheer luck or use of other pharmaceuticals, if I were you, I would seriously considering doing anabolic steroids. And yes, this comment is probably going to get edited and I may even be banned. Come the **** at me mods.
Diet is back on track, loads more eggs and upping the intake generally. I don't buy into the idea of protein shakes and supplements, so just eat a big and healthy diet. Lost a couple of kg I think through all the extra cardio, abs have shredded recently so need to up the calories more yet. Motivation still high, really seeing my performance improve which is so encouraging. As long as I can keep it up without losing weight and preferably gaining weight I will be happy. 85 mile hill run over 3 days coming up in May, so will start to think about reintroducing some running soon.
But yeah well done, how is the building up muscle mass going since that is much more difficult with marfans?
Good luck/stay safe