essential tremor

hi does anyone here suffer from the neurogical disorder essential tremor?
it is horrible having it.. 6 % of people are meant to have it, but i dont know any other young person who has it.
i would really appreciate any replies on how anyone who has it copes with it and how it affects your life.
xx

Reply 1

Icebomb

could you breifly describe what it is?

Reply 2

sweetnsexyhuny

what is it? i might be able to help then lol

Reply 3

Mr Maniac

Definition:

Definition:

Tremor, or uncontrollable shaking, is a common symptom of neurological disorders such as Parkinson disease, head trauma, and stroke. However, many people with tremor have what is called idiopathic or essential tremor. In these cases, which number 3–4 million people in the US, the tremor itself is the only symptom of the disorder. While essential tremor may involve other parts of the body, the hands and head are most often affected.

Reply 4

Anonymous #1

OP

oh sorry i forgot that bit!
it is uncontrollable shaking of parts of the body..normally the hands. it is not ordinary shakin though..its like having a mini fit, and sometimes people around you can not see it, but you can feel it..this is internal tremors.
it can affect hands,arms,head,legs.feet,trunk,face, mouth,voice mostly.

Reply 5

q1w2e3r4t5y

I'm sure there are people with the same problems as you, and they will be feeling exactly the same way as you do. I don't know what to say, other than things that seem really crap now always have a positive outcome, especially with a disability, it can make you a stronger person.

Reply 6

Ludo

1

Hey

I have a wee bit of essential tremor, but not in my body, it's mainly in my hands. I personally don't notice it, only when people say "are you nervous?" lol as they think I am anxious it amuses me. It's nothing major really for me, but it can be annoying. Today I was trying on a ring in a shop and it really annoyed me as she must have thought I was a bit scared because of my hands trembling, lol, but otherwise you have just got to get on with it and ignore it as best you can. It's worse for me if I haven't eaten.

The doctor did prescribe me beta blockers, which do work, but they arent something that I wish to take on a prolonged basis tbh.

Reply 7

brimstone

7

My Dad's flatmate suffers from from the symptoms you describe, although his neurologist does not believe it is to do with the related disease, but with his anti-bipolar disorder medicine. However, I do know how hard it can be for him - sometimes he's shaking so much he can't eat, and he has to have a special cup with a lid because with a normal cup, liquid is spilled everywhere. He also has, from time to time, major tremors in his neck, which cause his whole body to shake. These happen usually before he goes to bed.

To the original poster - if you want someone to talk to about this, feel free to PM me.

Reply 8

choccookies

Ludo

Hey

I have a wee bit of essential tremor, but not in my body, it's mainly in my hands. I personally don't notice it, only when people say "are you nervous?" lol as they think I am anxious it amuses me. It's nothing major really for me, but it can be annoying. Today I was trying on a ring in a shop and it really annoyed me as she must have thought I was a bit scared because of my hands trembling, lol, but otherwise you have just got to get on with it and ignore it as best you can. It's worse for me if I haven't eaten.

The doctor did prescribe me beta blockers, which do work, but they arent something that I wish to take on a prolonged basis tbh.

yeah im taking mysoline, but i dont know how long it will work- it doesnt actually even stop the tremors, just controlls them abit.
im still having a battle in my head in my head whether taking th edrug is worth it.

Reply 9

Ludo

1

choccookies

yeah im taking mysoline, but i dont know how long it will work- it doesnt actually even stop the tremors, just controlls them abit.
im still having a battle in my head in my head whether taking th edrug is worth it.

Mine don't bother me at all, all it does is make my handwriting look a bit crap, which I have combatted by using quite thick black berol pens as they are easier to write with imo. Mainly what annoys me is that when I think about them if say, like trying on the ring, I exacerbate it slightly. People thinking I am nervous when I am not, due to the hand tremble, can be annoying, and it is the main thing that will annoy me if pointed out.

No to drugs, in my personal opinion. If I behave and eat properly (which admittedly I don't do all the time, as with not getting enough sleep) I thinky ou can reduce your own symptoms considerably. Someone told me that because alcohol is a relaxant, it can stop slight tremors if you only have a little bit :rolleyes:

A chocolate bar is also a good sugar boost, and in my own personal case, if I do feel a bit shaky then a choc bar can make me feel ten times better and regenerated.

Reply 10

choccookies

Ludo

Mine don't bother me at all, all it does is make my handwriting look a bit crap, which I have combatted by using quite thick black berol pens as they are easier to write with imo. Mainly what annoys me is that when I think about them if say, like trying on the ring, I exacerbate it slightly. People thinking I am nervous when I am not, due to the hand tremble, can be annoying, and it is the main thing that will annoy me if pointed out.

No to drugs, in my personal opinion. If I behave and eat properly (which admittedly I don't do all the time, as with not getting enough sleep) I thinky ou can reduce your own symptoms considerably. Someone told me that because alcohol is a relaxant, it can stop slight tremors if you only have a little bit :rolleyes:

A chocolate bar is also a good sugar boost, and in my own personal case, if I do feel a bit shaky then a choc bar can make me feel ten times better and regenerated.

yeah but my tremors are really bad, and i cant drink because its against my religion.
and i love coffee...and it obviously doesnt help.
i just h8 the fact that i cant carry th esmallest thing because my hands will start spazzin all of a sudden.
shopping....

Reply 11

Calvin

14

I'd dont know if I've got a disorder, but I'm certainly very shakey and every now and again it gets really obvious.
I'm not sure if I'd say I cope with it. It's never stopped me doing stuff or anything, I just happens sometimes and makes no difference to my life.
So I guess clearly not in the same league, very much like Ludo's, never had a particular problem with coffee or anything, just general shakiness and sometimes quite uncontrollable and get told I look nervous or have had too much caffeine all the time.
Never been a big deal but I totally sympathise with those for whom it is

Reply 12

choccookies

Calvin

I'd dont know if I've got a disorder, but I'm certainly very shakey and every now and again it gets really obvious.
I'm not sure if I'd say I cope with it. It's never stopped me doing stuff or anything, I just happens sometimes and makes no difference to my life.
So I guess clearly not in the same league, morvery much like Ludo's, never had a particular problem with coffee or anything, just general shakiness and sometimes quite uncontrollable and get told I look nervous or have had too much caffeine all the time.
Never been a big deal but I totally sympathise with those for whom it is

the thing is..im not sayin this is the case for you..but i was like you a few years ago, but it generally gets worse over the years..and mine hads just worsened so much, especially in last 6 months. when it first started happening to me i thought, and every1 around me thought it was just weakness or something.

essential tremor

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