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    • #1
    • Thread Starter
    #1

    Anon or delete as this is really embarrassing.

    Okay, so I suffer with urinary incontinence. I have done ever since I can remember. I'm told it started when my father died when I was younger and it has only become worse since.

    When I was 15 I finally decided to go to the GP to try and fix the problem and 3 years later I have seen a paediatrician, urologist, physiotherapist and gynaecologist. Each have tried different treatments but nothing has worked.

    I'm at a point where some of my gynaecological problems have been fixed (I'm not really sure why because it used to really hurt when they did examinations and then one day it just didn't hurt anymore) but nothing has improved in terms of urinary incontinence. Each specialist has said they think its psychological because all of this started just after my dad died but I don't think this is the case. I've grown up knowing and accepting he is dead and I have no memories of him at all, so why would it affect me in this way?

    I leak urine when I run, jump, laugh, sneeze, cough, sometimes just standing up or sitting down. I also get very sudden urges to go to the toilet and if I don't make it in time I will just piss myself.

    I've tried tablets, changing my lifestyle, reducing stress, pelvic floor exercises... everything you can think of really but still it's only getting worse.

    I don't really know why I've made this thread, I guess I just wanted to see if there's anything else I could do or if people are going through the same thing.

    Am I really just going to have to live with this for the rest of my life?
    • #2
    #2

    hey OP.

    I feel your pain, I am the same. Had it since I can remember (21 now), and I feel like it's getting worse. I can't comment on the psychological aspect of it. My recent consultant told me it is linked to psychological issues but I don't know how that would fit for me.

    Anyway I'll just guide you through what I've had. referred to a consultant about 5 years ago now. Talked to him, he sent me away with tablets to try for a few months. Didn't work so when I went back he gave me a different type, didn't work either. He sent me for some more invasive tests, like cameras 'up there' and all sorts of being tubes to monitor pressure (called urodynamics I believe). I have had two rounds of botox injections in my bladder, which have something like a 95% success rate for our symptoms, but still didn't work on me!

    At this moment in time I am waiting for my appointment to come through about having this modulation operation. I don't know if you've heard of it but I've put a link to some info here. Anyway, I'm having to travel quite far for it because it isn't widely offered. This may be the reason why you haven't been offered it; if there is nothing in your region. Little bit nervous since it is the most invasive thing I would have had but doctors seem to think it will work for me.

    Anyway I just wanted to let you know what I've had done. It is really frustrating, I know it is. Especially at our age (I'm assuming you are teens/20s). You didn't mention any operations or things like that in your post, have you had anything like that? You should try the botox injections if not. Ask about them! With such a high success rate they might work for you. It seems you have tried everything else up to that point anyway, I don't understand why you wouldn't be offered it.

    Hope this is vaguely useful. Let me know if you want any more info!
    • #1
    • Thread Starter
    #1

    (Original post by Anonymous)
    hey OP.

    I feel your pain, I am the same. Had it since I can remember (21 now), and I feel like it's getting worse. I can't comment on the psychological aspect of it. My recent consultant told me it is linked to psychological issues but I don't know how that would fit for me.

    Anyway I'll just guide you through what I've had. referred to a consultant about 5 years ago now. Talked to him, he sent me away with tablets to try for a few months. Didn't work so when I went back he gave me a different type, didn't work either. He sent me for some more invasive tests, like cameras 'up there' and all sorts of being tubes to monitor pressure (called urodynamics I believe). I have had two rounds of botox injections in my bladder, which have something like a 95% success rate for our symptoms, but still didn't work on me!

    At this moment in time I am waiting for my appointment to come through about having this modulation operation. I don't know if you've heard of it but I've put a link to some info here. Anyway, I'm having to travel quite far for it because it isn't widely offered. This may be the reason why you haven't been offered it; if there is nothing in your region. Little bit nervous since it is the most invasive thing I would have had but doctors seem to think it will work for me.

    Anyway I just wanted to let you know what I've had done. It is really frustrating, I know it is. Especially at our age (I'm assuming you are teens/20s). You didn't mention any operations or things like that in your post, have you had anything like that? You should try the botox injections if not. Ask about them! With such a high success rate they might work for you. It seems you have tried everything else up to that point anyway, I don't understand why you wouldn't be offered it.

    Hope this is vaguely useful. Let me know if you want any more info!
    I've had all of those invasive tests. Having a camera put up there by a really cute doctor is not fun, haha! No one has even suggested botox injections to me though so I might have to ask about it.

    Good luck for your operation! I really hope it works out for you!

    I'm 18. And I've not had any operations as such. I haven't actually seen mu urologist for at least a year and I just feel like I'm being passed from one person to another.

    Thank you so much for this reply! It's nice to know I'm not alone.
    • #3
    #3

    are you guys or girls ?
    • #1
    • Thread Starter
    #1

    (Original post by Anonymous)
    are you guys or girls ?
    Why would a girl go to see a gynaecologist? I'm a girl anyway.
    • #2
    #2

    (Original post by Anonymous)
    I've had all of those invasive tests. Having a camera put up there by a really cute doctor is not fun, haha! No one has even suggested botox injections to me though so I might have to ask about it.

    Good luck for your operation! I really hope it works out for you!

    I'm 18. And I've not had any operations as such. I haven't actually seen mu urologist for at least a year and I just feel like I'm being passed from one person to another.

    Thank you so much for this reply! It's nice to know I'm not alone.
    Oh I know about the cute doctor thing. Mine was Irish as well

    Yeah I got the feeling like I was being passed around. Like I said, I have been seeing them for about 5 years now! They do work slowly. I've been waiting about 6 months for the date for this operation, because apparently they need to apply for funding :dontknow: Definitely ask about the botox. You're put to sleep for the procedure and it's all pretty okay. No pain or anything.

    Oh, and I'm a girl too.
    • #1
    • Thread Starter
    #1

    (Original post by Anonymous)
    Oh I know about the cute doctor thing. Mine was Irish as well

    Yeah I got the feeling like I was being passed around. Like I said, I have been seeing them for about 5 years now! They do work slowly. I've been waiting about 6 months for the date for this operation, because apparently they need to apply for funding :dontknow: Definitely ask about the botox. You're put to sleep for the procedure and it's all pretty okay. No pain or anything.

    Oh, and I'm a girl too.
    If mine was Irish I would have died there and then. Mine was this really posh guy. :sogood:

    I guess that's the NHS for you. It's really embarrassing because my mother works with all of the doctors I've seen as they're surgeons and she's a surgical nurse. I'm definitely going to ask about it!

    Thank you so much for your reply!! I really do appreciate it.
 
 
 
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