Vaginal burning / No STDs or other infec. / Possibly Vulvodynia...HELP!Watch
I've had this for many years until I started using a baby nappy cream called Bepanthen. My life has changes massively!!!! I don't know how it works but it does. You get it in all pharmacies. Give it a try as I also saw many doctors who couldn't do a thing. I really hope it works for you.
Do you know the surname of Lucy?
I know it's so annoying not knowing what it is, there should just be some kind of test and some kind of fix!! It's ridiculous.
Yeah dr Derrick said I was that dermo graphic thing too, she also said mine was mostly provoked but I think she's wrong because I do get unprovoked as well. My gp has just given me lidocaine and amyttiptiline - lidocaine is rubbish and I've tried meds before so I'm not holding out much hope! I just need some kind of miracle cure! Are you just not doing anything at the moment then?
Hey guys, i've posted on several health forums but haven't had any feedback. This a bit of an embarassing condition! It is a bit of an essay so bear with! Apologies for being graphic ...
I first started having what can best be described as a burning feeling just inside my vaginal opening and the vestibule at 17. I am now 21.
I don't remember any obvious trigger but in that year i began the contraceptive pill (Yasmin I think? ) , Had thrush for the first time and Had cystitis/urine infection. I also lost my virginity that year but the irritation had already begun.
I don't know if any of those things or the combination of them could have contributed to the offset of vulvodynia.
(If you aren't familiar with vulvodynia, it is a chronic burning feeling in or/and around the vulva and vagina with no infection or obvious cause present. It can be constant or triggered)
One gyneacologist wasn't 100% sure that's what it was but my GP thinks it is. I think it is because it describes all my symptoms.
Something must have disrupted my vagina because I was perfectly fine before. I didn't change my diet or start doing anything differently and any infections I had were treated and any irritation or pain had been cleared up which is why it is so strange. Now having a pain-free vagina that I used to take for granted seems a luxury!
I finally sought help after suffering in silence and got referred for a gyno appt. I thought they were the experts and were bound to sort me out, but no! Turns out not many people know about this condition.
I have always been careful when it comes to sex so I wasn't surprised that when I've been tested for every STD under the sun several times, had blood tests etc. everything comes back fine. When the sexual health nurses and my G.P examined me they always thought everything looked normal and health except one time they said it looked a little red and 'angry'. There is no unusual discharge or smell (Ew!)
I was prescribed Gabapentin but it did little or nothing to alleviate the pain. I took it for about 6 weeks but had to stop as it was giving me severe headaches and slightly blurred vision (it is a major drug used to treat epilepsy! ) I had been told that it was brilliant for some and didn't work so well for others. Am now awaiting my follow up appointment to see what other options I can try.
I am waiting for my second gyno appt. Bloody NHS!
Some days it is unbearable and other times it is just uncomfortable. It is rarely painless but being distracted helps. Also, sex is sometimes bearable and other times out of the question. I have been with my boyfriend for nearly 2 years and he is very understanding.
Luckily I am fortunate to not have any other health conditions and am appreciative of the fact I am in good health generally.
I have tried many creams to no avail. Some days I just want to scream and cut the whole area off! It is such a nightmare! Sometimes I feel quite depressed and can't sleep because of it.
Just wondered if any other girls have had a similar experience of vaginal burning or irritation? Or any treatments you have tried that alleviated the soreness, even just a little.
Things I do/have tried:
- Cotton undies only, none at night
- No tampons
- No condoms
- No shower products only aqueous cream
- cetraben cream
- sylk gel
- ice cubes
- baking soda bath (I read it somewhere?!)
I would love to chat to someone in the same boat or that knows anything related to this. I am happy to give anything a go!