ziggy777
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So I sent in a bunch of medical reports to the DSA team, along with a letter by me, asking for a new needs assessment. Today I heard back. They wrote that they accept one new condition and will give me a new needs review on the basis of that condition, but they don't accept the other conditions as the doctors haven't detailed how they affect me on their report.

Now, granted, the reports I sent them were medical reports and not DSA-specific but the doctors do mention how the conditions affect me on a day to day basis in them. For example for one condition a consultant writes that every day I experience burning and pain in my hands along with swelling, for another that I get blood clots. The condition they accepted is the one where the consultant has provided the least amount of detail oddly enough and I'm let wondering what I need to do to fix this so I can get the right kind of support for the issues I have...

Any ideas?!

Ziggy
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claireestelle
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(Original post by ziggy777)
So I sent in a bunch of medical reports to the DSA team, along with a letter by me, asking for a new needs assessment. Today I heard back. They wrote that they accept one new condition and will give me a new needs review on the basis of that condition, but they don't accept the other conditions as the doctors haven't detailed how they affect me on their report.

Now, granted, the reports I sent them were medical reports and not DSA-specific but the doctors do mention how the conditions affect me on a day to day basis in them. For example for one condition a consultant writes that every day I experience burning and pain in my hands along with swelling, for another that I get blood clots. The condition they accepted is the one where the consultant has provided the least amount of detail oddly enough and I'm let wondering what I need to do to fix this so I can get the right kind of support for the issues I have...

Any ideas?!

Ziggy
Would they accept a letter from your gp describing all of your conditions together? something that links all of your conditions together to get an overall picture to show all your needs per say?
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ziggy777
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Hi and many thanks for the reply.

I have no idea. I mean the conditions are pretty separate unfortunately and each has its own consultant, so I thought I was doing the right thing by sending consultant reports for each thing to confirm diagnosis/issues... Are GP reports better?

Ziggy
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claireestelle
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(Original post by ziggy777)
Hi and many thanks for the reply.

I have no idea. I mean the conditions are pretty separate unfortunately and each has its own consultant, so I thought I was doing the right thing by sending consultant reports for each thing to confirm diagnosis/issues... Are GP reports better?

Ziggy
Supposedly sfe will accept gp letters for some conditions if you get them to write one that goes into plenty of detail like, this effect's Ziggys x ability to do x.
But i wouldn't have thought they would have rejected a consultants report if they wrote plenty of detail, can you call them up an ask for specific reason why they wouldn't accept it?
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ziggy777
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I did and they said they only had access to the assessor's notes and not the actual letters/details, so they have no idea why they wouldn't accept consultant reports, especially when they have some level of detail.... I have to admit I'm confused!

Ziggy
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Tiger Rag
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Your letters have to explain how they affect your ability to study.
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ziggy777
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Hi OU student and thanks for the reply.

My letters do explain how health issues do affect my ability to...well live. For example one letter explains how my blood pressure drops, I get dizzy, I have significant pain, vomit continuously for three days and have had to miss a substantial amount of university work from this. It also explains I've had it for the past ten years, but it is much worse recently. We're talking a substantial amount of detail from consultants etc.

That's why/what I'm wondering I guess. How much more detailed or specific does a consultant letter need to be...?

Ziggy
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Klix88
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(Original post by ziggy777)
Hi OU student and thanks for the reply.

My letters do explain how health issues do affect my ability to...well live. For example one letter explains how my blood pressure drops, I get dizzy, I have significant pain, vomit continuously for three days and have had to miss a substantial amount of university work from this. It also explains I've had it for the past ten years, but it is much worse recently. We're talking a substantial amount of detail from consultants etc.

That's why/what I'm wondering I guess. How much more detailed or specific does a consultant letter need to be...?

Ziggy
It needs to be explicit about how the condition will negatively impact your ability to study or live at uni. Explaining how it impacts your everyday life and leaving SF to infer the study/uni impacts, isn't enough. Your GP/consultant evidence needs to be specifically tailored to your DSA application. A general letter isn't going to do the business.
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NJones
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Yes, each condition needs explaining specialty as to how it would affect you studies on a daily basis and stating each condition is long term. It's often easier to use the SFE Disability Evidence form for a medical practitioner to complete. this has a tick box on which is accepted!
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ziggy777
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Hey NJones and many thanks for your reply and info.

Now I'm confused again! But they accepted a condition no one explained the day to day stuff for and rejected conditions I've had for the past 16 years (long term both de facto and stated as they are incurable) and for which consultants did explain how they affect me day to day in their report....

Hence the confusion if that makes sense? And the not knowing what to do know really...

Ziggy
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dipka
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(Original post by ziggy777)
Hey NJones and many thanks for your reply and info.

Now I'm confused again! But they accepted a condition no one explained the day to day stuff for and rejected conditions I've had for the past 16 years (long term both de facto and stated as they are incurable) and for which consultants did explain how they affect me day to day in their report....

Hence the confusion if that makes sense? And the not knowing what to do know really...

Ziggy
I had a similar problem I think. I have loads of conditions, had a full diagnostic report for 1 and a gp letter for everything else. They accepted the condition the report was about but nothing else. I tried to get it better from the gp but they just filled in the form for the 1 comdition sfe accepted! And that took them 3 weeks. So I gave up and got the needs assessment for that 1 condition, so I can have help for the start of the course.

As it is now july I suggest you do the same. Even if you dont have evey need covered you will have something, or should just I imagine. When I decided to do that they said If I get more evidence for other things they can re do the needs assessment so I can get more, so you should get everything eventually if you get the evidence.

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ziggy777
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Hey Dipka and thanks for the reply!

Aaaaaah!! How odd!! I wonder why that happens...!

Did you find that the support you got for the one condition that they recognised is sufficient for all conditions then? I mean I know all conditions are different, just wondering if the support is...holistic to cover all bases of need without all conditions being recognised by sfe?

Yes you're right! It's July and I so want to get things moving to be ready before the start of the year... As it is nothing is...!

Ziggy
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dipka
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(Original post by ziggy777)
Hey Dipka and thanks for the reply!

Aaaaaah!! How odd!! I wonder why that happens...!

Did you find that the support you got for the one condition that they recognised is sufficient for all conditions then? I mean I know all conditions are different, just wondering if the support is...holistic to cover all bases of need without all conditions being recognised by sfe?

Yes you're right! It's July and I so want to get things moving to be ready before the start of the year... As it is nothing is...!

Ziggy
Luckily the 1 condition they recognized is my main condition/disability. Everything else is a medical condition which has much less impact on my course than the main disability. And, with that I've got like constant 1-2-1's basically, so despite what they say about DSA is only for help relating to the course, I am confident they will help with medical stuff as at college e.g. making I have my inhaler and various other medicine's AND take them. Well, they would end up in hospital with me if I don't so it's there choice I guess. It was the same at college that they can't actually help with that kind of thing but they did anyway. Although i need and get help with organisation and it's just a extra part of my organisation so It is included in that just.

But, to answer your question of can they include help for unrecognized conditions the answer is no, or sfe will not approve it. But I think the way it works is as long as sfe approve a none medical helper you then decide their exact role with the uni closer to September (i not done that yet) so then they will be really specific in listing what each one will do now they are all approved, I think.
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Tiger Rag
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They don't help with medical stuff. The clue is in the name - non medical helper.
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Klix88
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(Original post by dipka)
I am confident they will help with medical stuff as at college e.g. making I have my inhaler and various other medicine's AND take them.
Unfortunately, once you're at uni you will be an independent adult. Unlike school (and college if that's where you did A Levels), uni does not act 'in loco parentis' - it doesn't have responsibility for your wellbeing in the same way that you've maybe been used to.

Nobody will remind you to carry your inhaler and tell you when to take them. Your DSA non-medical helper won't assist with things that you would have to cope with if you weren't at uni - and they would be stepping outside their job if they tried. They're not there to be a replacement parent. What will happen when you start work after uni? An employer wouldn't help with this, so uni is the time where you develop the skills to take responsibility for your own health. If you end up in hospital, it will be your responsibility.

It might seem a scary thing to have to manage, but you can do it. There are techniques you can implement, such as setting up daily alarms and automated memos for yourself, You'll have reserves you wouldn't believe once you get the opportunity. You'll probably have asthma for the rest of your life. You don't want to be dependent on others in the years to come. You'll find that some of the academic organisational skill you learn, will be very useful for this issue
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claireestelle
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I m afraid that any physical care needs you have, have to be covered by social services as its technically not an educational issue. If you always need support using any medication in daily life then they wont pay for someone to help you with that. This one is the irish funding body but it has a list of the exact expected roles that a NMH helper can perform anything else they wont do https://www.saas.gov.uk/_forms/dsa_nmph_booklet.pdf .
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It's unlikely social services would pay for it too. You'll be expected to use alarms to remind you.
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dipka
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(Original post by Klix88)
Unfortunately, once you're at uni you will be an independent adult. Unlike school (and college if that's where you did A Levels), uni does not act 'in loco parentis' - it doesn't have responsibility for your wellbeing in the same way that you've maybe been used to.

Nobody will remind you to carry your inhaler and tell you when to take them. Your DSA non-medical helper won't assist with things that you would have to cope with if you weren't at uni - and they would be stepping outside their job if they tried. They're not there to be a replacement parent. What will happen when you start work after uni? An employer wouldn't help with this, so uni is the time where you develop the skills to take responsibility for your own health. If you end up in hospital, it will be your responsibility.

It might seem a scary thing to have to manage, but you can do it. There are techniques you can implement, such as setting up daily alarms and automated memos for yourself, You'll have reserves you wouldn't believe once you get the opportunity. You'll probably have asthma for the rest of your life. You don't want to be dependent on others in the years to come. You'll find that some of the academic organisational skill you learn, will be very useful for this issue
With the fact that I'm doing a outdoor course, do they not have Duty of care to like not take me somewhere miles from a hospital then decide I should run up some hill, and I don't have my inhaler? Not sure they will be willing to let that happen...
If they do then I'll probably end up in hospital a lot. And because of my disability I can't go alone, what would they do then?
Your right, it is a scary thing. How do I get alarms or automated memos?

(Original post by claireestelle)
I m afraid that any physical care needs you have, have to be covered by social services as its technically not an educational issue. If you always need support using any medication in daily life then they wont pay for someone to help you with that. This one is the irish funding body but it has a list of the exact expected roles that a NMH helper can perform anything else they wont do https://www.saas.gov.uk/_forms/dsa_nmph_booklet.pdf .
Social Services are rubbish, I've been trying now 3 months to get them to give me a reassessment, because my situation is changing when I go to uni in September, still not contacted me. Ive accepted it's not going to happen.
No idea what my options are either.

(Original post by OU Student)
It's unlikely social services would pay for it too. You'll be expected to use alarms to remind you.
yep. SS won't do anything!
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claireestelle
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(Original post by dipka)
With the fact that I'm doing a outdoor course, do they not have Duty of care to like not take me somewhere miles from a hospital then decide I should run up some hill, and I don't have my inhaler? Not sure they will be willing to let that happen...
If they do then I'll probably end up in hospital a lot. And because of my disability I can't go alone, what would they do then?
Your right, it is a scary thing. How do I get alarms or automated memos?



Social Services are rubbish, I've been trying now 3 months to get them to give me a reassessment, because my situation is changing when I go to uni in September, still not contacted me. Ive accepted it's not going to happen.
No idea what my options are either.



yep. SS won't do anything!
Once you re over 18 there's no duty of care there for unis really. A non medical helper might be unwilling to give you your inhaler if their not trained in what the drug itself involves or because they d be afraid of being sued or anything like that.
When we went on a out of bound weekend at the start of my HND there weren't any forms or anything if you got sick then you had to sort yourself out.

Not to say they wont be decent people and drive you to the nearest hospital but their not duty bound to (one lecturer did get someone with kidney stones to a hospital 10km away in a taxi with kidney stones but that's because they knew where they were going and had first aid training).

Is your inhaler taken for asthma? if so get yourself to see your practice or asthma specialist nurse and see if they can suggest a better medication, when i just had a dose decrease theres a couple of brands which means taking it once a day rather than twice so although it wouldn't make you remember to take it the less doses to take the better. I used to have 3 blue inhalers at a time so i could have one in each coat/bag whatever so you cant forget it then.
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dipka
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(Original post by claireestelle)
Once you re over 18 there's no duty of care there for unis really. A non medical helper might be unwilling to give you your inhaler if their not trained in what the drug itself involves or because they d be afraid of being sued or anything like that.
When we went on a out of bound weekend at the start of my HND there weren't any forms or anything if you got sick then you had to sort yourself out.

Not to say they wont be decent people and drive you to the nearest hospital but their not duty bound to (one lecturer did get someone with kidney stones to a hospital 10km away in a taxi with kidney stones but that's because they knew where they were going and had first aid training).

Is your inhaler taken for asthma? if so get yourself to see your practice or asthma specialist nurse and see if they can suggest a better medication, when i just had a dose decrease theres a couple of brands which means taking it once a day rather than twice so although it wouldn't make you remember to take it the less doses to take the better. I used to have 3 blue inhalers at a time so i could have one in each coat/bag whatever so you cant forget it then.
They don't need to give it to me, just make sure I do it.
No forms sounds great actually! I always have such a issue fitting my large list of conditions and medicines in the tiny boxes on forms (I gave up, made a word document to print out each time I am asked now). But because of the subject I imagine they will want the forms.

I think your right, and that's what I mean really-most people would get me to a hospital if needed, even if they don't have to.

Yeh, I have 2 inhalers, one's in morning and evening the other I have to carry around with me all the time. I don't have a problem with the morning and night one really, I have loads of stuff to do then and have lists of what I do at what time, I just struggle with anything that's in the day really, it's not just a blue inhaler when needed there is others too but the day is what I find difficult.

That's a good idea of having more than 1-was the GP and pharmacy okay to give you 3? Mine's quite strict and don't re prescribe something unless you have less than 4 days remaining from the last amount. only exception is If I'm going away, then they will give me enough for that. So, i doubt they would give me more than 1 at once, although I do have a new 'spare' one as many organisations I do things with require a spare of any emergency medicine (like inhaler, epi pen, insulin etc..) Only issue with this is that my inhalers all need to be used with a spacer, and they would only give me one of those. no idea how well it would work without the spacer but thankfully I have never needed to test it! But I can't push the inhaler and breathe in long enough all together, so I need the spacer so I can just do 3-4 breaths. So would they give me more of these too?
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