Roaccutane users?

hi

is there anyone out there who is or has been on this medication for their acne?

how did the treatment go, how long before you noticed a improvement?

did u have any side effects?

if youv stopped taking it have they come back and have scars imroved?

thanks!

Reply 1

Talya

16

Search is your friend:

http://www.thestudentroom.co.uk/showthread.php?t=209402&highlight=roaccutane

Reply 2

street

1

i was on it for about 6 months, stopped getting spots after about 3 months, taking it was the best thing i ever did, side effects were just dry skin and lips and the odd nose bleed, stopped taking it about 9 months ago and not had a spot since. My scars are slowly fading.

Reply 3

Lloyd-o

I was on it and my experience is as follows:

Firstly massive flare up. The whole face just went beserk and very painful blotchy spots.

Secondly, skin went really really dry, with lips cracking quite easily

After quite a while, the spots vanished. The skin remained dry, but I was "spotless".

Was taken off the treatment, skin went back to normal.

The whole thing took about 9 months, but the teasing was quite bad during the spotty days. 2 years on and i'm an incredibly handsome young man :P

Reply 4

andy5788

14

Like the poster above me had a large flare up at the start which was gotten rid of by a fairly intensive course of steroids.

Roaccutane did greatly help but I suffered worse side effects than most I think. Very dry skin and lips, inside of nose was also dry causing regular nose bleeds. More importantly though I did get some of the depression side effects of it, though I must stress it is quite unlikely you would get that. It's just something to consider.

Was on it for about 6-9 months, took a break then went back on for another 6 months. Skin is now fairly clear though I'm still on minocyclin (a fairly mild antibiotic) and using isotrexin cream to keep it under control. Also, be warned that although it may clear active outbursts it does not clear scarring, my skin is still fairly heavily scarred over a year on.

But my experience is, from what I can tell, a fairly unusally negative one. I just feel the need to give it because usually all the posts on a thread like this tout it as some sort of wonder drug, and I don't want you (like I was) to be given too much false hope. I'm sure it will work brilliantly, but prepare yourself for the eventuality that it doesn't.

Reply 5

joshyboy1234

Hi I am young healthy 17 year old who was on roaccutane for only 3 weeks. After those 3 weeks I was taken into hospital with hip/groin pain. A few days later the consultants had told me that I had a blood clot in my leg 8 inches long and 3 inches wide from my thigh to my stomach, I also had blood clots in my lungs.

I found out that I have a defiency in my blood called 'Protein S defiency' which is hereditary from my dad and lupose anticoagulant which I aquired myself I think from the roaccutane. I was then told that this was unheard of in a 17 year old and I stayed in hospital for 5 weeks.

During those 5 weeks I was then told that I had an infection/inflamtion in my leg either due to the clot or somehting else, I was told many times how lucky I had been and my life was/could have been in severe danger. Also I was being seen by an endochrnologist (hormones and calcium) and was told that I had had hypercalcimer and my calcium levels were extremely high. (He seemed to think that this was due to the drug)

I had gone for blood tests prior to going onto the drug and was told everything was fine.

I am currently recovering at home but have been told that I would have to been on Warfarin for life and have injections if neccesery.

PLEASE be so careful. Ask your heamotologist to look for this disoder in your blood. PROTEIN S only 2000 people in the Uk have it but it could be you! And I would hate for someone else to go through what I have been through.

I am still in school and played rugby and football but now duw to my thrombophilia i cannot continue which was heartbreaking.

I urge you to think to yourself if it really worth it. Please Please Please be careful.

Thnks
Josh

Reply 6

joshyboy1234

Hi I am young healthy 17 year old who was on roaccutane for only 3 weeks. After those 3 weeks I was taken into hospital with hip/groin pain. A few days later the consultants had told me that I had a blood clot in my leg 8 inches long and 3 inches wide from my thigh to my stomach, I also had blood clots in my lungs.

I found out that I have a defiency in my blood called 'Protein S defiency' which is hereditary from my dad and lupose anticoagulant which I aquired myself I think from the roaccutane. I was then told that this was unheard of in a 17 year old and I stayed in hospital for 5 weeks.

During those 5 weeks I was then told that I had an infection/inflamtion in my leg either due to the clot or somehting else, I was told many times how lucky I had been and my life was/could have been in severe danger. Also I was being seen by an endochrnologist (hormones and calcium) and was told that I had had hypercalcimer and my calcium levels were extremely high. (He seemed to think that this was due to the drug)

I had gone for blood tests prior to going onto the drug and was told everything was fine.

I am currently recovering at home but have been told that I would have to been on Warfarin for life and have injections if neccesery.

PLEASE be so careful. Ask your heamotologist to look for this disoder in your blood. PROTEIN S only 2000 people in the Uk have it but it could be you! And I would hate for someone else to go through what I have been through.

I am still in school and played rugby and football but now duw to my thrombophilia i cannot continue which was heartbreaking.

I urge you to think to yourself if it really worth it. Please Please Please be careful.

Thnks
Josh

Reply 7

DragonStalker

I had like unstoppable nosebleeds, and when on period made me feel rather ill due to total lack of blood...but BEST DRUG EVER. Doesnt help scars I'm afraid but it does prevent. I have lots of scars on my face, there is a £30 treatment my dermatologist suggested, but I'm leaving it to see if my scars get better in next year. I get the odd spot, but thats the same in people who don't get spots anyway..it's a tad disappointing like, but theyre not as like intense as they were, they're usually smalll and not painful.

Reply 8

glcfc

i'm on it at the moment and it's caused my lips to peel and split badly. and through the splitting in my lip i have caught impetigo and have now got gum disease from an infection! it's going to be worth it though. i hope!

Roaccutane users?

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