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IBS, Coeliac disease and not correct information from doctor rant! watch

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    Ok I am really annoyed, I have had IBS symptoms for about four years and I have not been able to work out many food triggers. I feel ill every day. My doctor put me on a gluten free diet in case I was sensitive to gluten but not intolerant. Then I found out that they hadn't done the blood test for coeliac disease. The doctor printed me off the blood test form for it but did not say anything about going back on a gluten diet beforehand. I have only recently done it because I just had not got round to it. The blood test was awful, worse than usual and now I've found out that the coeliac website says that the general guideline is to have gluten for six weeks before the blood test! I've been back on a normal diet for about 4 weeks and I was on the gluten free diet for about six weeks before that. So now I am angry as the doctor did not say and I had a terrible experience and now want to avoid blood tests and even if the test comes back negative, how can I trust it? This does not help my anxiety and stress!
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    (Original post by Anonymous)
    Ok I am really annoyed, I have had IBS symptoms for about four years and I have not been able to work out many food triggers. I feel ill every day. My doctor put me on a gluten free diet in case I was sensitive to gluten but not intolerant. Then I found out that they hadn't done the blood test for coeliac disease. The doctor printed me off the blood test form for it but did not say anything about going back on a gluten diet beforehand. I have only recently done it because I just had not got round to it. The blood test was awful, worse than usual and now I've found out that the coeliac website says that the general guideline is to have gluten for six weeks before the blood test! I've been back on a normal diet for about 4 weeks and I was on the gluten free diet for about six weeks before that. So now I am angry as the doctor did not say and I had a terrible experience and now want to avoid blood tests and even if the test comes back negative, how can I trust it? This does not help my anxiety and stress!
    Actually I might have been on a normal diet for about 5 weeks.
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    #2

    Question is though

    Are your symptoms gone with a gluten free diet?

    If that is the case I wouldn't put myself under more stress as the past can't be changed.
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    If a gluten free diet didn't eliminate your symptoms and you need more help ask for a referral to a dietician. They will be able to talk to you about treating ibs, and may be able to help you go onto the low fodmap diet, which loads of people with ibs have success with.


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    (Original post by Anonymous)
    Ok I am really annoyed, I have had IBS symptoms for about four years and I have not been able to work out many food triggers. I feel ill every day. My doctor put me on a gluten free diet in case I was sensitive to gluten but not intolerant. Then I found out that they hadn't done the blood test for coeliac disease. The doctor printed me off the blood test form for it but did not say anything about going back on a gluten diet beforehand. I have only recently done it because I just had not got round to it. The blood test was awful, worse than usual and now I've found out that the coeliac website says that the general guideline is to have gluten for six weeks before the blood test! I've been back on a normal diet for about 4 weeks and I was on the gluten free diet for about six weeks before that. So now I am angry as the doctor did not say and I had a terrible experience and now want to avoid blood tests and even if the test comes back negative, how can I trust it? This does not help my anxiety and stress!
    Alot of doctors don't seem very clued up on celiac. But yea there is the potential for a false negative now unfortunatly.

    IMO eat a decent amount of gluten for a day or two and see if there is a verifiable difference in how you feel. I managed to diagnose myself before the GP after ruling out Lactose intolerance and wondering why I could eat a super hot curry with no problems but felt terrible after a sandwich (or whatever bland gluten filled food i tried to reduce the symptons !).
    • #1
    • Thread Starter
    #1

    (Original post by Anonymous)
    Question is though

    Are your symptoms gone with a gluten free diet?

    If that is the case I wouldn't put myself under more stress as the past can't be changed.
    I'm not really sure, in a way I felt better but sometimes I felt quite bad but I was still on medication at the time and I could have more than one intolerance or sensitivity.
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    • Thread Starter
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    (Original post by myblueheaven339)
    If a gluten free diet didn't eliminate your symptoms and you need more help ask for a referral to a dietician. They will be able to talk to you about treating ibs, and may be able to help you go onto the low fodmap diet, which loads of people with ibs have success with.


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    Thank you, my doctor recommended trying to eliminate certain food groups from my diet at a time as that is apparently what a dietician suggest but we haven't got very far yet!
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    (Original post by INTit)
    Alot of doctors don't seem very clued up on celiac. But yea there is the potential for a false negative now unfortunatly.

    IMO eat a decent amount of gluten for a day or two and see if there is a verifiable difference in how you feel. I managed to diagnose myself before the GP after ruling out Lactose intolerance and wondering why I could eat a super hot curry with no problems but felt terrible after a sandwich (or whatever bland gluten filled food i tried to reduce the symptons !).
    Well it was five weeks and they are taking a long time to provide a result so hopefully that means that they will get an accurate answer. I didn't feel ill for a while after going back on a normal diet but yeah I'm not completely sure. I'm glad that you worked out what your trigger was, I am trying to find patterns!
 
 
 
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