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Endometriosis watch

    • Thread Starter

    Just wondering if anyone suffers with endometriosis and how long it took for you to be diagnosed...

    I have been mentioning this to my doctor since late 2012-2013. He stated it was all in my head the fear of not being able to have children as I already had a miscarriage.

    After suffering a lot worse with my cycles this year, I decided to get a 2nd opinion at another hospital in July, he did a laparoscopy(camera) to find I have stage 2 endometriosis. Unfortunately, when I went back to my follow up I was greeted very rudely by a Doctor who in my opinion was terrible. He stated this couldn't be removed as it was right on my uterus(not sure how true this is, but okay not a problem). My fear is this getting worse as I get older, as I'd like to go to university and have a career before children (I'm only 18). The doctor told me to go and get pregnant to cure endometriosis and I know this is definitely not true. He didn't seem bothered in the slightest and when I was upset and in tears, he said this isn't a tumour its only endometriosis.

    As it's only stage 2, I understand many women are suffering with stage 3 and 4 and having hysterectomy's but I'd just like to hear peoples stories as at the moment I feel so fed up with this and so scared and alone with my thoughts of not knowing whether I'm going to have children or not especially with me having a miscarriage previously.

    • #1

    you poor thing

    I already have conditions such as interstitial cystitis, IBS. this year, iv had a rough year and only recently got told I had a haemorrhage ovarian cyst. I'm waiting to see a gynaecologist but GP thinks I may have ENDO. I have always had painful periods, but never thought I would have endo. do you get bladder issues?

    I'm worried sick my ovaries may have to be removed and I will be left infertile and just like you I'm in no position to have children even though I want to have a family..
    I'm young like you as well its not the kind of stress you want..

    this disease is horrible.. for what it does.
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