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Pain and breathing difficulties with Scoliosis? watch

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    As the title suggests, I keep getting back pain and occasionally chest pain which makes it difficult to breath.

    I was diagnosed with thoracolumbar scoliosis 3 years ago and the doctor said I would need x-ray check ups every 6 months, but they never booked it and since it is mild, I simply left it.
    For the past 2 years I keep getting sharp sudden pains in several areas, e.g. the side of my spine, in the middle of the spine at the back where the two curves meet and in both rib cages (varying pain in the front, side and back of them). These pains can last between 30 seconds and several hours and usually gives me shortness of breath. On top of this, my back restricts me from things such as sport and lifting things and tends to get stiff whenever I wake up in the morning.

    I keep going to the GP about it in hopes to get another x-ray to see if it has gotten worse. The first time, the doctor told me to just take stronger painkillers because not even co-codamol helps. The second time, they told me it's probably muscle strain so I should try heat packs. The third time, they kind of dismissed it because I had another medical problem to discuss and get a prescription for. The fourth time, they told me I had probably pushed myself too hard the week before and claimed that scoliosis isn't associated with back pain. The fifth time, they suggested getting booked into physio sessions but I had to wait until I turned 18 to get them.

    All in all, I would like some advice. Do I need to be more strict in getting them to book me a hospital appointment? Also, does anyone here who has back problems know any good pain relief methods?
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    Be persistent with your GP, the NHS falls flat on it's face when it comes to non-urgent issues like this and sitting around waiting isn't going to do anything. If your pain gets too bad get your hands on some Pain killers such as Ibuprofen which is designed for pains like this, they wont cure it, but it'll take the edge off.
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    (Original post by Armastan)
    As the title suggests, I keep getting back pain and occasionally chest pain which makes it difficult to breath.

    I was diagnosed with thoracolumbar scoliosis 3 years ago and the doctor said I would need x-ray check ups every 6 months, but they never booked it and since it is mild, I simply left it.
    For the past 2 years I keep getting sharp sudden pains in several areas, e.g. the side of my spine, in the middle of the spine at the back where the two curves meet and in both rib cages (varying pain in the front, side and back of them). These pains can last between 30 seconds and several hours and usually gives me shortness of breath. On top of this, my back restricts me from things such as sport and lifting things and tends to get stiff whenever I wake up in the morning.

    I keep going to the GP about it in hopes to get another x-ray to see if it has gotten worse. The first time, the doctor told me to just take stronger painkillers because not even co-codamol helps. The second time, they told me it's probably muscle strain so I should try heat packs. The third time, they kind of dismissed it because I had another medical problem to discuss and get a prescription for. The fourth time, they told me I had probably pushed myself too hard the week before and claimed that scoliosis isn't associated with back pain. The fifth time, they suggested getting booked into physio sessions but I had to wait until I turned 18 to get them.

    All in all, I would like some advice. Do I need to be more strict in getting them to book me a hospital appointment? Also, does anyone here who has back problems know any good pain relief methods?
    Please, do not delay with this issue. I agree with Xelfrost, as you need to be chasing the GP until you get your issue sorted. Do not waste time as this issue will eventually get worse over time. By the way, do you have a private medical? As having that can get you an appointment with the hospital a lot quicker.
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    (Original post by Scopeowner)
    By the way, do you have a private medical? As having that can get you an appointment with the hospital a lot quicker.

    Unfortunately no, I just use the public medical centre down the road from me. I've been debating whether to get private healthcare since my family isn't very wealthy but getting a hospital appointment quicker sounds like it would be worth it. I'm always worrying that, as I grow older, it'll just get worse since it's at this stage already and I'm only 18.

    (Original post by Xelfrost)
    Be persistent with your GP, the NHS falls flat on it's face when it comes to non-urgent issues like this and sitting around waiting isn't going to do anything. If your pain gets too bad get your hands on some Pain killers such as Ibuprofen which is designed for pains like this, they wont cure it, but it'll take the edge off.
    I do try Ibuprofen but a lot of the time it doesn't really do much to help. The only medication that worked a charm was co-dydramol, which I was given once from someone who has been prescribed it for her own back pain, so maybe enquiring about having that prescription might help?
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    (Original post by Armastan)
    Unfortunately no, I just use the public medical centre down the road from me. I've been debating whether to get private healthcare since my family isn't very wealthy but getting a hospital appointment quicker sounds like it would be worth it. I'm always worrying that, as I grow older, it'll just get worse since it's at this stage already and I'm only 18.



    I do try Ibuprofen but a lot of the time it doesn't really do much to help. The only medication that worked a charm was co-dydramol, which I was given once from someone who has been prescribed it for her own back pain, so maybe enquiring about having that prescription might help?
    Oh I am sorry about that. Having private medical is an extremely useful feature, as it saves a lot of time. I endorse this from personal and recent experience, and you should try to find a reasonable insurer. Using private medical saved me 6 - 8 weeks on the waiting list for appointments. Also, don't worry I am nearly 18 and I have had two major operations (both within 1 year). Just stay strong and be positive.
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    (Original post by Armastan)
    As the title suggests, I keep getting back pain and occasionally chest pain which makes it difficult to breath.

    I was diagnosed with thoracolumbar scoliosis 3 years ago and the doctor said I would need x-ray check ups every 6 months, but they never booked it and since it is mild, I simply left it.
    For the past 2 years I keep getting sharp sudden pains in several areas, e.g. the side of my spine, in the middle of the spine at the back where the two curves meet and in both rib cages (varying pain in the front, side and back of them). These pains can last between 30 seconds and several hours and usually gives me shortness of breath. On top of this, my back restricts me from things such as sport and lifting things and tends to get stiff whenever I wake up in the morning.

    I keep going to the GP about it in hopes to get another x-ray to see if it has gotten worse. The first time, the doctor told me to just take stronger painkillers because not even co-codamol helps. The second time, they told me it's probably muscle strain so I should try heat packs. The third time, they kind of dismissed it because I had another medical problem to discuss and get a prescription for. The fourth time, they told me I had probably pushed myself too hard the week before and claimed that scoliosis isn't associated with back pain. The fifth time, they suggested getting booked into physio sessions but I had to wait until I turned 18 to get them.

    All in all, I would like some advice. Do I need to be more strict in getting them to book me a hospital appointment? Also, does anyone here who has back problems know any good pain relief methods?
    I have scoliosis myself too. Was diagnosed about 6 years ago. The curvature in my spine is pretty bad (about 90 degrees) and I sometimes do get back/chest pains. I never opted for surgery, just went with the bracing procedure. I suggest just trying to keep your back as flexible as possible. Try stretching every morning when you get out of bed and evening just before you go to sleep. I also found having a good posture too also helps to decrease back pain by a considerable amount.
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    (Original post by Scopeowner)
    Oh I am sorry about that. Having private medical is an extremely useful feature, as it saves a lot of time. I endorse this from personal and recent experience, and you should try to find a reasonable insurer. Using private medical saved me 6 - 8 weeks on the waiting list for appointments. Also, don't worry I am nearly 18 and I have had two major operations (both within 1 year). Just stay strong and be positive.
    I'll definitely consider and look into private medical care. I assume you have recovered well from the operations! I've always been scared of getting the spinal surgery in case anything goes wrong.
    Thanks, I'll try and stay positive!

    (Original post by SpaceBunny)
    I have scoliosis myself too. Was diagnosed about 6 years ago. The curvature in my spine is pretty bad (about 90 degrees) and I sometimes do get back/chest pains. I never opted for surgery, just went with the bracing procedure. I suggest just trying to keep your back as flexible as possible. Try stretching every morning when you get out of bed and evening just before you go to sleep. I also found having a good posture too also helps to decrease back pain by a considerable amount.
    I admire you for coping with a 90 degree curve, that's considerably more severe than mine.
    Did bracing help? They never suggested it to me, but I think it's because I haven't grown an inch in the past 3 years and bracing I think is used to help straighten it as you grow?
    I'll start doing some morning/evening stretches and hope it helps ease the stiffness! I try to keep good posture but it gets very uncomfortable after some time, but it has kept me from being naturally hunched forwards. Thanks for the tips, it's nice to hear from someone who shares my condition and the pains that can come with it!
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    (Original post by Armastan)
    As the title suggests, I keep getting back pain and occasionally chest pain which makes it difficult to breath.

    I was diagnosed with thoracolumbar scoliosis 3 years ago and the doctor said I would need x-ray check ups every 6 months, but they never booked it and since it is mild, I simply left it.
    For the past 2 years I keep getting sharp sudden pains in several areas, e.g. the side of my spine, in the middle of the spine at the back where the two curves meet and in both rib cages (varying pain in the front, side and back of them). These pains can last between 30 seconds and several hours and usually gives me shortness of breath. On top of this, my back restricts me from things such as sport and lifting things and tends to get stiff whenever I wake up in the morning.

    I keep going to the GP about it in hopes to get another x-ray to see if it has gotten worse. The first time, the doctor told me to just take stronger painkillers because not even co-codamol helps. The second time, they told me it's probably muscle strain so I should try heat packs. The third time, they kind of dismissed it because I had another medical problem to discuss and get a prescription for. The fourth time, they told me I had probably pushed myself too hard the week before and claimed that scoliosis isn't associated with back pain. The fifth time, they suggested getting booked into physio sessions but I had to wait until I turned 18 to get them.



    All in all, I would like some advice. Do I need to be more strict in getting them to book me a hospital appointment? Also, does anyone here who has back problems know any good pain relief methods?
    I had scoliosis and I experienced all the same pains as you describe.
    Mine was quite severe though and I had surgery.

    Is there no way you'd consider surgery ?
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    (Original post by lachachacha)
    Is there no way you'd consider surgery ?
    I would, yes, but I'm just very scared and paranoid about it in case something goes wrong.
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    I have scoliosis and had my last surgery when I was ten. You should try and get yourself referred to either an orthopaedic surgeon or spinal consultant asap because curves can progress very suddenly (I know from personal experience). Maybe you could go to A&E when it is hard to breath and they can find a consultant to see you? Good luck!
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    (Original post by Ddraigdwr2)
    I have scoliosis and had my last surgery when I was ten. You should try and get yourself referred to either an orthopaedic surgeon or spinal consultant asap because curves can progress very suddenly (I know from personal experience). Maybe you could go to A&E when it is hard to breath and they can find a consultant to see you? Good luck!
    Ten? That's so young!
    I will try and request a specialist to see what they can do and if surgery is necessary and available for me. Thank you, and everyone else, for the advice! I hope something will get sorted soon before it gets any worse.
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    I had my spinal fusion July 2014, to deal with the pain in my shoulder blades and back i take paracetomol, iburofen an dihydrocodeine. It doesn't always help, but i try to keep it easy.
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    (Original post by Armastan)
    Ten? That's so young!
    I will try and request a specialist to see what they can do and if surgery is necessary and available for me. Thank you, and everyone else, for the advice! I hope something will get sorted soon before it gets any worse.
    I was diagnosed when I was three and had my first surgery when I was six so ten doen't seem too young for me! Glad to be of help, after my surgery I wasn't allowed ibuprofen because it slows bone healing, but I found that codeine (or however you spell it) really helped! Good luck for the future x
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    Also hot water bottles helped to dull the pain a bit ^
 
 
 
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