Auditory processing disorder
So, according to Audiology, my hearing tests are completely normal. They've concluded from this that there's nothing wrong, (even though some sounds scare me and I can't do things like go out because too many noises are actually quite painful physically) and that I just need to go out. By doing so, I would just be desensitising myself to noise. We'll completely ignore the fact that some noises cause some quite serious problems for me.
She did argue that because I'm visually impaired, my hearing problems are completely "normal". This is actually a myth. We don't generally have better hearing than everyone else. We have to use our hearing more than other people to compensate for the lack of vision. My hearing problems started in 2012 after blocked ears. I was born with my sight problems.
It has been suggested that my hearing problems (my hearing is within the normal ranges, which is why Audiology won't take me seriously) are Auditory Processing Dsiorder, which sounds about right. Does anyone else have this please? And how (and who) do I go about getting tested for this? Getting fed up now.
She did argue that because I'm visually impaired, my hearing problems are completely "normal". This is actually a myth. We don't generally have better hearing than everyone else. We have to use our hearing more than other people to compensate for the lack of vision. My hearing problems started in 2012 after blocked ears. I was born with my sight problems.
It has been suggested that my hearing problems (my hearing is within the normal ranges, which is why Audiology won't take me seriously) are Auditory Processing Dsiorder, which sounds about right. Does anyone else have this please? And how (and who) do I go about getting tested for this? Getting fed up now.
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I have this, It was picked up in and educationaly psychology assesment.
Along with Meres Irlens syndrome,below average writing and visual processing difficulties.
Basicly the sounds and sights go in to my ears and eyes but it takes me longer to work out what it was.
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Along with Meres Irlens syndrome,below average writing and visual processing difficulties.
Basicly the sounds and sights go in to my ears and eyes but it takes me longer to work out what it was.
Posted from TSR Mobile
Original post by Tiger Rag
So, according to Audiology, my hearing tests are completely normal. They've concluded from this that there's nothing wrong, (even though some sounds scare me and I can't do things like go out because too many noises are actually quite painful physically) and that I just need to go out. By doing so, I would just be desensitising myself to noise. We'll completely ignore the fact that some noises cause some quite serious problems for me.
She did argue that because I'm visually impaired, my hearing problems are completely "normal". This is actually a myth. We don't generally have better hearing than everyone else. We have to use our hearing more than other people to compensate for the lack of vision. My hearing problems started in 2012 after blocked ears. I was born with my sight problems.
It has been suggested that my hearing problems (my hearing is within the normal ranges, which is why Audiology won't take me seriously) are Auditory Processing Dsiorder, which sounds about right. Does anyone else have this please? And how (and who) do I go about getting tested for this? Getting fed up now.
She did argue that because I'm visually impaired, my hearing problems are completely "normal". This is actually a myth. We don't generally have better hearing than everyone else. We have to use our hearing more than other people to compensate for the lack of vision. My hearing problems started in 2012 after blocked ears. I was born with my sight problems.
It has been suggested that my hearing problems (my hearing is within the normal ranges, which is why Audiology won't take me seriously) are Auditory Processing Dsiorder, which sounds about right. Does anyone else have this please? And how (and who) do I go about getting tested for this? Getting fed up now.
Bibic ( but it's usually for children )
Contact me they'll direct you to the right place if you over 25+ x
Original post by Tiger Rag
So, according to Audiology, my hearing tests are completely normal. They've concluded from this that there's nothing wrong...
It has been suggested that my hearing problems (my hearing is within the normal ranges, which is why Audiology won't take me seriously) are Auditory Processing Dsiorder, which sounds about right. Does anyone else have this please? And how (and who) do I go about getting tested for this? Getting fed up now.
It has been suggested that my hearing problems (my hearing is within the normal ranges, which is why Audiology won't take me seriously) are Auditory Processing Dsiorder, which sounds about right. Does anyone else have this please? And how (and who) do I go about getting tested for this? Getting fed up now.
I have suspected APD - they couldn't prove it either way in the end, even after sending me to specialists
I first realised there was a problem with my hearing when I was studying for my GCSEs. After routine hearing tests at the local hospital came back normal and a clinician at a different hospital told me that lack of confidence was resulting in perceived hearing problems, I finally got my GP to put through a referral to this place: http://www.uclh.nhs.uk/OurServices/ServiceA-Z/Neuro/NOT/Pages/Home.aspx
I saw the first doctor listed on this page, who ran extensive tests which all came out normal. She then sent me to a neuropsychologist who did 2 hours' worth of tests on me
The results of those were inconclusive too 
You may have better luck than me in getting a diagnosis! The dr I saw was very nice and attentive, so I would recommend trying to get a referral to this place if you are in/near to London
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Original post by Ella2b
I have this, It was picked up in and educationaly psychology assesment.
Along with Meres Irlens syndrome,below average writing and visual processing difficulties.
Basicly the sounds and sights go in to my ears and eyes but it takes me longer to work out what it was.
Posted from TSR Mobile
Along with Meres Irlens syndrome,below average writing and visual processing difficulties.
Basicly the sounds and sights go in to my ears and eyes but it takes me longer to work out what it was.
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Hey, I've only recently been diagnosed with Meares-Irlen Syndrome, I was wondering how you manage/cope with it??
Original post by Ella2b
Basicly the sounds and sights go in to my ears and eyes but it takes me longer to work out what it was.
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Basicly the sounds and sights go in to my ears and eyes but it takes me longer to work out what it was.
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This is my problem. If you say something to me, I sometimes have to think what you're saying. It was once suggested that I have mild hearing loss. But both hearing tests (one in 2012 and the one I had on Thursday) were within the normal range. Therefore, Audiology have decided I'm just a highly sensitive person and I need to get out more. If only it was that simple. I've had to leave groups because going out can be quite painful.
The GP I saw in order to get referred, thinks there is something wrong and said it's not a build up of wax, which was the problem in 2012.
One of the eye conditions I have, can cause amongst other horrible things, hearing problems. But those people are actually deaf and not the problems I'm deescribing here.
This sounds a lot like me. Other than a few sounds I can't hear at all my hearing's mostly within the normal range now (albeit the lower end of it), but as soon as there's any background noise I really struggle. Even when it's quiet I can't take in what people say at all no matter how hard I listen, stuff like doctors appointments if I'm on my own are a nightmare. Also I'm really sensitive to noise and can't cope with changes in pressure but I think they're separate problems, I never realised there could be a reason for the taking stuff in thing though. Might look into this at some point!
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(edited 8 years ago)
Original post by elmosandy
Bibic ( but it's usually for children )
Contact me they'll direct you to the right place if you over 25+ x
Contact me they'll direct you to the right place if you over 25+ x
I'm 26, btw.
And thanks for your replies.
It's nice to know there are others who understand this. I've posted this on various FB groups. Or rather, had a whinge that I've got hearing problems; but because I'm not deaf, have been told it's nothing. Everyone who has replied, has suggested APD. I also have Hyperacusis (my hearing is too sensitive) but this is more.Audiologist has written to ENT who may see me. Will see what happens there. But am defintely am going to have to do a bit research into this and then it's back to the GP. Someone did mention Specsavers (they have hearing centres too now) but I don't know if they just do the hearing tests? And not what I need?
Original post by Tiger Rag
Someone did mention Specsavers (they have hearing centres too now) but I don't know if they just do the hearing tests? And not what I need?
I didn't know that Specsavers do hearing tests now, but I imagine it would probably be a basic one and that you might need something more extensive/conclusive in order to get a diagnosis of APD
My cousin has this was worse when he was little, if you asked him to repeat something you sounded out for him it came out completely different, his was a pretty bad case though.
I have found the use of overlays helpful. Pukka do paper pads in different colours also. There is a piece of softwear avaliable that acts as a filter for pd/laptop too.
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Original post by Ella2b
I have this, It was picked up in and educational psychology assesment.
Along with Meres Irlens syndrome,below average writing and visual processing difficulties.
Basicly the sounds and sights go in to my ears and eyes but it takes me longer to work out what it was.
Posted from TSR Mobile
Along with Meres Irlens syndrome,below average writing and visual processing difficulties.
Basicly the sounds and sights go in to my ears and eyes but it takes me longer to work out what it was.
Posted from TSR Mobile
I had educational psychology assesment through college last year. It could have also diagnosed dyslexia, dyspraxia, discalcula, and other things like that.
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I've never been diagnosed but I do suffer from some things you say you do. I find some sounds painful and unbearable, other sounds make me angry (though that is misophonia). I also find having to listen to lots of sounds at once quite difficult to bear or understand, as such I find large social gatherings difficult as I can't follow conversations and get confused and stressed.
Back to the GP it is then.Go to your disability support department at your college and ask if you can have an educational psychology assessment.
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GP wasn't interested and told me to stop trying to find a label for everything. I'm sorry; but it means I don't have a life any more. She thinks I have depression. I don't. She thinks that my Hyperacusis is the problem. Hyperacusis is "just" hypersensitive hearing and doesn't affect how you hear sound. (in the way that I don't always quiuite catch what some people are saying, despite not being deaf)
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