Hey there! Sign in to join this conversationNew here? Join for free

Extended Project on Autism Watch

Announcements
    • Thread Starter
    Offline

    1
    ReputationRep:
    Hello,
    For my EPQ I am going to write a book from the perspective of a child (around 7 or 8 years old) that has a younger sibling with an Autism Spectrum Disorder. As part of my research, I was wondering if anybody would be able to give me their experience on living with somebody with autism (or having autism themselves and the effects it may have had on the family). More specifically, it would be useful to know the difficulties that arise in everyday life that someone who hasn't had this experience may not consider, as well as the benefits it has had on family life, and maybe how it has made you think differently. Thank you very much for your time.
    • Thread Starter
    Offline

    1
    ReputationRep:
    -Bump-
    • TSR Support Team
    • Clearing and Applications Advisor
    Offline

    21
    ReputationRep:
    (Original post by FebruaryFlowers)
    Hello,
    For my EPQ I am going to write a book from the perspective of a child that has a sibling with an Autism Spectrum Disorder. As part of my research, I was wondering if anybody would be able to give me their experience on living with somebody with autism (or having autism themselves and the effects it may have had on the family). Thank you very much for your time.
    You might get some more useful responses if you ask a more specific question or questions. Simply asking for people's "experience on living with somebody with autism" is an incredibly broad question!
    • Thread Starter
    Offline

    1
    ReputationRep:
    (Original post by Plagioclase)
    You might get some more useful responses if you ask a more specific question or questions. Simply asking for people's "experience on living with somebody with autism" is an incredibly broad question!
    Good idea :blushing: Sorry, I'm quite new with forums!
    • TSR Support Team
    • Very Important Poster
    Offline

    21
    ReputationRep:
    I both have a sibling and the condition myself. As above, can you please be a bit more specific. Thanks.
    • Thread Starter
    Offline

    1
    ReputationRep:
    (Original post by Tiger Rag)
    I both have a sibling and the condition myself. As above, can you please be a bit more specific. Thanks.
    I am looking into how siblings react to a diagnosis- did he/she treat you any differently afterwards? Was he/she very understanding? Is there anything he/she has learnt? I didn't want to be too specific in case I caused offence (I don't want anybody to give information they are not comfortable with) or in case I asked the wrong types of questions. Is there anything you think I should know while writing a book to teach children about the condition? Thank you for your reply, I'm sorry for the confusion!
    Offline

    3
    ReputationRep:
    http://www.imdb.com/title/tt0481580/
    • Thread Starter
    Offline

    1
    ReputationRep:
    Thank you, this looks really good!
    Offline

    0
    ReputationRep:
    Don't have any experience but may I suggest the following things with people who have autism:

    Books
    Memoirs of an Imaginary Friend
    The Curious Incident of the Dog in the Night-Time

    Films
    Rain Man
    The Story of Luke

    TV Shows
    Educating the East End - Episode 8
    House - Lines in the Sand

    Based on the sort of info you're looking for I'd say that Curious Incident and East End would be the most helpful, but if you get the chance they're all worth checking out
    Offline

    3
    ReputationRep:
    Hiya, if you like, you can read my article here :
    http://www.socialstudent.co.uk/livin...ergers-autism/

    any other questions? pm me!
    • TSR Support Team
    • Very Important Poster
    Offline

    21
    ReputationRep:
    (Original post by FebruaryFlowers)
    I am looking into how siblings react to a diagnosis- did he/she treat you any differently afterwards? Was he/she very understanding? Is there anything he/she has learnt? I didn't want to be too specific in case I caused offence (I don't want anybody to give information they are not comfortable with) or in case I asked the wrong types of questions. Is there anything you think I should know while writing a book to teach children about the condition? Thank you for your reply, I'm sorry for the confusion!
    In my case, they all knew anyway.

    What age is the book going to be aimed at? Because if it's younger children, you don't want to go into too much detail.
    • Thread Starter
    Offline

    1
    ReputationRep:
    (Original post by Tiger Rag)
    In my case, they all knew anyway.

    What age is the book going to be aimed at? Because if it's younger children, you don't want to go into too much detail.
    It's going to be aimed at primary school age children, I haven't decided the exact age yet but it will be for kids aged around 7 or 8.
    • Thread Starter
    Offline

    1
    ReputationRep:
    (Original post by lameteenager)
    Don't have any experience but may I suggest the following things with people who have autism:

    Books
    Memoirs of an Imaginary Friend
    The Curious Incident of the Dog in the Night-Time

    Films
    Rain Man
    The Story of Luke

    TV Shows
    Educating the East End - Episode 8
    House - Lines in the Sand

    Based on the sort of info you're looking for I'd say that Curious Incident and East End would be the most helpful, but if you get the chance they're all worth checking out
    Thanks so much, I'll look into them!
    • Thread Starter
    Offline

    1
    ReputationRep:
    (Original post by Samwin)
    Hiya, if you like, you can read my article here :
    http://www.socialstudent.co.uk/livin...ergers-autism/

    any other questions? pm me!
    Thank you so much, this was really good!
    Offline

    3
    ReputationRep:
    (Original post by FebruaryFlowers)
    Thank you so much, this was really good!
    Why thank you I have experience of both ends of the spectrum and telling young children about it (am a childcare assistant) so seriously, you are more than welcome to ask me anything you like
    • TSR Support Team
    • Very Important Poster
    Offline

    21
    ReputationRep:
    (Original post by FebruaryFlowers)
    It's going to be aimed at primary school age children, I haven't decided the exact age yet but it will be for kids aged around 7 or 8.
    I think there's something called Social Stories which may explain to younger children what Autism is.
    • Thread Starter
    Offline

    1
    ReputationRep:
    Thank you for all of your help everyone!
    Offline

    0
    ReputationRep:
    Hallo, I'm autistic myself and like obviously idk exactly what ur doing but you might be able to express autism better if you do the book from the autistic kids point of view? Bc I feel like allistics don't often understand autism so like I know my allistic siblings don't really get me and wouldn't be able to explain autism properly despite living w me. Obviously if you were to do this you'd need input from actual autistic ppl (idm helping if u want) to make sure you were representing it properly but yea idk the idea of an allistic person explaining my condition kinda rubs me up the wrong way :/
    • Thread Starter
    Offline

    1
    ReputationRep:
    (Original post by Squidsticks)
    Hallo, I'm autistic myself and like obviously idk exactly what ur doing but you might be able to express autism better if you do the book from the autistic kids point of view? Bc I feel like allistics don't often understand autism so like I know my allistic siblings don't really get me and wouldn't be able to explain autism properly despite living w me. Obviously if you were to do this you'd need input from actual autistic ppl (idm helping if u want) to make sure you were representing it properly but yea idk the idea of an allistic person explaining my condition kinda rubs me up the wrong way :/
    Hi, the reason that I decided to do a book for siblings from a sibling's perspective was for two reasons: firstly because apparently it is easier for young children to understand a concept if they can identify with the perspective and secondly because there are more books on the market written from the point of view of a person with autism than a sibling. However, your suggestion has made me think that it might be a good idea to write parts of the story from the autistic sibling's point of view so the child reading it will get a better idea of what it's like? Thank you very much, it will really improve the story! If I run into any troubles, would it be okay for me to maybe PM you an extract to see if I am portraying the condition properly? (Don't worry if not )
    Offline

    0
    ReputationRep:
    (Original post by FebruaryFlowers)
    Hi, the reason that I decided to do a book for siblings from a sibling's perspective was for two reasons: firstly because apparently it is easier for young children to understand a concept if they can identify with the perspective and secondly because there are more books on the market written from the point of view of a person with autism than a sibling. However, your suggestion has made me think that it might be a good idea to write parts of the story from the autistic sibling's point of view so the child reading it will get a better idea of what it's like? Thank you very much, it will really improve the story! If I run into any troubles, would it be okay for me to maybe PM you an extract to see if I am portraying the condition properly? (Don't worry if not )
    Yeah sure!
 
 
 
Reply
Submit reply
TSR Support Team

We have a brilliant team of more than 60 Support Team members looking after discussions on The Student Room, helping to make it a fun, safe and useful place to hang out.

Updated: February 23, 2016
  • See more of what you like on The Student Room

    You can personalise what you see on TSR. Tell us a little about yourself to get started.

  • Poll
    Should Spain allow Catalonia to declare independence?
  • See more of what you like on The Student Room

    You can personalise what you see on TSR. Tell us a little about yourself to get started.

  • The Student Room, Get Revising and Marked by Teachers are trading names of The Student Room Group Ltd.

    Register Number: 04666380 (England and Wales), VAT No. 806 8067 22 Registered Office: International House, Queens Road, Brighton, BN1 3XE

    Quick reply
    Reputation gems: You get these gems as you gain rep from other members for making good contributions and giving helpful advice.