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    Hey!

    Im due to start University this September (2016)
    I've been in the metal health services since age 12.
    I am now 19 and In the Uk once you turn 18 you are transferred to adult services..

    To cut a LONG story short, I HAVE been diagnosed wrong up till the last 6 months.
    They are doing further 'tests' as such and different methods of medication..
    Was just wondering if there is any suffered of 'Schizo-affective disorder'
    And how long it took you to receive a permeant diagnosis and what this includes..
    (what medication, therapy was recommend)
    Ill be grateful for any response!!

    If you feel better private messaging me please do so!
    It would help me out a lot if i understood a bit more
    :^_^:
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    (Original post by Theresaannx)
    Hey!

    Im due to start University this September (2016)
    I've been in the metal health services since age 12.
    I am now 19 and In the Uk once you turn 18 you are transferred to adult services..

    To cut a LONG story short, I HAVE been diagnosed wrong up till the last 6 months.
    They are doing further 'tests' as such and different methods of medication..
    Was just wondering if there is any suffered of 'Schizo-affective disorder'
    And how long it took you to receive a permeant diagnosis and what this includes..
    (what medication, therapy was recommend)
    Ill be grateful for any response!!

    If you feel better private messaging me please do so!
    It would help me out a lot if i understood a bit more
    :^_^:
    I was diagnosed with schizoaffective disorder (depressive type) a few years ago. Schizoaffective disorder is basically a mood disorder and a psychotic disorder mixed together. It took 5 years for them to decide that's what was going on (I've since be re-diagnosed with something different). In that time I tried a number of antidepressants and antipsychotics. I was meant to have therapy (CBT) but it never really happened (first she was on maternity leave, then she didn't come back and no one replaced her). I no longer take antidepressants as my depression has lifted (which is awesome) but I'm still taking antipsychotics and I dunno, sometimes they help, other times my symptoms break through.
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    (Original post by Sabertooth)
    I was diagnosed with schizoaffective disorder (depressive type) a few years ago. Schizoaffective disorder is basically a mood disorder and a psychotic disorder mixed together. It took 5 years for them to decide that's what was going on (I've since be re-diagnosed with something different). In that time I tried a number of antidepressants and antipsychotics. I was meant to have therapy (CBT) but it never really happened (first she was on maternity leave, then she didn't come back and no one replaced her). I no longer take antidepressants as my depression has lifted (which is awesome) but I'm still taking antipsychotics and I dunno, sometimes they help, other times my symptoms break through.
    Thanks for your quick reply!
    Ive been diagnosed wrong for 7 years now..
    So when they said Schizoaffective disorder it just scared me slightly as all the tablets they've put me on have really affected my health and I've been on a waiting list 2 years now for CBT and mood therapy etc..
    Its getting annoying now that they won't just decide
    Thank you!
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    (Original post by Theresaannx)
    Hey!

    Im due to start University this September (2016)
    I've been in the metal health services since age 12.
    I am now 19 and In the Uk once you turn 18 you are transferred to adult services..

    To cut a LONG story short, I HAVE been diagnosed wrong up till the last 6 months.
    They are doing further 'tests' as such and different methods of medication..
    Was just wondering if there is any suffered of 'Schizo-affective disorder'
    And how long it took you to receive a permeant diagnosis and what this includes..
    (what medication, therapy was recommend)
    Ill be grateful for any response!!

    If you feel better private messaging me please do so!
    It would help me out a lot if i understood a bit more
    :^_^:
    Hi,

    Sorry to hear of everything you've been through since such a young age

    I have a diagnosis of schizoaffective disorder, depressive type (as opposed to mixed type or bipolar type). I have had this diagnosis since October 2011 and it fits very well with my symptoms, so I am fine with that being my diagnostic label.

    I first entered the mental health services in January 2010. I had an initial psychiatric assessment with a psychiatrist in London on the NHS. That psychiatrist thought I had some kinda psychosis but wasn't too sure, and referred me to a psychiatric service near my uni, to set up a joint care plan. The service near my uni discharged me after doing their own assessment, saying that I was not psychotic at all. (Despite the fact I was what we now know was a major psychotic episode at the time, lol.)

    I returned to the London mental health service in July 2010. So it took about 15 months between me entering the services properly and receiving a diagnosis of schizoaffective disorder, depressive type. I think the reason for this is because, as mentioned, it is a disorder encompassing both mood and psychotic symptoms. Also things are far less clear cut than a diagnosis of schizophrenia or bipolar disorder (though those can take a while to diagnose too - obviously these things vary from patient to patient). It is also less common than either of those two disorders just mentioned.

    I began trialling medication for suspected "severe depression with psychotic symptoms" around December 2010, so long before receiving my current diagnosis. I've been on the antipsychotic Aripirazole (Abilify) since around August or early September 2011 and have been on that for about 4.5 years now. It reduced the (re)occurence and severity of my symptoms by about 80%, so it was def the right med for me! Around the same time, I started taking the antidepressant Sertraline (Zoloft, I think, is its other name). That works pretty well for me too. I was taken off it for a few months to try Venlafaxine but that did not agree with me and I asked to be put back onto Sertraline.

    In terms of therapy, I sat on about 9 months (so much shorter than you, but still rather long, given my needs) on an NHS waiting list for Acceptance and Commitment Therapy (ACT). ACT is derived from cognitive behavioural therapy (CBT) and encompasses/is based on mindfulness.

    If you have any further questions, I'd be happy to answer them here :yes:
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    (Original post by The_Lonely_Goatherd)
    Hi,

    Sorry to hear of everything you've been through since such a young age

    I have a diagnosis of schizoaffective disorder, depressive type (as opposed to mixed type or bipolar type). I have had this diagnosis since October 2011 and it fits very well with my symptoms, so I am fine with that being my diagnostic label.

    I first entered the mental health services in January 2010. I had an initial psychiatric assessment with a psychiatrist in London on the NHS. That psychiatrist thought I had some kinda psychosis but wasn't too sure, and referred me to a psychiatric service near my uni, to set up a joint care plan. The service near my uni discharged me after doing their own assessment, saying that I was not psychotic at all. (Despite the fact I was what we now know was a major psychotic episode at the time, lol.)

    I returned to the London mental health service in July 2010. So it took about 15 months between me entering the services properly and receiving a diagnosis of schizoaffective disorder, depressive type. I think the reason for this is because, as mentioned, it is a disorder encompassing both mood and psychotic symptoms. Also things are far less clear cut than a diagnosis of schizophrenia or bipolar disorder (though those can take a while to diagnose too - obviously these things vary from patient to patient). It is also less common than either of those two disorders just mentioned.

    I began trialling medication for suspected "severe depression with psychotic symptoms" around December 2010, so long before receiving my current diagnosis. I've been on the antipsychotic Aripirazole (Abilify) since around August or early September 2011 and have been on that for about 4.5 years now. It reduced the (re)occurence and severity of my symptoms by about 80%, so it was def the right med for me! Around the same time, I started taking the antidepressant Sertraline (Zoloft, I think, is its other name). That works pretty well for me too. I was taken off it for a few months to try Venlafaxine but that did not agree with me and I asked to be put back onto Sertraline.

    In terms of therapy, I sat on about 9 months (so much shorter than you, but still rather long, given my needs) on an NHS waiting list for Acceptance and Commitment Therapy (ACT). ACT is derived from cognitive behavioural therapy (CBT) and encompasses/is based on mindfulness.

    If you have any further questions, I'd be happy to answer them here :yes:

    Thank you!
    I was on Ariprozole didn't do nothing for me, did not decrease my symptoms the slightest
    I am now on Queitapine ( Seroquel)
    It worked for the first 2 months of taking it well sort of it just made me very sleepy and was a sedative sort of affect..
    None of the medications they have tried has a lasting effect

    I have tried numerous ones x
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    (Original post by Theresaannx)
    Thank you!
    I was on Ariprozole didn't do nothing for me, did not decrease my symptoms the slightest
    I am now on Queitapine ( Seroquel)
    It worked for the first 2 months of taking it well sort of it just made me very sleepy and was a sedative sort of affect..
    None of the medications they have tried has a lasting effect

    I have tried numerous ones x
    This is the hugely tricky thing about meds - different ones and even different combinations work for different people :sadnod:

    I do hope you are able to find a med combination that works for you soon! Suffering all these symptoms is very scary and draining :console: :sadnod: :hugs:
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    (Original post by Theresaannx)
    Thank you!
    I was on Ariprozole didn't do nothing for me, did not decrease my symptoms the slightest
    I am now on Queitapine ( Seroquel)
    It worked for the first 2 months of taking it well sort of it just made me very sleepy and was a sedative sort of affect..
    None of the medications they have tried has a lasting effect

    I have tried numerous ones x
    On of the main side effects of Quetiapine is sedation but it does wear off.
    Iwas on it for paranoid episodes (no psychosis) and i found it did work, im no longer on it as im currently clear of any paranoia though thats not to say i wont be in the future

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    (Original post by Sabertooth)
    I was diagnosed with schizoaffective disorder (depressive type) a few years ago. Schizoaffective disorder is basically a mood disorder and a psychotic disorder mixed together. It took 5 years for them to decide that's what was going on (I've since be re-diagnosed with something different). In that time I tried a number of antidepressants and antipsychotics. I was meant to have therapy (CBT) but it never really happened (first she was on maternity leave, then she didn't come back and no one replaced her). I no longer take antidepressants as my depression has lifted (which is awesome) but I'm still taking antipsychotics and I dunno, sometimes they help, other times my symptoms break through.
    What if it's all a lie and you are just disappointed with life because it doesn't have much to offer, and that's why your mind is pissed off? Because it cannot fulfill its potential? No, I'm not one of those 'big pharma is eviiiil disorders don't exist drugs are bad' idiots but this is the conclusion I've come to when it comes to my own problems. It's not me, it's the world?
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    (Original post by Ciel.)
    What if it's all a lie and you are just disappointed with life because it doesn't have much to offer, and that's why your mind is pissed off? Because it cannot fulfill its potential? No, I'm not one of those 'big pharma is eviiiil disorders don't exist drugs are bad' idiots but this is the conclusion I've come to when it comes to my own problems. It's not me, it's the world?
    Where did you get that I am "disappointed with life"? :hmmmm:
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    (Original post by Sabertooth)
    Where did you get that I am "disappointed with life"? :hmmmm:
    You might subconsciously be disappointed with your life. Maybe you don't even realise it.
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    (Original post by Ciel.)
    You might subconsciously be disappointed with your life. Maybe you don't even realise it.
    Maybe subconsciously I might fancy my mother.
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    (Original post by Sabertooth)
    Maybe subconsciously I might fancy my mother.
    Nah. You are too cute for such depravity.
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    (Original post by Ciel.)
    What if it's all a lie and you are just disappointed with life because it doesn't have much to offer, and that's why your mind is pissed off? Because it cannot fulfill its potential? No, I'm not one of those 'big pharma is eviiiil disorders don't exist drugs are bad' idiots but this is the conclusion I've come to when it comes to my own problems. It's not me, it's the world?
    Im PREETY SURE my hallucinations and auditory hallucinations
    plus mood swings plus delusions etc etc
    is not because I'm disappointed in life...
    I have a chemical in balance in my brain, scientifically proven..
    Im Happy i have achieved so much..
    so im pretty sure I'm not disappointed in life
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    (Original post by PandaWho)
    On of the main side effects of Quetiapine is sedation but it does wear off.
    Iwas on it for paranoid episodes (no psychosis) and i found it did work, im no longer on it as im currently clear of any paranoia though thats not to say i wont be in the future

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    Thanks for your reply
    My quetipine is not for my paranoia
    I have a range of symptoms ...
    But because of previous medication my kidneys and liver is slightly damaged so i have to be careful..
    My sedation effect wore off two weeks into using the medication and sadly it has no helped the slightest
    My symptoms are on going 24'7 ..
    If i have a 'episode' i am recommend to go into hospital because of the seriousness of an episode due to my symptoms go maximum and i can't bring my self back down to reality..
    its hard to explain
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    (Original post by Theresaannx)
    Im PREETY SURE my hallucinations and auditory hallucinations
    plus mood swings plus delusions etc etc
    is not because I'm disappointed in life...
    I have a chemical in balance in my brain, scientifically proven..
    Im Happy i have achieved so much..
    so im pretty sure I'm not disappointed in life
    I wasn't talking to you. But I doubt that anyone has ever measured the chemicals in your brain, so no it is not scientifically proven that you have a chemical imbalance in your brain...
 
 
 
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