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    Hi,

    Just wanted to if there are any people on TRS who have vitiligo. I've recently got mark on both my hands and near my nose. If you do have it how do you cope with it. Is it treatable? Are there any people who've had it and now don't?

    Thanks
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    (Original post by CosmicAero)
    Hi,

    Just wanted to if there are any people on TRS who have vitiligo. I've recently got mark on both my hands and near my nose. If you do have it how do you cope with it. Is it treatable? Are there any people who've had it and now don't?

    Thanks
    I haven't got it myself but know a few people who do. There are some options for treatment so it might be worth going to your GP to talk about it if it is something that bothers you.

    Here is quite a good leaflet which explains it well.

    http://patient.info/health/vitiligo-leaflet
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    (Original post by CosmicAero)
    Hi,

    Just wanted to if there are any people on TRS who have vitiligo. I've recently got mark on both my hands and near my nose. If you do have it how do you cope with it. Is it treatable? Are there any people who've had it and now don't?

    Thanks
    Hey, I've had vitiligo since I was born (only a couple of spots initially) but it only really manifested a couple of years ago. I went to my GP (two years ago now) and was referred to a dermatologist, the treatment proposed however required several visits a week for a while and it just wasn't worth it. Instead I was referred to a red cross center and funnily spent my 21st birthday trying out camouflage creams haha. I actively keep looking for updates on treatments and I truly believe that something is on the horizon, there seem to have been several breakthroughs both in successful treatment with drugs and in the understanding of it. I'm lucky that I'm fair skinned so it doesn't bother me, however the camouflage cream really improves peoples outlooks so this is always an option. People report all over the internet of certain remedies working (I.e. I once tried ginkgo biloba for several months, and a pharmacist friend was in hysterics after she pointed out that it's used primarily for erectile dysfunction!). I guess in a really convoluted way what I'm trying to say is there are ways of overcoming the social impediment and treatments do work, just no one really knows how, YET. With regards to the sun and going out, I find that staying under the shade from 11-3 and a bit of factor 50 is fine - when it's hot of course. In your case though, I guess as the patches have just appeared this is the stage to avoid burning them in the sun.

    I divulged massively but hopefully someone else may also read this if needs be. All the best, feel free to ask me anything else.

    Regards.
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    Hey, I've had a patch of vitiligo since birth too. It's always stayed the same size since birth and hasn't spread, just grown with me. It's a few inches wide. I don't believe it is treatable, and I haven't heard of it just going.
 
 
 
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