Your experiences with Alzheimer's disease

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TSR George
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Hello.
I'd really appreciate it if anyone can tell me, anonymously or otherwise, their experiences with Alzheimer's disease if they have been affected by the condition (either by a relative or friend, as it's unlikely anyone here has Alzheimer's themselves). Your relationship to the person with Alzheimer's isn't too important, neither is it important what aspect you discuss (caring for some one with the disease, finding out someone has Alzheimer's, watching their memory fade before they were properly diagnosed, etc.).
If anyone has any stories about seeing someone begin to show symptons of the disease, as in before it properly progresses and is diagnosed, I'd really appreciate you telling me. As I said, anything is welcome.
Thank you so much.
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furryface12
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(Original post by LDS16)
Hello.
I'd really appreciate it if anyone can tell me, anonymously or otherwise, their experiences with Alzheimer's disease if they have been affected by the condition (either by a relative or friend, as it's unlikely anyone here has Alzheimer's themselves). Your relationship to the person with Alzheimer's isn't too important, neither is it important what aspect you discuss (caring for some one with the disease, finding out someone has Alzheimer's, watching their memory fade before they were properly diagnosed, etc.).
If anyone has any stories about seeing someone begin to show symptons of the disease, as in before it properly progresses and is diagnosed, I'd really appreciate you telling me. As I said, anything is welcome.
Thank you so much.
Not alzheimers specifically but I do have some experience of dementia. One of my grandfathers has vascular dementia which has been getting worse over the last few years. It's really his routine that keeps him going but he's been getting increasingly confused and distressed and unable to look after himself. We eventually managed to move him into a nursing home just after christmas which has helped a lot, they do have a specialist dementia unit which it was agreed he'd be better off not in for various historical reasons, and also because he is no danger to himself or other people as long as he doesn't leave the grounds on his own, which he understands. Whilst he is getting worse (it tends to come in sudden, sharp declines) he doesn't seem to notice it too much and whilst upsetting for us that's a lot better for him.

My other grandfather doesn't have a formal diagnosis yet but we are also fairly certain has some form of dementia in addition to his physical illnesses. He gets very violent towards my grandma and increasingly other people too- partly it is through frustration at not being able to do things but there's more to it than that. When he does this it's like flipping a switch- one moment he is the person we've always known and loved, the next he is shouting, getting violent and doing other things. This eventually ends very suddenly and he goes back to normal, apparently with no recollection of what just happened. These episodes are gradually becoming longer, more intense and more frequent. Outside of this, he pretends to not remember things he clearly does to try and get out of things, it's fairly obvious when he actually doesn't though and upsets him a lot.

I've described those very badly but oh well, might come back and add more to it later! You might get some better replies in the main health forum, would you like me to move this there?
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furryface12
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(Original post by LDS16)
Thank you very much for responding. It must take a lot to keep yourself together when interacting and looking after your grandfathers. I'm equally interested in all different types/aspects of dementia really, I mainly stated Alzheimer's as that was the thing I'd researched the most. If that'd help then yeah I'd appreciate you moving the thread Thank you again for the detailed reply, I appreciate it a lot
I don't see them as much as I'd like with geography being an issue and other stuff going on but it is, seeing the effect on my parents too. In a way I find it easier with the one that turns violent as when he 'flips' it feels like a different person and I can separate that from my grandad if that makes sense. The other one I struggle with as it feels like we're slowly losing him and he is himself.

It is a truly horrible disease, very interesting though as you say! Will move it over for you now


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Anonymous #1
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Report 4 years ago
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(Original post by LDS16)
Hello.
I'd really appreciate it if anyone can tell me, anonymously or otherwise, their experiences with Alzheimer's disease if they have been affected by the condition (either by a relative or friend, as it's unlikely anyone here has Alzheimer's themselves). Your relationship to the person with Alzheimer's isn't too important, neither is it important what aspect you discuss (caring for some one with the disease, finding out someone has Alzheimer's, watching their memory fade before they were properly diagnosed, etc.).
If anyone has any stories about seeing someone begin to show symptons of the disease, as in before it properly progresses and is diagnosed, I'd really appreciate you telling me. As I said, anything is welcome.
Thank you so much.
My grandma is very quickly deteriorating into dementia (I'm not really sure about the difference between Alzheimer's and dementia (isn't Alzheimer's a type of dementia?). A year ago or so she was perfectly fine, but now it's like everyday she gets even worse. She recently had her driving license taken off her after driving on the wrong side of the motorway. She is often paranoid (accusing someone of stealing her keys when they were in the washing machine) and extremely forgetful. She thinks her younger sister (who is about 5 years younger) is her daughter and altered her will to reflect this. My mum feels really hurt about this. She goes over weekly and sometimes she's recognized but other times my grandma has no idea who my mum is. She also recently ended up in hospital after overdosing on her meds - she has one of those med boxes and went across rather than down so took 7 days breakfast meds. It was really scary but, thankfully, she was ok. I recently visited my mum and asked her to take me to my grandma's place (I live a long way from both of them) but my mum said she won't recognize me and may actually feel scared by my presence. She's 89 and I know she's not going to be around much longer but it's like I didn't even get to say goodbye.
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