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Do any of you guys have diabetes?

Type 1, aka, insulin controlled, juvenile diabetes.

How do you cope? Are you well controlled? At sixth form/college/uni/school?

Although *apparently* type 1 is common in teenagers, it doesn't always seem it!

I've had it since I was 12, but my control unfortunately is not what it is, but I'm trying to get my control back.. prooving hard, though! Anyway, feel free to share experiences..

Reply 1

Jsk

1

a couple of my mates have it. One on tablets, the other on insulin injections. they seem to be ok with it.

My nan is 68 and only just have got it and hers is controlled if she eats when she has her tablets and having them at egular times. Also, she has lost lots of weight and to keep track of her sugar leels, she does the blood test things and records it all to keep track

Reply 2

her-own-wings

OP

Jsk

a couple of my mates have it. One on tablets, the other on insulin injections. they seem to be ok with it.

My nan is 68 and only just have got it and hers is controlled if she eats when she has her tablets and having them at egular times. Also, she has lost lots of weight and to keep track of her sugar leels, she does the blood test things and records it all to keep track

Wow, I've never heard of a teen on tablets for it. That's pretty rare.

Aw, unfortunately it's reaaaallly common in older people. Shame really.

Reply 3

Xx Tomásíona - Mháire xX

14

her-own-wings

Type 1, aka, insulin controlled, juvenile diabetes.

How do you cope? Are you well controlled? At sixth form/college/uni/school?

Although *apparently* type 1 is common in teenagers, it doesn't always seem it!

I've had it since I was 12, but my control unfortunately is not what it is, but I'm trying to get my control back.. prooving hard, though! Anyway, feel free to share experiences..

Hiya I don't have it, but my little cousin does. She was diagnosed with Type 1 diabetes when she was 2 years old. It's extremely hard to control for her as she doesn't understand what she is and isn't allowed to eat and the sad thing is, is that she absolutely loves food.

I babysat her one night and it scared the absolute life out of me. She was being sick everywhere and her blood sugar levels went down so low that she started to pass out. That had to be the most scariest night of my life. Especially since I had to ring for the ambulance and keep making her drink lucozade, which is kept for emergencies. It was horrible :frown:

School for her, is hard because there's no one really qualified to come and give her, her injection at a certain time so one of her teachers have to take her across to the secondary school which is just across the road to get her insulin injected.

Reply 4

Afterglow

my dad has it with insulin injections. he copes it rather well but sometimes not so.

a friend of mine also has it and it can be a bit tough for her with the food in school but she tries to think of what she eats and such.

Reply 5

latentcorpse

12

yeah i'm on a basil bolus 5 injections a day (usually its 4 but i eat 4/5 meals a day cause im quite sporty so i was told to up my injections)

im doing better now when i was diagnosed at 16 my hbA1c was 10 or 11 for first wee while but now its down to 7.2 (im 19 now) and thats a few days ago - supposedly pretty good for a teenager. target is 7.0 - ill get there eventually - im quite good with the healthy eating though

Reply 6

cpj1987

15

My Mum's had it since she was 8, and as far as I know, never had any real problems controlling it as a teenager, aside from eating chocolate in school to keep her sugar levels up if required.
But then...they didn't let her do sport, and sent her home at the slightest sign of illness...

Reply 7

her-own-wings

OP

latentcorpse

yeah i'm on a basil bolus 5 injections a day (usually its 4 but i eat 4/5 meals a day cause im quite sporty so i was told to up my injections)

im doing better now when i was diagnosed at 16 my hbA1c was 10 or 11 for first wee while but now its down to 7.2 (im 19 now) and thats a few days ago - supposedly pretty good for a teenager. target is 7.0 - ill get there eventually - im quite good with the healthy eating though

Oh man that must be harsh. :[ I'm on two a day and I struggle to manage to take two.

Reply 8

LaBellaVita

1

i've had diabetes since i was 15, im 17 now. i'm on 4 a day as well, with every meal really and then one at night. my control has fortunately been good. never had a really really low blood sugar, lowest has been 2.7 i think. i've embraced diabetes as a part of my life, and personally think its made me a better person. i was literally days away from death before i was initially admitted to hospital, so now i try make each day count :smile:

its hard, but i've got a couple of good friends i met online with diabetes who support me when i'm down.

Reply 9

her-own-wings

OP

LaBellaVita

i've had diabetes since i was 15, im 17 now. i'm on 4 a day as well, with every meal really and then one at night. my control has fortunately been good. never had a really really low blood sugar, lowest has been 2.7 i think. i've embraced diabetes as a part of my life, and personally think its made me a better person. i was literally days away from death before i was initially admitted to hospital, so now i try make each day count :smile:

its hard, but i've got a couple of good friends i met online with diabetes who support me when i'm down.

Ohh that's great! How/where did you meet them? I could do with some support like that. :/

Reply 10

LaBellaVita

1

www.childrenwithdiabetes.com , there is a chat room thing for teens. i met one girl through my nurse too. now i'm 17 i go to a teen clinic every 3 months to meet up with other diabetic teens, maybe you could look into that if your hospital does it. websites like these are pretty good too :smile:

Reply 11

her-own-wings

OP

LaBellaVita

www.childrenwithdiabetes.com , there is a chat room thing for teens. i met one girl through my nurse too. now i'm 17 i go to a teen clinic every 3 months to meet up with other diabetic teens, maybe you could look into that if your hospital does it. websites like these are pretty good too :smile:

Acee. :] I'm 17 too. Well, next month. Being diagnosed at 15 must have been tough. What do you find hardest, if you don't mind me asking?

Reply 12

rachd_22

13

my brother got diagnosed last year (at 13).
he's on 2 injections, 3 meals and 3 snacks a day.

he's pretty good at controlling it, although he did drop to 1.9 recently which pretty much totally freaked me out as there was only me and him in. its ok though, i've never had to do anything apart from feed him biscuits.

Reply 13

who knows?

I have had diabetes since age 8 (I am now 17) and moved from 2 injections a day to 4 as its easier to control this way, it was a pain in the backside at the beginning but the longer you live with it the easier it gets and i rarely think about it now (except when doing injections :wink:

)

Reply 14

LaBellaVita

1

her-own-wings

Acee. :] I'm 17 too. Well, next month. Being diagnosed at 15 must have been tough. What do you find hardest, if you don't mind me asking?

hmm i'm not sure what i find hardest really. injections don't bother me at all, whenever you say to someone 'i have diabetes' the first thing they say is 'omg how do you inject yourself everyday'. but theres no way around injecting yourself so you just get on with it. alot of my friends stopped being my friend after i was diagnosed. they hated all the extra attention and fuss that was made over me at school and thought somehow i was faking it :s-smilie:

i think thats the hardest thing. making people understand what diabetes is and how it affects you.

Reply 15

her-own-wings

OP

LaBellaVita

hmm i'm not sure what i find hardest really. injections don't bother me at all, whenever you say to someone 'i have diabetes' the first thing they say is 'omg how do you inject yourself everyday'. but theres no way around injecting yourself so you just get on with it. alot of my friends stopped being my friend after i was diagnosed. they hated all the extra attention and fuss that was made over me at school and thought somehow i was faking it :s-smilie:

i think thats the hardest thing. making people understand what diabetes is and how it affects you.

Yeaah totally. I always get that! 'Omg how do you inject?! Does it hurt?' When I try to explain it doesn't hurt at all they're like 'GOD I'm terrified of needles, I wouldn't do it!' But it's difficult explaining that there IS no way around it.

I find my weight the hardest.. when I was diagnosed I lost a stone in 2 weeks and then put it RIGHT back on just as quickly. Although I was only 12 it really affected me because I continued to put on weight; I wanted to eat junk food like my friends and I'd always had a fast metabolism and combined with insulin it was a no go situation! Unfortunately I started cutting back on insulin to keep my weight down and I've done this for a few years now. I know how dangerous it is, I've been in hospital on and off but it's addictive.. I guess you could say that I've forgotten how to be diabetic?! This is why I'm asking how you guys cope. I'm trying to accept that this disease is a part of me and until a cure is found, it's gonna stay a part of me.

It's really sad, because, I'm slim/skinny, but I'm SO unhealthy. My hair falls out, I regularly get acidic (ketones) and I never have any energy. I'm always missing out on fun stuff with my friends because I just wanna sleep/drink. Whatever you guys do, never ever ever cut insulin! Don't get in the cycle. I'm sure you're smart enough not to, anyways.

Reply 16

Herr Stamper

1

It runs in the family, so either my brother or I or both will get it at some stage i imagine. We've always known this so wont be a shock.

Reply 17

her-own-wings

OP

Frio3535

It runs in the family, so either my brother or I or both will get it at some stage i imagine. We've always known this so wont be a shock.

Type 2?
If you stay fit and healthy and keep your weight under control you can really cut the risk of inheriting it.

Reply 18

Herr Stamper

1

Im sad i dont know what type it is. My dad injects insulin, type 1?. Yeh im fit and healthy but then so is my dad and my grandad, neither smoked, drunk, both tho have had hard lives so i still think i could get it.

Reply 19

AverageGuyOnTheStreet

9

I've had it since I was 10 (now 20). I've never been able to cope. I was bullied because of it when I was first diagnosed. Then I've had to contend with my subconscious telling me to stop taking my insulin (as if I wasn't worthy or something). 7 years later, I listened and ended up in hospital missing loads of time out of uni. Since then it was my conscious thoughts telling me to do it, when I listened to that once. Was nearly as bad. But now the illness I have that caused me to listen is more under control so I don't feel as bad as I did then. But I dropped a clothes size last November because of my first admission. I've had lows as well (though last one was when I was 14) but I find them a lot more scary. If anyone does have any coping mechanisms then I would really like to know because I don't have one at all.

Do any of you guys have diabetes?

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