I had Glandular Fever at the end of August 2015, and was incredibly fatigued after.
I missed a lot of school, my attendance was between 30-40% and whilst I still did A Levels, I only got BCD and am now resitting them at tech/college (and doing an extra one)
I've been in and out of doctors, originally I was told post viral fatigue, and all my blood tests came back fine. Second opinion I was sent to a cardiologist who seemed to dismiss me and say I was fine and nothing was wrong, just post viral.
It's over a year later, I'm seeing a different GP who has retested me and has said nothing in bloods. I seem to now be lactose intolerant, and the new GP is waiting until I've seen the mental health team so he can rule out side effects of my ADD meds as the cause for my symptoms, and then he will refer me with the possibility of looking into other areas - I think fibromyalgia was mentioned? but he hopes it won't come to that.
I know what CFS/ME is but in Northern Ireland there isn't a specialist or anyone with any knowledge who could diagnose me!
On good days, at the end of the day I feel like I'm tired after having a busy day even if I haven't. On bad days, I struggle to get out of bed, walking even small distances seems to drain me and I feel lethargic and like my legs are heavy and everything is a lot of effort.
On inbetween days, I can cope, but it is feeling like I'm doing everything on 4/5 hours sleep.
When I push myself too much, I can get extremely painful migraines which can last 2/3 days, I have one atm which came on Tuesday night and I was at the point I was so tired I wasn't sure where I was at times, my fingers went numb/fell asleep and my eyes wouldn't focus. I've not had a migraine so bad in a long time.
My feet and hands are always cold, my feet especially will go blue even with thick socks when it's very cold.
I want to be in tech/college, I want to get my A Levels finally and get into a good uni of my choice, I want to be able to see my friends and not feel drained.
I currently am not getting any treatment for symptoms or fatigue, I've tried changing my diet but when things are bad I crave sugar or something to give me some energy. I have a horse, and have had to find sharers so I only see him 3 days a week, and it can go from being easy and enjoyable to a chore because I feel so exhausted and worn out doing simple tasks with him. I also seem to ache all over for no reason, my skin will break out horrendously when I'm tired.
It is frustrating. Mentally, I am frustrated rather than depressed and I'm not avoiding college because I don't want to go, but because physically I feel like I can't despite mentally wanting to be there. I want to be sporty and doing things, but I can't always do it. It is so, so frustrating, especially as I seem to be getting nowhere with doctors or any help. College can only do so much because there is no diagnosis!