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Would you rather... Pain vs Sleepiness/Doziness/Low Energy watch

  • View Poll Results: Would you rather ease pain or sleepiness/doziness/low energy?
    Less pain but more fatigue/brain fog
    1
    14.29%
    More pain but less fatigue/brain fog
    6
    85.71%

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    Would you rather:
    - be in less pain with constant sleepiness/doziness/low energy/brain fog
    OR
    - be in more pain but feel a little more yourself and have an extra push of energy so you can be a bit more active in everyday life and contribute more?

    So I've been ill for ages and had a lot of complications and conditions with my lung, but there isn't anything left to treat an illness. Instead I'm just on a lot of different medications to deal with symptoms; three of which are for pain. The first is preventative, the second is for immediate relief and the third is for the nerves. We have tried two different meds for my nerves because I have so many symptoms now that they wanted to make sure the first option wasn't contributing to them, and when we confirmed it wasn't they still wanted to put me on something else in the same family in case it could help take the edge off things. It didn't, and it also did nothing for the pain :rolleyes: now I've completely come off of it with the anticipation of trying a third. This has all taken a good 6 months and to know if something works would be another 4-6 weeks; time that is full of dealing with side effects while you adjust and which you can't guarantee will disappear when your body settles into having it regularly in your blood (worse when alongside all the other meds I'm on).

    The thing is right now I have extra energy and have felt restless/bored for the first time in as long as I can remember, not that I can do a lot more compared to a normal person but when I'm on the meds there's barely enough energy to do the little I do now. I've lost the ability to do a lot of things since I became ill, to the point where working 10-12 hours a week is the most I can do. So do I go back down the same path or not take on a new med? The pain won't go away completely but with the extra meds it can get a lot better, and conversely the inability to do everything I want can't be completely fixed but there is a noticeable difference when not on the nerve meds...

    Of course I'm not going to base my decision on a TSR poll but I'm wondering what an outside perspective would be, so thanks!
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    (Original post by Jennie1987)
    Would you rather:
    - be in less pain with constant sleepiness/doziness/low energy/brain fog
    OR
    - be in more pain but feel a little more yourself and have an extra push of energy so you can be a bit more active in everyday life and contribute more?

    So I've been ill for ages and had a lot of complications and conditions with my lung, but there isn't anything left to treat an illness. Instead I'm just on a lot of different medications to deal with symptoms; three of which are for pain. The first is preventative, the second is for immediate relief and the third is for the nerves. We have tried two different meds for my nerves because I have so many symptoms now that they wanted to make sure the first option wasn't contributing to them, and when we confirmed it wasn't they still wanted to put me on something else in the same family in case it could help take the edge off things. It didn't, and it also did nothing for the pain :rolleyes: now I've completely come off of it with the anticipation of trying a third. This has all taken a good 6 months and to know if something works would be another 4-6 weeks; time that is full of dealing with side effects while you adjust and which you can't guarantee will disappear when your body settles into having it regularly in your blood (worse when alongside all the other meds I'm on).

    The thing is right now I have extra energy and have felt restless/bored for the first time in as long as I can remember, not that I can do a lot more compared to a normal person but when I'm on the meds there's barely enough energy to do the little I do now. I've lost the ability to do a lot of things since I became ill, to the point where working 10-12 hours a week is the most I can do. So do I go back down the same path or not take on a new med? The pain won't go away completely but with the extra meds it can get a lot better, and conversely the inability to do everything I want can't be completely fixed but there is a noticeable difference when not on the nerve meds...

    Of course I'm not going to base my decision on a TSR poll but I'm wondering what an outside perspective would be, so thanks!
    which option do you feel gives you the best quality of life? I suppose i would want to have more energy even if it meant being in more pain
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    Difficult question. I think it comes down to what impact both have. I went for more pain since most of the pain i've dealt with has been managable with painkillers, while mental effects have made me feel more limited and less like myself.
    I think I would personally be happier being mentally capable and still fully myself even if i were physically limited by pain. At least that way I could still have something of a life rather than being stuck in bed all day and too tired to do anything- even watch tv.
    It was a difficult one to answer though and is mostly based on the fact that I personally feel limited by tiredness and fog while I don't usually feel so limited by pain.

    I think if you are wanting to make a decision you'll benefit from looking back at your experiences with both and making a bit of a pros and cons list for each. Which limits you more socially, which makes you feel generally more unhappy, which limits your work more, are there things you can do with one but not the other? I'm personally afraid to drive while i'm foggy/ tired which I think would be a big decider for me in your position. At the same time there may be a hobby you have that you are unable to manage through pain.
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    (Original post by Jennie1987)
    Would you rather:
    - be in less pain with constant sleepiness/doziness/low energy/brain fog
    OR
    - be in more pain but feel a little more yourself and have an extra push of energy so you can be a bit more active in everyday life and contribute more?

    So I've been ill for ages and had a lot of complications and conditions with my lung, but there isn't anything left to treat an illness. Instead I'm just on a lot of different medications to deal with symptoms; three of which are for pain. The first is preventative, the second is for immediate relief and the third is for the nerves. We have tried two different meds for my nerves because I have so many symptoms now that they wanted to make sure the first option wasn't contributing to them, and when we confirmed it wasn't they still wanted to put me on something else in the same family in case it could help take the edge off things. It didn't, and it also did nothing for the pain :rolleyes: now I've completely come off of it with the anticipation of trying a third. This has all taken a good 6 months and to know if something works would be another 4-6 weeks; time that is full of dealing with side effects while you adjust and which you can't guarantee will disappear when your body settles into having it regularly in your blood (worse when alongside all the other meds I'm on).

    The thing is right now I have extra energy and have felt restless/bored for the first time in as long as I can remember, not that I can do a lot more compared to a normal person but when I'm on the meds there's barely enough energy to do the little I do now. I've lost the ability to do a lot of things since I became ill, to the point where working 10-12 hours a week is the most I can do. So do I go back down the same path or not take on a new med? The pain won't go away completely but with the extra meds it can get a lot better, and conversely the inability to do everything I want can't be completely fixed but there is a noticeable difference when not on the nerve meds...

    Of course I'm not going to base my decision on a TSR poll but I'm wondering what an outside perspective would be, so thanks!
    I'd take pain (as long as it's not severe pain) over brain fog anytime. Unfortunately, I don't really have any choice, most of the time I feel like my brain is just filled with...cotton. It's awful. I'm just not the same person anymore.
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    Its so difficult, neither one completely eradicates issues and neither one is going to get me back to where I was beforehand. I appreciate the responses though, its really helping me to look at things in a different way. And I always love a pro and con list
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    This is a really tough decision. I'd go for pain I think, I have CFS though which possibly skews it and as I'm about the world's worst person at managing it probably not the best to advise! I find it helpful to think about physical vs mental effects quite often, for example I'm in a band which really messes me up physically but mentally I'd be in a far worse place without it. Same with taking the dog a really short walk just to the end of the street. Whereas going for a five mile run (not that I could ever do that!) would just be a stupid idea whatever the effects. Hope that helps a bit!


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    (Original post by furryface12)
    This is a really tough decision. I'd go for pain I think, I have CFS though which possibly skews it and as I'm about the world's worst person at managing it probably not the best to advise! I find it helpful to think about physical vs mental effects quite often, for example I'm in a band which really messes me up physically but mentally I'd be in a far worse place without it. Same with taking the dog a really short walk just to the end of the street. Whereas going for a five mile run (not that I could ever do that!) would just be a stupid idea whatever the effects. Hope that helps a bit!
    Thanks, CFS is one of my conditions so I totally get what you mean!
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    I have CFS and fibromyalgia. I honestly do not have a clue. This is something I think about a lot, and I'm having to make a decision in a week or so about whether I want to go onto a medication that will increase the fatigue and brain fog symptoms, but help the pain. It's such an impossible decision to make! I think I would lean towards more pain and less fatigue. I think I would be able to do more and I'd be a bit happier. That being said, in my case I think I'm going to try the medication and see how it goes anyway because of course I can just come off it. I really feel for you here :hugs:
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    (Original post by chelseadagg3r)
    I have CFS and fibromyalgia. I honestly do not have a clue. This is something I think about a lot, and I'm having to make a decision in a week or so about whether I want to go onto a medication that will increase the fatigue and brain fog symptoms, but help the pain. It's such an impossible decision to make! I think I would lean towards more pain and less fatigue. I think I would be able to do more and I'd be a bit happier. That being said, in my case I think I'm going to try the medication and see how it goes anyway because of course I can just come off it. I really feel for you here :hugs:
    It's SO hard isn't it? :jumphug: so much of my pro/con list has question marks because it's difficult to accurately compare everything, particularly with a foggier brain. That, and you don't know what the meds may actually help or make worse.

    Snap for fibromyalgia too lol.
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    (Original post by Jennie1987)
    It's SO hard isn't it? :jumphug: so much of my pro/con list has question marks because it's difficult to accurately compare everything, particularly with a foggier brain. That, and you don't know what the meds may actually help or make worse.

    Snap for fibromyalgia too lol.
    Yeah, exactly! I booked a double appointment with my GP once to go over everything and to look into it because he'd suggested it, and still didn't have enough time to go over it :laugh: I think in a way it depends on what is affecting you more at the time as well as to which way you might swing, at least in my case I find that haha

    Really hope you figure it all out and it goes well :hugs:
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    (Original post by chelseadagg3r)
    Yeah, exactly! I booked a double appointment with my GP once to go over everything and to look into it because he'd suggested it, and still didn't have enough time to go over it :laugh: I think in a way it depends on what is affecting you more at the time as well as to which way you might swing, at least in my case I find that haha

    Really hope you figure it all out and it goes well :hugs:
    Thanks, I hope the same for you! :hugs:

    I have so many doctors, and so many mix ups that I've had my GP leave without having me in, taken an hour and a half with a specialist when they didn't have me on their schedule, twice gone in to see a consultant to come back out in 5 minutes because they didn't realise only the head of the department could deal with me because 'I'm too difficult for other doctors to treat' :rofl: that's two sentences put together because she didn't realise just saying I'm too difficult sounds like an attitude problem!

    My current GP definitely wouldn't take a double appointment, last time I saw him he just said that there's nothing left but to see a clinical psychologist and 'come to terms with it'. I'm waiting to see the CFS specialist and some other things but he had nothing to offer in the way of positivity.
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    (Original post by Jennie1987)
    Thanks, I hope the same for you! :hugs:

    I have so many doctors, and so many mix ups that I've had my GP leave without having me in, taken an hour and a half with a specialist when they didn't have me on their schedule, twice gone in to see a consultant to come back out in 5 minutes because they didn't realise only the head of the department could deal with me because 'I'm too difficult for other doctors to treat' :rofl: that's two sentences put together because she didn't realise just saying I'm too difficult sounds like an attitude problem!

    My current GP definitely wouldn't take a double appointment, last time I saw him he just said that there's nothing left but to see a clinical psychologist and 'come to terms with it'. I'm waiting to see the CFS specialist and some other things but he had nothing to offer in the way of positivity.
    I know the feeling! I already have to travel around so far for all of my specialists as well, and then they wanted me to see another! It's so annoying when they all say 'I'll wait and see what your ___ does', and end up all doing nothing because they don't want to step on another specialist's toes :laugh:

    My GP is really good, thankfully. When I got diagnosed though, it was by a paediatrician, and she told me exactly the same. 'Just get over it and move on, there's nothing we can do'. I'm seeing an immunologist in Newcastle at the moment who has special interest in CFS but it's such a trek to get there haha. I hope you get to see a CFS specialist soon! At least they might be able to shed some light on things rather than just being miserable
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    (Original post by chelseadagg3r)
    I know the feeling! I already have to travel around so far for all of my specialists as well, and then they wanted me to see another! It's so annoying when they all say 'I'll wait and see what your ___ does', and end up all doing nothing because they don't want to step on another specialist's toes :laugh:
    Exactly!! Its drawing it all out and even worse when they have to compare time lapse scans, which this year has been all about for me :rolleyes:

    My GP is really good, thankfully. When I got diagnosed though, it was by a paediatrician, and she told me exactly the same. 'Just get over it and move on, there's nothing we can do'. I'm seeing an immunologist in Newcastle at the moment who has special interest in CFS but it's such a trek to get there haha. I hope you get to see a CFS specialist soon! At least they might be able to shed some light on things rather than just being miserable
    For me they all flip flop from being great to not, and saying opposite opinions lol! Wow, I don't even know where I'll be going or the title of who I'll see yet. I hope it's not that far!! It does sound like you're seeing the best person though, that's really awesome.
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    (Original post by Jennie1987)
    For me they all flip flop from being great to not, and saying opposite opinions lol! Wow, I don't even know where I'll be going or the title of who I'll see yet. I hope it's not that far!! It does sound like you're seeing the best person though, that's really awesome.
    Haha it shouldn't be too far. There aren't any CFS services in my area, so I have to travel out. He's supposed to be one of the best, so I'm lucky in that sense :laugh:
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    (Original post by chelseadagg3r)
    Haha it shouldn't be too far. There aren't any CFS services in my area, so I have to travel out. He's supposed to be one of the best, so I'm lucky in that sense :laugh:
    Phewf lol maybe I'll get some of that luck :crossedf:
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    (Original post by Jennie1987)
    Phewf lol maybe I'll get some of that luck :crossedf:
    Fingers crossed for you! :crossedf:
 
 
 
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