Ever had a swollen lymph node that never went back down again? Watch

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Random question but just trying to see if anyone is in the same boat.

Nearly three years ago I had a really bad ear infection and the node behind my jaw/below ear was agony and swelled up to the size of a grape. I got antibiotics and it went down to a Malteaser size lump and it's stayed that way ever since. Two weeks after that infection, I got a bad virus and felt that same pain I felt with jaw node again except lower down in my neck and I found a pea sized firm movable lump, another lymph node. It's still the same size and movable to this day.

I had them checked out numbers times over the last two years and the docs say they won't go down now but they aren't big enough to worry about plus I was ill when they came up which all points to them being reactive nodes and not something more sinister.

Anyone else had any nodes that have remained swollen? They are always a concern of mine despite the fact they haven't grown and no more have popped up. They also get really painful like they did at the start sometimes even though I don't have an infection any more.

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(Original post by TheRabbit)
I am not sure if you are seeking medical advice from this post or not - its not possible to advise over the internet if you are concerned about the nodes being anything important or more sinister - so if you are worried about them, maybe because something has changed or they haven't done what the GP said they would do, then I advise you to see your doctor about it.

You aren't alone in having nodes though, I have palpable lymph nodes too - more prominent on the left side of my neck with quite a big one which someone found when we were practising examining each other a few years ago, but I think I am just hyper-aware of them due to the fact I am a medic. Mine are pain free unless I have a cold/upper respiratory tract infection.
No, I'm not asking for medical advice as I've already stated that I've had them checked. It's more to see if people are in the same boat. They are a worry for me, despite having them checked a few times because I suffer from health anxiety, among other things.

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(Original post by TaraMott)
yesss. Ive had one under my chin about by neck and sometimes its fine but other times I cant swallow food because it gets so big. its been like that for 4 years. ive been doctors and they too say its not big enough to worry about. but yh i can move it around and it feels like a metal ball. sighhh
Sorry to hear you're in the same boat Sometimes my jaw one swells up again and makes opening my mouth really hard and eating impossible. Mine are flaring up pretty badly with pain tonight, especially the lower neck one. Docs think I may have CFS as other things have been ruled out and apparently that can cause painful and swollen nodes along with some other symptoms I have so I'll just have to wait and see though I think my dermatitis might be setting the nodes off too.

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Callicious
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Well, I've got some sort of bump in my mouth which sometimes causes immense pain when I eat (or drink), and only since I had a lymphatic infection a year or so ago. Luckily I think that's the only one; when I had the infection I couldn't breath without pulsating pain from my neck because of some swollen lymph nodes the size of peas all over the place :_;
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indigofox
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Yea I've had one in my neck for 7 years now, it feels like a pea sized slippery ball. The first time I went to the go about it I was referred to the head and neck unit and they said it was likely a lymph node, I was advised to go back if it changed in shape or size. A few months ago it felt tender and more swollen so I went back to the go who referred me again. The specialist doctor was funny with me though he asked why I'd suddenly come to see him if I've had it 7 years. I explained that I'd been years ago. He said 'so it's been 7 years and it's still not killed you but you are worried'. I half laughed but I was advised to go back if it changed! In fact here's a pic of it lol

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sorry I don't know how to reduce the size of the pic!
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Rachel58
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Got 3 on my neck - they told me it'd go away after a while but it's been years...
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indigofox
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(Original post by Rachel58)
Got 3 on my neck - they told me it'd go away after a while but it's been years...
same. Also got one right behind my ear that came up but never went back down.
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anosmianAcrimony
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Well, if the medical professionals say it's fine, it's probably fine.
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Wōden
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I can feel a few pea sized lymph nodes in my neck, they aren't visble, but I can feel them if I dig. From what I understand, it's quite common for some nodes to become "scarred" and remain permanently larger and harder than normal after fighting a bad infection. I suspect mine are the result of some bad dental problems I had a few years ago.
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chelseadagg3r
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Yes! Like right under my jaw where it meets with my neck. Both sides swelled up after a really nasty set of infections around ears, throat, chest and never settled back to normal. Occasionally they get really painful, sometimes both sides and sometimes just one, and it hurts to do anything that might even slightly move, touch, or put pressure on them. That was years ago, so I don"t see them going down now though. They seem to swell up more for no reason sometimes, and by that point I can literally grab them they're so big. Like maybe the size of a ping pong ball. The doctors have never seemed worried about them though
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Braypat123
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HEY so I have the same problem doctor and neck lump professional isn’t worried about my posterior cervical lymph node it’s swollen with abojt 4 months and I had my baby around that time, I also had a really bad infection, now this morning I have a sore mouth left side I think I have a swollen gland under my jaw I’m so low in myself also stuffy noise I really do have bad anxiety considering I have a baby and I’m pregnant again but I do bring up phlegm every day white or brown and Ive said this to my doctor but he just says it’s because I smoke I do smoke but not much compared to most people
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msvetz
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Hopefully my experience will help. I have an enlarged lymph node on the neck on the left side of my throat. I noticed it about 1.5 to 2 years ago. After I felt it I thought to myself "hmmm, maybe i'm getting sick?", but I actually wouldn't get sick and I would forget all about it for another month or two until I randomly notice it again. After a while I got more concerned because it was still large. So i decided to take advantage of the health insurance that I will not have for much longer and I went to a head and neck specialist who had me go through a process of three tests. The 1st test was a CT scan. The results for this stated that the node is abnormally large but the results were unclear and I need another test..... The second test was an ultra sound. The results for the US said that the node is slightly larger (2 months later) and the cause is unclear so must take a third test. So then I FINALLY got a biopsy (which should have been the first and only test in my opinion, which leads me to believe that the process of 3 tests is a money making scheme in the medical industry, but what do I know....I'm no doctor.) The biopsy concluded that the cells in the node are benign and nothing to be overly concerned about. Thankfully! Co-pays totaled about 200$ but worth it for the peace of mind, I think the insurance paid around $7,000. I believe the reason for my swollen lymph node is related to getting my wisdom teeth out. Major oral surgeries can inflame the lymph nodes in our neck with a possibility of permanent inflammation. Good luck to you!! (P.S. I don't have time to revise my comment so sorry if it's full of bad grammar).
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monostable
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(Original post by msvetz)
I know this forum is old now but if you are still checking responses or if anyone with the same question stumbles into this forum, hopefully my experience will help. I have an enlarged lymph node on the neck on the left side of my throat. I noticed it about 1.5 to 2 years ago. After I felt it I thought to myself
Make a new thread rather than reviving an old one.
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Nickyh1234
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Hello, I have had a swollen node behind my ear for about 6 months. I’m not even sure what caused it to swell in the first place, I think it was a tooth infection. Anyway, after antibiotics it went down, but not completely. I saw an ENT consultant back in July who said he’s not concerned about it, but I’m not sure what he would say now knowing that it’s still there . I know I’m over worrying as this node is only small probs 1cm but I just hoped it would go back flat! My question is... can nodes stay swollen?
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anon-38929394
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i had the exact same thing! i had a very sore throat and a node on the centre side of my neck swelled up to the size of a pea. doctor said it’s just a swollen gland and may go down within a couple weeks. 2 years later, it’s still there, just a little smaller. it only grows when i have a cold, sore throat etc. so i guess it will never fully return to its original size
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DaniCole
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Oh my goodness!!! There's a whole mess of ppl who have a pet lymph node like me! I thought I was the one & only! Lol. So I have one who likes to roll up my jaw when I open my mouth & then tucks itself up under my jaw when my mouth isn't running. It's about the size of a pea, sometimes a m&m; depending how much I play with it, & it's been hanging out with me for 4.5 years. We're like besties now I guess since he's never shown any signs of leaving me. He appeared during a sinus infection, one I wasn't aware I even had, so he was big & bad for far too long, endured much too much poking & pushing, and inevitably, I created the lil monster I jokingly call my pet. So! Hey! Lovelies! Plz don't push, don't poke, don't prod, & surely don't squeeze the lymph node on your neck, jaw, or rolling up your pretty face, because you can unintentionally invite him to become a permanent fixture in your life! Trust me, I know, because I did it! Kisses!
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Teejewels
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I also have one on my left side under my jaw, it moves whenever I swallow and it’s about the size of a pea it’s been there for about a year and a half. My doctor said it was nothing to worry about and had blood work done. Sometimes, I try to forget about it and other times, find myself obsessed with it constantly touching it and wondering why it’s still there..
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Anonymous #2
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I've got one under my tongue (in neck, but that's where I can feel it). It freaked me out so I went to the doctor's and I'm completely fine. 3 years with it now hehehe Get checked if you're worried though! xxx
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Teejewels
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I’ve had mine checked out and had blood work done twice all good with that and, doctor said it was nothing to worry about, I’ve had mine for about a year and a half and it’s the size of a pea, unless I keep touching it feels more swollen.. lol I have really bad health anxiety and even though doctor said it was nothing to worry about, she never mentioned that it may never go away.. I do feel better knowing that I’m not alone!🙂
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Spybee
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Yes I have one on the back of my neck on the right side. I had a tooth infection with an abscess. I had it fixed at the dentist and antibiotics cured the infection. I saw a doc about it around that time and she thought it was due to the infection. That was a few years ago and it’s still swollen, I can feel it especially if I turn my neck. I worry about it but it helps to know others have the same issue.
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