Any deaf or HoH people out there?

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Rainingpopcorn5
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Hey, I like learning new things about people, especially people who relate to me. If you are deaf or HoH, what have your experiences in daily life been like?
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Tiger Rag
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I'm mildly deaf in one ear and too sensitive in the other and have other hearing problems. My speech is affected too. My main problem is when there's too much noise. Also have tinnitus which means that if there's complete silence, all I can hear is a constant buzzing. It's worse in my right ear where I have hearing loss.
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Rainingpopcorn5
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(Original post by Tiger Rag)
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I'm mildly deaf in one ear and too sensitive in the other and have other hearing problems. My speech is affected too. My main problem is when there's too much noise. Also have tinnitus which means that if there's complete silence, all I can hear is a constant buzzing. It's worse in my right ear where I have hearing loss.
Ok. Tinnitus isn't a nice thing at all. Thanks for replying. Do you not use hearing aids at all? X
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Tiger Rag
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(Original post by Rainingpopcorn5)
Ok. Tinnitus isn't a nice thing at all. Thanks for replying. Do you not use hearing aids at all? X
No. They're too loud for me and I've been told they won't help me.
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Rainingpopcorn5
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(Original post by Tiger Rag)
No. They're too loud for me and I've been told they won't help me.
Oh I'm sorry to hear that.
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~Tara~
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I've been recently diagnosed with hearing loss. Unknown cause but usher syndrome runs in the family. Whatever the cause is for mind, audiologist said it was congenital and so it's always great to hear that..at 29 🙄 I've been struggling for a really long time and thinking I was just ignorant when all along I really couldn't hear them.

I have hearing aids in both ears. It's taken me a good two weeks to get used to them and put them in properly each time. You're shown and stuff but finding best technique for me. First two days was exhausting and gave me migraines. Seems to have settled now. Still can't get used to how much sound I lose when I take them out because putting them in never seems to change as much.

Still stuggle to hear in certain contexts which I was told would happen but people forget I still need to see them to hear them if were in noisy environment. Everyone is adjusting I guess.
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~Tara~
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The best feeling was last week..when I wasn't looking at a lecturer and I could hear everything she was saying.

Still learning to filter sounds and stuff but that was awesome moment. Hadn't realised how long it had been since I was able to do that. I lipread a LOT.
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Tiger Rag
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(Original post by ~Tara~)

Still learning to filter sounds and stuff but that was awesome moment. Hadn't realised how long it had been since I was able to do that. I lipread a LOT.
This is something I'm struggling with a lot. If there's too much noise, I can't actually hear anything either. Not being able to filter out noise was when I first realised something wasn't right. Wasn't too impressed to be told by Audiology that it's impossible to be deaf and have sight impairment, which obviously isn't true. I was then later told by ENT I do have mild hearing loss in one ear. They think it's down to the medication I'm on.

I'm also having to learn to ignore certain sounds, which is much easier said than done!
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~Tara~
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What why would they say you couldn't have loss in both? I wouldn't be very impressed either! I might ask to see their credentials too depending on the mood I was in
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elnino1.0
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I've got hearing aids since ive been three but have had a hearing impairment since birth
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Tiger Rag
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(Original post by ~Tara~)
What why would they say you couldn't have loss in both? I wouldn't be very impressed either! I might ask to see their credentials too depending on the mood I was in
I seem to remember being too pissed off to get into a discussion with her.

It actually took ENT 2 minutes and one question to work out what's going on.

I thankfully don't have it; but there is a rare syndrome which is found in people with one of the eye conditions I have which does cause severe hearing loss. We're hoping that now they've reduced the dose of medication I'm on, I'll stop losing the hearing I have.
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Rainingpopcorn5
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(Original post by ~Tara~)
I've been recently diagnosed with hearing loss. Unknown cause but usher syndrome runs in the family. Whatever the cause is for mind, audiologist said it was congenital and so it's always great to hear that..at 29 🙄 I've been struggling for a really long time and thinking I was just ignorant when all along I really couldn't hear them.

I have hearing aids in both ears. It's taken me a good two weeks to get used to them and put them in properly each time. You're shown and stuff but finding best technique for me. First two days was exhausting and gave me migraines. Seems to have settled now. Still can't get used to how much sound I lose when I take them out because putting them in never seems to change as much.

Still stuggle to hear in certain contexts which I was told would happen but people forget I still need to see them to hear them if were in noisy environment. Everyone is adjusting I guess.
I completely understand what you mean. 😑 I'm still waiting a couple of weeks for my hearing aid and without them kinda struggling. Some days it changes, one day it's ok, next day can't hear anything. No glue ear or infection. Still waiting for my head MRI to see if there is anything directly causing it. When waiting for a package, i have to sit near the door with the TV off, can't hear any knocks or anything. Hope you definitely improve with your hearing aid though!
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Tiger Rag
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(Original post by Rainingpopcorn5)
I completely understand what you mean. 😑 I'm still waiting a couple of weeks for my hearing aid and without them kinda struggling. Some days it changes, one day it's ok, next day can't hear anything. No glue ear or infection. Still waiting for my head MRI to see if there is anything directly causing it. When waiting for a package, i have to sit near the door with the TV off, can't hear any knocks or anything. Hope you definitely improve with your hearing aid though!
Have you looked into getting a flashing or vibrating door knocker? Action on hearing loss should be able to advise on these.
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Rainingpopcorn5
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(Original post by Tiger Rag)
This is something I'm struggling with a lot. If there's too much noise, I can't actually hear anything either. Not being able to filter out noise was when I first realised something wasn't right. Wasn't too impressed to be told by Audiology that it's impossible to be deaf and have sight impairment, which obviously isn't true. I was then later told by ENT I do have mild hearing loss in one ear. They think it's down to the medication I'm on.

I'm also having to learn to ignore certain sounds, which is much easier said than done!
Wow I find it ridiculous that they say you can't have both.

I originally thought it was my medication too but then doctor told me that my pain medication could only cause tinnitus not hearing loss. But he stopped it anyway.

Audiology thought it could be inflammation of my inner ear ,which wouldn't show up on the MRI I had, since it also causes headaches and dizziness. But rheumatology think it could be something liked to my fibromyalgia...guess it's all a waiting game.
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Rainingpopcorn5
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(Original post by elnino1.0)
I've got hearing aids since ive been three but have had a hearing impairment since birth
Awww, what was it like growing up? My hearing loss only started 3 months ago so it's been hard adjusting I guess, especially because I know what it's like to hear with both ears.

Thanks for replying!
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~Tara~
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I seem to be continually adjusting for them so it's getting better and better. Does have downside tho. When I'm not wearing them my brain still thinks I have good hearing. I startle much easier now because I can't hear if I'm at the kettle or paper shredder etc and someone walks behind me. Not great for PTSD
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elnino1.0
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(Original post by Rainingpopcorn5)
Awww, what was it like growing up? My hearing loss only started 3 months ago so it's been hard adjusting I guess, especially because I know what it's like to hear with both ears.

Thanks for replying!
So your hearing loss only affects one ear then? I imagine it to be harder for you as you know how it feels like to hear normally whereas I never knew anything else... I dont remember myself, but my mum says I adjusted really easily when I got my hearing aids with 3 and learnt to talk within weeks or so haha, something I hadn't really done before. Do you use hearing aids, though? All I can say is that I am sure that you'll adjust, just make use of all the technology that is available today, it helps a lot! Obviously, it is really annoying at times, but try to be confident about it and just don't let it stop you with anything you want to do! I learned to play the piano and cello as a kid and never thought it was in any way extraordinary until I got told by some people that they wouldn't have believed that to be possible with hearing aids...

Any way, sorry for my long answer, I hope it is in some way helpful. If you have any questions about a particular topic, dont hesitate to pm me

Btw, how helpful is the NHS with that kinda stuff? Would be interesting for me to know, as you might have noticed my mothertongue isn't English (I'm from Germany) and I'll probs come to the UK for uni next year...
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coffeeneeded27
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bit late but hey ho!
I'm totally deaf in my right ear, partially in my left, have hyperacusis (like hypersensitivity) and tinnitus
in academic situations I use CROS hearing aids, roger pen, t loops etc
I lip read one hell of a lot- I waitress and its exhausting...
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riddledemort
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Hey hoooooooo,

Late for the party but hey, we can pretend that doesn't happen.

I am profoundly deaf from birth (in which I have birthing trauma that causes my hearing loss), but I do wear cochlear implant on my right side (and recently had CI operation on my left side). I am the only deaf person in my family. My life had been difficult due to the barriers, like access to information and services etc, especially with ignorant people but shrugs, you just get through it.

Although, my first language is BSL but I was also taught English as an oralism method. This bilingual language gives me an opportunity to interact with both hearing and deaf individuals.

I had attended mainstream school, which isn't really a pleasant experience for me - plus majority of deaf peers rarely have support in their studies, therefore, they lack opportunities in their studies compared to hearing peers. I am the only deaf person who received full-time support (communication support worker who would interpreter for me) in my school, due to my parents fought for the support, this has enabled me to excel in my studies. In sixth form, I am currently attending advanced specialist school for the deaf, studying A-levels.

Any more questions?
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toonervoustotalk
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(Original post by riddledemort)
Hey hoooooooo,

Late for the party but hey, we can pretend that doesn't happen.

I am profoundly deaf from birth (in which I have birthing trauma that causes my hearing loss), but I do wear cochlear implant on my right side (and recently had CI operation on my left side). I am the only deaf person in my family. My life had been difficult due to the barriers, like access to information and services etc, especially with ignorant people but shrugs, you just get through it.

Although, my first language is BSL but I was also taught English as an oralism method. This bilingual language gives me an opportunity to interact with both hearing and deaf individuals.

I had attended mainstream school, which isn't really a pleasant experience for me - plus majority of deaf peers rarely have support in their studies, therefore, they lack opportunities in their studies compared to hearing peers. I am the only deaf person who received full-time support (communication support worker who would interpreter for me) in my school, due to my parents fought for the support, this has enabled me to excel in my studies. In sixth form, I am currently attending advanced specialist school for the deaf, studying A-levels.

Any more questions?
I am pleased and happy that you have gotten alot of support.
What support do you find has been most helpful for you
What A levels are you taking

I am also hard of hearing
Servere loss of hearing in right ear and mild/modrrate hearing loss in left
For some reason i only wear hearing aid in my left ear
I did not recieve any support when i started sixth form but since i started university i have gotten alot of specislist support that has been really helpful
Most of the time hearing loss can often be overlooked
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