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What misconceptions do people have about your condition(s)? Watch

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    (Original post by ItzBunnie)
    "Aren't schizophrenics dangerous? Should you even be out here? Like for your own sake?"
    Oh, you cant be crazy! Crazy people never ADMIT they are crazy...
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    In regards to OCD, these are what I heard from my stepdad before he educated himself on the subject once he realised how bad my symptoms were and why I've been in and out of therapy all my life and still am.

    "We all have a touch of OCD" - that would be like me saying to him "We all have a touch of Parkinsons"

    "I have OCD too. I like to have my CD collection in an alphabetical order"

    "You can't have OCD. Your house is a mess and you don't wash your hands all the time"

    As for his Parkinsons disease, he has came across a few misconceptions such as "does that mean all you get is tremors?". A lot of people don't realise there's memory loss, bowel problems and emotional issues related to Parkinsons as well.

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    Apparently, having poor vision = really good hearing. No, we just use our hearing more.

    I was once told I can't have hearing problems because I've got sight problems. Erm, I can think of at least 3 conditions which cause dual sense loss. Having a condition doesn't make having something else impossible. Strangely, it took someone 2 seconds and one question to work out my issues.
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    People who think acne is a result of "not washing face" or "bad hygiene" and you can feel their judgement without them even saying anything.

    Also, and this can be applied to a lot of medical conditions (not just acne):
    ...
    When people think that suggestion X, or product Y from the supermarket (as if to be implied to be more effective/potent than the strongest prescription treatments) will fix your problem - implying that people somehow only have the problem because they haven't done X or Y, and that it'll all go away if they do do X or Y.
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    (Original post by Tiger Rag)
    Apparently, having poor vision = really good hearing. No, we just use our hearing more.

    I was once told I can't have hearing problems because I've got sight problems. Erm, I can think of at least 3 conditions which cause dual sense loss. Having a condition doesn't make having something else impossible. Strangely, it took someone 2 seconds and one question to work out my issues.
    I'm really sorry I was like that too....

    When there is a lot of noise or disturbance I finf it hard to hear people without my glasses. (Have to read lips, many people with normal hearing do read lips as well, they are not aware of it... I wasn't aware of it untill my vision got to worse). When I say I can't hear them without glasses they ask if I have hearing problems as well.... It happened only a few times though.
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    I suffer badly with migraines with aura and have been told "auras can't be that bad. Think of them as a free firework display in your vision!" :facepalm:

    Yeah going half blind, feeling sick, feel like the room is spinning, numb/tingling down one side of my face and body, knowing I have an incoming terrible migraine pain and the panic attack is worth those flashing lights near the end of the aura :rant:
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    (Original post by Spock's Socks)
    I suffer badly with migraines with aura and have been told "auras can't be that bad. Think of them as a free firework display in your vision!" :facepalm:

    Yeah going half blind, feeling sick, feel like the room is spinning, numb/tingling down one side of my face and body, knowing I have an incoming terrible migraine pain and the panic attack is worth those flashing lights near the end of the aura :rant:
    I am so glad I grew out of that part of migraine. The pain is bad enough.
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    (Original post by Tiger Rag)
    I am so glad I grew out of that part of migraine. The pain is bad enough.
    You're so lucky the pain stage is horrendous but I often find the aura and aftermath of a migraine worse because of all the extra mental symptoms such as anxiety, panic attacks, confusion etc

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    To those who have poorly understood and less known conditions, have you ever experienced any misconceptions from someone in the medical field? I often hear people say that it appears like they understand the condition better than some doctors and specialists do.
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    (Original post by Spock's Socks)
    To those who have poorly understood and less known conditions, have you ever experiences any misconceptions from someone in the medical field? I often hear people say that it appears like they understand the condition better than some doctors and specialists do.
    Yes:

    I have migraine and have a cyst on my brain. Apparently, the latter causes no problems at all. I remember one GP suggesting that because no medication works, (another has said I need to accept that I'll have days where medication won't do anything) and my MRI is normal for me, there's nothing wrong. I'm apparently imagining the pain.

    I'm somewhat limited to what I can take - they can't give me beta blockers because of my asthma and most pain killers wear off after a while and then there's the side effects.

    And please don't get me started on the non-medically trained receptionist...
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    (Original post by Spock's Socks)
    To those who have poorly understood and less known conditions, have you ever experiences any misconceptions from someone in the medical field? I often hear people say that it appears like they understand the condition better than some doctors and specialists do.
    I made a passing comment about my dyslexia and reading to my dr and she said condescendingly that "dyslexics can read. They can't write".
    I thought dyslexia was a pretty well understood thing, but apparently not.

    I also get doctors constantly telling me "you're young. Go do stuff." despite me seeing them because I can't do stuff. I tell them that I don't have the energy to do anything. They say I'm young, completely ignoring my thyroid condition, or saying that wouldn't affect me this much. Well I'm tired so either it's the thyroid or something else. You can't just say I'm totally fine when I'm obviously not.
    Even worse is when one dr will practically accuse me of just wanting drugs and then in the next appt increase my dose cos my levels aren't high enough.

    I swear they never even look at my freaking records.

    The most understanding person in my life is my bf cos the poor sap has to live wit me every day. I don't think most other people actually bother to listen to me and just want to prove that i'm fine rater than find the cause of my symptoms.
 
 
 
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