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    Haha, yeah I get stressed when the control and responsibility is in my hands! Maybe the control you feel in the games reduces the anxiety - the loss of control causes the anxiety. Not sure why your psychologist didn't pick up on that. A lot of anxiety disorders and eating disorders begin from a loss of control in their life.

    (Original post by Pathway)
    haha, we are opposites then, for the most part I can't watch horror movies/shows (although I can watch TWD/FTWD). I get stressed out when I'm not in control.

    It's OK, not your fault. :nah: It's just funny that my CPTSD doesn't get triggered (usually) by survival horror games, whereas it does with movies/shows, even my psychologist thought it was odd. :rofl:
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    (Original post by hannxm)
    Haha, yeah I get stressed when the control and responsibility is in my hands! Maybe the control you feel in the games reduces the anxiety - the loss of control causes the anxiety. Not sure why your psychologist didn't pick up on that. A lot of anxiety disorders and eating disorders begin from a loss of control in their life.
    Yep. Ironically she even said one of my main reasons for having an eating disorder is because of control (the other main reason that I use it as a coping mechanism). So she understands the control aspect of anxiety disorders, but for some reason didn't put two and two together. :dontknow:

    How is your studying going?
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    Hmmm.

    It's currently okay. These are the easier assignments so I'm appreciating it before things get real. :lol:

    (Original post by Pathway)
    Yep. Ironically she even said one of my main reasons for having an eating disorder is because of control (the other main reason that I use it as a coping mechanism). So she understands the control aspect of anxiety disorders, but for some reason didn't put two and two together. :dontknow:

    How is your studying going?
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    Progress: Second assignment written and submitted, almost a week early. Looking at and have started third assignment.

    How I'm feeling: Firstly, I've got a nasty cold so that's bothering me but I've managed to brave the hard task of submitting my work and just leaving it to be marked now. It's due in on Thursday this week so I can now not worry about it and move on. I submitted it partly because I knew I would lose track of time and completely miss the deadline.I genuinely keep forgetting that I'm doing a degree :lol: so I was three weeks ahead, now I'm only a week ahead! The time goes so fast. My subject has now moved onto constructing social science arguments and consumerism, so it's a little less interesting and more straight to the facts and new words and terms, but I'm managing and focusing on the positives. I studied for a few hours yesterday and made a start on my assignment that's due in next year! By the time that deadline comes around, I would've started my next module! It's a little silly because I already feel I could write my next assignment but I'm assuming they want me to continue learning around the subject before I fully attempt it, which is my plan. All going fairly smoothly.

    More written here in my other blog.

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    @stressedpotato @Pathway 04MR17
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    (Original post by hannxm)



    Progress: Second assignment written and submitted, almost a week early. Looking at and have started third assignment.

    How I'm feeling: Firstly, I've got a nasty cold so that's bothering me but I've managed to brave the hard task of submitting my work and just leaving it to be marked now. It's due in on Thursday this week so I can now not worry about it and move on. I submitted it partly because I knew I would lose track of time and completely miss the deadline.I genuinely keep forgetting that I'm doing a degree :lol: so I was three weeks ahead, now I'm only a week ahead! The time goes so fast. My subject has now moved onto constructing social science arguments and consumerism, so it's a little less interesting and more straight to the facts and new words and terms, but I'm managing and focusing on the positives. I studied for a few hours yesterday and made a start on my assignment that's due in next year! By the time that deadline comes around, I would've started my next module! It's a little silly because I already feel I could write my next assignment but I'm assuming they want me to continue learning around the subject before I fully attempt it, which is my plan. All going fairly smoothly.

    More written here in my other blog.

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    @stressedpotato @Pathway 04MR17

    :five: Well done on staying ahead! I always left things to the last minute. :teehee: What's your new assignment about? Sorry to hear you have a cold, feel better soon. :hugs:
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    Thank-you! I have to stay ahead otherwise I'll stress! It's about constructing a social science argument, but we basically outline questions, claims and evidence about inequality in a consumer society. We don't have to put our input in or talk about contrasting arguments yet, thankfully!
    Aw I hope so too. It's lasting quite a while. Taking so many meds to keep things under control!

    (Original post by Pathway)
    :five: Well done on staying ahead! I always left things to the last minute. :teehee: What's your new assignment about? Sorry to hear you have a cold, feel better soon. :hugs:
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    (Original post by hannxm)
    Thank-you! I have to stay ahead otherwise I'll stress! It's about constructing a social science argument, but we basically outline questions, claims and evidence about inequality in a consumer society. We don't have to put our input in or talk about contrasting arguments yet, thankfully!
    Aw I hope so too. It's lasting quite a while. Taking so many meds to keep things under control!
    Haha, I'm the same but I still left everything (including my dissertation) to the last minute. :eek: Clearly I like to make things difficult for myself. :facepalm: I hope this assignment goes well.

    Are you prone to infections? I seem to have them back to back, ha. Sucks. :sigh:
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    (Original post by Pathway)
    Haha, I'm the same but I still left everything (including my dissertation) to the last minute. :eek: Clearly I like to make things difficult for myself. :facepalm: I hope this assignment goes well.

    Are you prone to infections? I seem to have them back to back, ha. Sucks. :sigh:
    Gosh, I hope I don't end up doing that! :lol: Yeah, you did make it hard for yourself but at least you did it! :P

    I actually haven't had a cold for a while but generally my immune system is messed up. It attacked my leg once. :lol: And I'm pretty sure it's been attacking my bladder and bowel. I was sick back to back with tonsillitis, chest infections, head colds etc for three months because my immune system had been weakened from terrible stress, so I try to keep my stress levels to an absolute minimum and I can usually tell when I get stressed. I actually got a bit stressed yesterday when I was studying yesterday - my breathing was becoming difficult, it was anxiety like and it was purely because I was tired, feeling dreadful, uncomfortable and forcing myself to work. I eventually stopped and did some cross stitching to take my mind off things. It really sucks having a useless and sensitive immune system. If my stress gets too bad, I end up going into a stressful downward spiral, get sick and depressed.
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    (Original post by hannxm)
    Gosh, I hope I don't end up doing that! :lol: Yeah, you did make it hard for yourself but at least you did it! :P

    I actually haven't had a cold for a while but generally my immune system is messed up. It attacked my leg once. :lol: And I'm pretty sure it's been attacking my bladder and bowel. I was sick back to back with tonsillitis, chest infections, head colds etc for three months because my immune system had been weakened from terrible stress, so I try to keep my stress levels to an absolute minimum and I can usually tell when I get stressed. I actually got a bit stressed yesterday when I was studying yesterday - my breathing was becoming difficult, it was anxiety like and it was purely because I was tired, feeling dreadful, uncomfortable and forcing myself to work. I eventually stopped and did some cross stitching to take my mind off things. It really sucks having a useless and sensitive immune system. If my stress gets too bad, I end up going into a stressful downward spiral, get sick and depressed.
    Could be MCAS? I know that's really common with POTS and EDS, not sure if you've looked into it. That and a weakened immune system is common. :hugs: feel better soon. Give yourself regular breaks, I was constantly running myself into the ground at university, still am even now, aha.
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    (Original post by Pathway)
    Could be MCAS? I know that's really common with POTS and EDS, not sure if you've looked into it. That and a weakened immune system is common. :hugs: feel better soon. Give yourself regular breaks, I was constantly running myself into the ground at university, still am even now, aha.
    I have looked up MCAS but it's really hard to get diagnosed. It is part of the same genetic strand and there's been studies proving that they're all linked and viewed as the 'disease trio'. People with my conditions who have MCAS also, who receive treatment have said they feel a lot better for it! Unfortunately, doctors know very little about the trio of conditions and still view EDS and POTS as rare, including MCAS. I'll probably be diagnosed when I'm retired or seriously ill in hospital.
    I hope you can learn to take it easy yourself - you'll feel better for it!
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    (Original post by hannxm)
    I have looked up MCAS but it's really hard to get diagnosed. It is part of the same genetic strand and there's been studies proving that they're all linked and viewed as the 'disease trio'. People with my conditions who have MCAS also, who receive treatment have said they feel a lot better for it! Unfortunately, doctors know very little about the trio of conditions and still view EDS and POTS as rare, including MCAS. I'll probably be diagnosed when I'm retired or seriously ill in hospital.
    I hope you can learn to take it easy yourself - you'll feel better for it!
    I think some doctors do clinical diagnoses for MCAS, but it's really hard to see blood results to give an official diagnosis (kinda like how they know hEDS is genetic, but can't find the gene for it and so diagnose it on clinical features). Take care though. Avoid your triggers if possible (I have really random MCAS triggers, or that's what my GP said, not entirely sure if they're that random, haha).

    I know but, eh, oh well. I'm not great at pacing, well I can do it, just not very often, lol.
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    How did you get diagnosed? I don't know what my triggers are at all. I get flushing of the skin, wheezing and such is put down to my asthma, the lightheartedness is put down to my POTs so that doesn't help when it comes to identifying symptoms! I know there's something more going on though and I'm pretty sure it's due to my immune system messing up. I've been to the hospital three times for bleeding from the bowel and in inflamed bowel. Then I started bleeding from my bladder with no infection and antibiotics did nothing. I think it's attacking me internally. I've tried insinuating to doctors that I believe there's an issue with my immune system because they have no idea what's happening, but they don't take it on board.
    I've read that just the colouring on tablets can be enough to trigger it! It's pretty random and specific - it can be anything really.

    (Original post by Pathway)
    I think some doctors do clinical diagnoses for MCAS, but it's really hard to see blood results to give an official diagnosis (kinda like how they know hEDS is genetic, but can't find the gene for it and so diagnose it on clinical features). Take care though. Avoid your triggers if possible (I have really random MCAS triggers, or that's what my GP said, not entirely sure if they're that random, haha).

    I know but, eh, oh well. I'm not great at pacing, well I can do it, just not very often, lol.
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    (Original post by hannxm)
    How did you get diagnosed? I don't know what my triggers are at all. I get flushing of the skin, wheezing and such is put down to my asthma, the lightheartedness is put down to my POTs so that doesn't help when it comes to identifying symptoms! I know there's something more going on though and I'm pretty sure it's due to my immune system messing up. I've been to the hospital three times for bleeding from the bowel and in inflamed bowel. Then I started bleeding from my bladder with no infection and antibiotics did nothing. I think it's attacking me internally. I've tried insinuating to doctors that I believe there's an issue with my immune system because they have no idea what's happening, but they don't take it on board.
    I've read that just the colouring on tablets can be enough to trigger it! It's pretty random and specific - it can be anything really.
    I've not been diagnosed yet (although I do want to see an allergist at some point about it, to get either a clinical or official diagnosis), it's just something my GP and I talk about, there's too many other things to deal at the moment, so with the MCAS stuff I have to wait.

    I had anaphylaxis as a kid to asthma medications (among other things, which probably doesn't help my current medication phobia), have weird reactions to perfumes, smoke, react to supposedly hypoallergenic tape, BP cuffs, some materials, heat, some foods (which I guess doesn't help my ED avoidance behaviours), temperature, etc. List is kinda endless for me at the moment. My GP is pretty clued up on EDS and its associated conditions though, so I'm lucky in that way. But as you can probably tell, some of the triggers aggravate POTS things (although still waiting on an official diagnosis of that :facepalm: - spend most of my life waiting) as well as hEDS stuff. I just keep a diary now of weird stuff that sounds MCAS-y haha.

    Basically the clinical diagnosis is based on symptoms and if you react well to medications (histamine blockers, and some other medications) - this is part of the reason why I haven't actively pursued a clinical or official diagnosis because of my phobia (well done brain ). The other part is catching mast cell mediators in blood work during an attack, if you have all three, then you have an official diagnosis of MCAS. It's difficult to catch them in the act as it were, because of how random MCAS attacks are, lol.

    Perhaps just bringing it up directly might be good? Explain it links with your EDS and POTS? :dontknow:
 
 
 
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Updated: November 20, 2017
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