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World Psoriasis Day 2017 Watch

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    Hey everyone, today is World Psoriasis Day and it seemed only fitting to make a thread about it :yep:


    Aim of World Psoriasis Day

    World Psoriasis Day is dedicated to people living with psoriasis or psoriatic arthritis. On October 29, we aim to address their needs:

    • Raise awareness
      Psoriasis affects over 125 million people around the world – not just physically, but also socially, emotionally and financially. World Psoriasis Day aims to raise the profile of this debilitating disease and increase awareness of the effect it has on people’s lives.


    • Spread information
      For many, psoriasis is still a relatively unknown disease. On World Psoriasis Day, we spread information about psoriasis, dispel common myths and answer questions. We also inform patients about their own condition, so they can feel empowered to speak about it.


    • Improve access to treatment
      On World Psoriasis Day, we lobby to give people with psoriasis better access to appropriate, affordable treatment. That’s why we specifically address key health decision-makers like national governments, policy-makers and healthcare providers that day.


    • Give the psoriasis community a voice:
      Many people living with psoriasis may struggle to get the world to listen to their needs. World Psoriasis Day is an opportunity for the psoriasis community to speak out from a common platform – and have its voice heard.




    What are your experiences with this illness? What tips could you give fellow sufferers in terms of dealing with the shame and embarrassment that often comes with the condition?
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    My experience with psoriasis



    Such a misunderstood illness "its just a skin condition"- Nope, its an autoimmune disease like diabetes, lupus, crohn's disease etc just so happens the affects of it are usually seen on the skin but it can affect internal organs and joints as well. There is no cure but it can be treated with various medications and topical creams. I've had it since I was 12/13. I use calcipotriol solution daily to keep the scales at bay but the real illness is under the skin. I am waiting to see a specialist about medication.

    I had just 'skin' psoriasis for years which only started spreading last year and until then it was just in one tiny area and now its spread to my joints and nails and its the start of Psoriatic Arthritis. Me, my gran and papa all suffer from it and their's progressed into PA at a young age as well.

    Its a horrible illness both in terms of the pain, itching, joint problems but also has a negative impact on your mental health too. People often feel ashamed to have it or that if they complain about having it, they aren't justified to complain because "its just a skin condition". It took me a while to get over the shame of having it. I knew I had no reason to be ashamed - it is an illness I had no control over getting but because its a physical illness and people can be quite judging, it can sometimes be hard to not to feel bad about having it. Some people think its contagious and wont come near you.

    I'm so lucky now to have a GP who treats it for what it is. At my last surgery they just threw creams and shampoos at me for years despite it growing and my joint pain but my new GP referred me to rheumatology the second she saw me and checks up on my joints every month. Makes all the difference having a doctor on your side :yep:
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    I have scalp psoriasis and funnily enough, it was playing me up today and driving me crazy but thankfully washing my hair, especially with my medicated shampoo, makes a big difference.
    When I first treated it though, it felt like someone was pouring acid on my head; it was searing pain. I had to scream into a pillow.
    The condition can be really embarrassing at times, mainly because of the dandruff it causes. :\ People likely assume I'm dirty and a lot of the time, I can't always notice the flakes and some people have made remarks, thinking I had lice! My hair is very clean and gets cleaned regularly and it definitely doesn't have lice! I'm often on "flake watch". :lol: I've learned not to pick at my scalp though as it makes it worse, even though it's satisfying.
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    (Original post by hannxm)
    I have scalp psoriasis and funnily enough, it was playing me up today and driving me crazy but thankfully washing my hair, especially with my medicated shampoo, makes a big difference.
    When I first treated it though, it felt like someone was pouring acid on my head; it was searing pain. I had to scream into a pillow.
    The condition can be really embarrassing at times, mainly because of the dandruff it causes. :\ People likely assume I'm dirty and a lot of the time, I can't always notice the flakes and some people have made remarks, thinking I had lice! My hair is very clean and gets cleaned regularly and it definitely doesn't have lice! I'm often on "flake watch". :lol: I've learned not to pick at my scalp though as it makes it worse, even though it's satisfying.
    Mine is mainly on my scalp too with some patches on my fingers and then all the joint and nail complications. The patch on my scalp started out at the size of a 5p coin, so pretty small, and within 2 months it grew to the size of my fist :eek: its still growing but a lot more slowly than that first burst.

    What medicated shampoo do you use? I mainly use Nizoral. I tried T-Gel and other coal tar stuff but it didn't really help much. Have you ever tried Cocois cream? That is the most disgusting thing I have ever smelled in my life :laugh:

    I know what you mean about it being satisfying sounds gross but I love brushing the scales out after washing my hair you have to find some fun in having a horrible conditon lol
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    I thankfully only have it on my scalp but it is all over and has spread to inside my ears!
    I use T-Gel - I do find it's a lot gentler compared to the scalp application I have, Betnovate. You're meant to use T-Gel like all the time but psoriasis seems to have a mind of its own (itching my ear atm :lol:) and whatever you do, it will always come around badly at times and for no reason, though I know stress worsens it.
    Haha I agree!

    (Original post by Rum Ham)
    Mine is mainly on my scalp too with some patches on my fingers and then all the joint and nail complications. The patch on my scalp started out at the size of a 5p coin, so pretty small, and within 2 months it grew to the size of my fist :eek: its still growing but a lot more slowly than that first burst.

    What medicated shampoo do you use? I mainly use Nizoral. I tried T-Gel and other coal tar stuff but it didn't really help much. Have you ever tried Cocois cream? That is the most disgusting thing I have ever smelled in my life :laugh:

    I know what you mean about it being satisfying sounds gross but I love brushing the scales out after washing my hair you have to find some fun in having a horrible conditon lol
 
 
 
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