Hi, understand where your coming from if it was proven but i disagree with you because
For instance, I found this………………………. According to the UK's framework, treatment is withdrawn if it is unable or unlikely to result in the
child living much longer, where it may prolong life but will cause the child unacceptable
pain and suffering, or if an older child with a life-limiting illness repeatedly makes it clear they do not want treatment and this decision is supported by parents and doctors
http://www.dailymail.co.uk/news/article-5650177/Alfie-Evans-clinging-life-Adler-Hey-hospital-removes-life-support.html Elfie is now managing to breath without a life support machine this must clearly prove he has life in him.
. As for stating his condition will not improve, I found this below on a forum about another child that had an unknown condition with the brain. “s neurological condition My daughter suffers from something similar although she was nearly 4 when she began to regress. MRI showed myelin damage, brain swelling and lesions. No tests have come back positive. I am as frustrated as you both. I have been looking into neurotoxins as a cause as nothing else fits and we've exhausted most medical tests. A couple years later she began to improve and is now continuing to progress but with no explanation on her condition we have no idea what we are dealing with and her neurologists are out of ideas. If you look up OPIDN is explains many symptoms but it is difficult to diagnose and there are not many doctors familiar with the condition .... I wish all our children well and to see them thrive and grow healthy in the future. Please feel free to contact me. This is my 4th year dealing with this "mystery condition" and would love to share some knowledge with others going through the same thing.
https://ehealthforum.com/health/undiagnosed-degenerative-brain-disorder-t138509.html”
The person in this forum in 2008 stated 2 years later her child started to progress… and that they been fighting with the mystery condition for 4 years..
Doctors don’t have the right to say it’s not treatable, How many doctors have been proven wrong for example:
Stephen Hawking, lived to 76… Who has the right to say Elfie condition will not improve, the person in this forum states that there child improved 2 years later, especial when doctors not certain on his diagnosis, Elfie proved he’s a fighter and breathing without life support.
If a person with COPD (Effects Breathing) walks into the hospital he/she would receive medical treatment.
As for all the other Neurological disorders diseases of the brain, spine and the nerves such as: brain tumours, epilepsy, dementia, epilepsy, Alzheimer disease and other dementias, cerebrovascular diseases including stroke, migraine and other headache disorders, multiple sclerosis, Parkinson's disease, neuroinfections, brain tumours, traumatic disorders of the nervous system due to head trauma, and neurological disorders. People with all these types of disorders allowed to receive treatments. WHATS DIFFERENT WITH ELFIE. He still a baby still developing he not going to show signs of development yet just like that, he still learning, and he’s not going to learn and develop if no one helps him. With Elfie breathing off the life support surly this shows something.
How many parents out there with a child that has this, or a similar condition been told by a doctor that there child will not make it or progress, and still alive and doing well today.
Stephen Hawkings “
This is a neurodegenerative condition which can affect many areas of the brain, including the motor neurons, which are found in the brain’s frontal lobe and are responsible for muscle control. The average life span for sufferers is usually two to three years after they have been diagnosed. Hawking was diagnosed when he was only 21 years old and was told that he would not see 25.” Stephen Hawking is evidences why treatment should be given to ELFIE EVANS