Has anyone had serious complications from glandular fever? (My story) Watch
THIS IS QUITE A LONG READ, SO IF YOU'RE NOT INTERESTED DON'T READ.
So, a week after my 17th birthday, I woke up and had quite severe stomach pain, a long with that my face looked slightly yellow, I was throwing up and had no appetite as well as diarrhoea. At first I thought I may have appendicitis so we decided to dial the none emergency NHS line, and after telling them my symptoms, I got given an appointment at the walk in centre. Upon arrival , they did my blood pressure and heart rate and they were both through the roof. My heart rate was around 130 and I can't remember what my blood pressure was. After an ECG that came back fine and blood tests, they came to the conclusion I had an infection around my liver so was put on an iv drip and antibiotics. The 1st week in hospital involved ultrasound scans and more bloodtest and they found out my gaull bladder, spleen and liver were inflamed and my liver function was slightly lower than it should have been. And after a week of none stop antibiotics they noticed only a minor improvement In my blood tests. So after the 1st week I was (wrongly) sent home with an appointment in 3 days time for blood tests at the hospital. While at home, I deteriorated and continued without eating and had really bad diarrhoea as well as throwing up. 3 days later I went back to the hospital for blood test, but while there I threw up everywhere in front of a passing doctor and we explained everything to him, and he advised we to go back to a&e. After again, more bloodtests they found the liver function was worsening as well as my infection markers dropping and low blood platlets. They ordered a CT scan, as well as a camera..... both ends. Everything came back clear other than again.... the inflamed organs. After 3 weeks in hospital, the doctors still had no idea what was going on, and i seriously deteriorated so they put me in intensive care, and then later that night, blue lighted me to a specialist liver unit in Leeds. While at Leeds, my kidney function started to drop, which intern caused fluid build up all over my body which made moving almost impossible as I put on around 3 stone overnight. They also inserted a cafiter which is extremely unpleasant. At Leeds, they decided to do a lymph node biopsy, liver biopsy and bone marrow biopsy and everything came back fine which left them again.... baffled. After not eating for 4 weeks they decided to feed me through a tube. while inserting it, I threw up in the doctors eye and the tube came out and I refused to have it re fitted. at this point they were considering dyalasis and liver transplant. They eventually decided to give me an extreemly high dose of steroids which eventually made my liver and kidney function go back up and I was discharged from intensive care and put onto a normal ward for a week until finally being fully discharged. After being discharged I was kept on a dose of steroids that I had to cut down every week until I was completely off them and I also had regular check ups until around 4 months ago where I was also discharged from outpatients.
That came to the uncertain conclusion that all this was caused by an extreemly rare case of glandular fever. Although my outpatient consultant doesn't believe that was it was. Thankfully tho, there was no lasting damage other than huge stretch marks everywhere that have left me extreemly self conscious.
Sounds like a very unpleasant experience but I am glad that things are now much better and that there was no lasting damage from this. The stretch marks will fade with time and are nothing to be self-conscious about - it sounds like you were seriously unwell and no-one has the right to be judging you for them. Hope you feel back to normal soon!