This discussion is now closed.
Check out other Related discussions
- Epilepsy and what this means in regards to fertility?
- Can I be able to do this apprenticeship with Epilepsy?
- Suspending studies for longer than two years
- Depressed
- Seizure
- Paramedic Apprenticeship
- Im starting to doubt my choice to go to uni
- Career Switch Advice.
- anyone remember cameron boyce?
- is this a bad thing?
- Continuing Student - "About you" query
- Assistant ambulance practitioner apprenticeship
- Is a second degree worth it?
- Epilepsy and Fertility
- Unknown Chronic Illness
- Epilepsy and Seizures
- [nsfw/s] i did something embarrasing
- Anxiety + Depression + ADHD any benefits
- Do I have Epilepsy?
- newly qualified children's nurse
Epilepsy
Hi, I have recently been diagnosed with epilepsy and just wanted to create this thread to get to know more about it. Over the last 2 months I have had 2 fits. I went to see a specialist who diagnosed me. Now I am on medication, epilim, and he tells me that I am going to need to be on it for the next 3-5 years which took me by complete surprise. So anything that you know about epilepsy which would be relevant would be great. What exactly are some of the causes? WHat you can't and can do due to epilepsy? etc.
I am 16 and have just finished GCSE's.
I am 16 and have just finished GCSE's.
Scroll to see replies
I don't really know much about it, but my boyfriend has it and he isn't able to learn to drive until hes been free from fits for 1 or 2 years (not sure which one) but he got a free bus pass cause its classed as him being disabled i think. He never really found out what causes it though... sorry, i'm not much help!!
My dad has suffered from epilepsy since he was 16, and he has to take medication twice every day to keep it under control.
As far as I know, epilepsy isn't caused by anything in particular which you can control, and it isn't inherited either.
My dad leads a completely normal life, so I wouldn't worry about it taking over your own.
I would however suggest your family learns what to do in the event that you have a fit and there's only one of them with you.
As far as I know, epilepsy isn't caused by anything in particular which you can control, and it isn't inherited either.
My dad leads a completely normal life, so I wouldn't worry about it taking over your own.
I would however suggest your family learns what to do in the event that you have a fit and there's only one of them with you.
I'm 16 atm so just finished gcse.
Its taken me about 5 years to get my epilepsy under control (fingers crossed). Im on lamictal and keppra. It does hold me back from somethings. I had to give up my job abroad and its kind of holding me back from going on my elective with my course. I had my driving licence taken away from me.
I find that i have to be careful i cant drink alot anymore i need more sleep and keppra made me hallucinate (not very good - when in an exam your trying to talk someone and the pink clouds get in the way) amoungst the other very strange side effects. I think for me maybe its the side effects rather than the actual epilepsy that affect me the most at least now.
They have said to me once things are under control it will be five years minimum that i will have to take the medication.
I can PM you a good few forum addresses if you want me to do that.
Oh forgot to say i have symptommatic left temporal lobe epilepsy with secondary generalisation (sometimes).
Saying that makes me feel clever!!
I find that i have to be careful i cant drink alot anymore i need more sleep and keppra made me hallucinate (not very good - when in an exam your trying to talk someone and the pink clouds get in the way) amoungst the other very strange side effects. I think for me maybe its the side effects rather than the actual epilepsy that affect me the most at least now.
They have said to me once things are under control it will be five years minimum that i will have to take the medication.
I can PM you a good few forum addresses if you want me to do that.
Oh forgot to say i have symptommatic left temporal lobe epilepsy with secondary generalisation (sometimes).
Saying that makes me feel clever!!
I was epileptic as a child and have since grown out of it, which apparently you can do with the type I had. Triggers can come in all sorts of things one of which can be stress and another can be a rection to strobe lights and flickering on a TV screen. I hope you find out all you can about your epilepsy. I only found out which type I had when I went for a pre uni medical at my doctors surgey and asked him about it.
yh that would be perfect fairy sprangles. I'm not really sure what exactly the term is for my epilepsy. However, I have had two fits in the last few months which were the cause of me being diagnosed if that helps.
Renal
There are a number of organic causes and hundreds of controllable potential triggers.
If i may also add, since i think it was mentioned that epilepsy is not inherited?
OP: Many types tend to run in families, though there are slight difference between something being inherited and running in a family, here, it's essentially the same.
i would forget about the 5 year thing - i'm 29 and have been on meds since i was 9.
i started with absence seizures but over past 4 years have had tonic clonic too.
watch out as epilim can put weight on in a major way and the amount you take goes on your weight so as your weight inreases so does your dose= vicious circle
i'm currently on keppra, lamictal and zonegram but never lost the weight.
i'll never drive and have my free bus pass.
1 bit of advice make sure you apply for the disabled students allowance so you can have extra time in exams, all things paid for you (printer cartridges, photocopying) etc and support etc etc etc....thats the best thing i ever did.
need any help then just message me
luv jo xxxxx
i started with absence seizures but over past 4 years have had tonic clonic too.
watch out as epilim can put weight on in a major way and the amount you take goes on your weight so as your weight inreases so does your dose= vicious circle
i'm currently on keppra, lamictal and zonegram but never lost the weight.
i'll never drive and have my free bus pass.
1 bit of advice make sure you apply for the disabled students allowance so you can have extra time in exams, all things paid for you (printer cartridges, photocopying) etc and support etc etc etc....thats the best thing i ever did.
need any help then just message me
luv jo xxxxx
jo131278
I'm depressed!
Just had a 3 day EEG and it showed me having 91 seizures in the 1st 10 hours- and I didn't know anything, I didn't know i'd had one!!!!!!!!!!!!!!!
God this sucks, and I take 20 tablets a day already.
Aaaaaarrrrrggggggghhhhhhhhhhhh.
Just had a 3 day EEG and it showed me having 91 seizures in the 1st 10 hours- and I didn't know anything, I didn't know i'd had one!!!!!!!!!!!!!!!
God this sucks, and I take 20 tablets a day already.
Aaaaaarrrrrggggggghhhhhhhhhhhh.
No way. That's not possible?!
What medication are you on?
Spacecam
No way. That's not possible?!
What medication are you on?
What medication are you on?
Completely possible!!!
Im guessing its absences??
I know you said you're only 16 so this isn't that relevant to you yet but having epilepsy that requires regular medicine allows you to apply for a medical exemption certificate so you don't have to pay prescription charges. This was a godsend for me as I'm on so many meds and it was so expensive to buy them all - I only found out that I could apply for exemption when I saw a new epilepsy specialist nurse a few months ago and I've had epilepsy for as long as I can remember.
Eternalstudent
I know you said you're only 16 so this isn't that relevant to you yet but having epilepsy that requires regular medicine allows you to apply for a medical exemption certificate so you don't have to pay prescription charges. This was a godsend for me as I'm on so many meds and it was so expensive to buy them all - I only found out that I could apply for exemption when I saw a new epilepsy specialist nurse a few months ago and I've had epilepsy for as long as I can remember.
God I don't know how you ever afforded them to begin with!
I could not afford them if I had to pay as I have about 9 different items a month! Far too expensive.
I'm glad you have your exemption certificate now though.
And don't forget you are exempt for every prescription not just your Epilepsy meds
Spacecam
I didn't know Levetiracetam and Lamotrigene could make you so deficient in B12 that you eneded supplements? Shouldn't it be B6 anyway?
Really sorry that you're not stable, that must be hard
Really sorry that you're not stable, that must be hard
Well it must do- I had no idea either but i am so deficient, I had no B12 in me at all !!!!!!!!!!!!!!!!!!
I take 50 micrograms a day as a supplement now......boo......!!!!!!!!!
Related discussions
- Epilepsy and what this means in regards to fertility?
- Can I be able to do this apprenticeship with Epilepsy?
- Suspending studies for longer than two years
- Depressed
- Seizure
- Paramedic Apprenticeship
- Im starting to doubt my choice to go to uni
- Career Switch Advice.
- anyone remember cameron boyce?
- is this a bad thing?
- Continuing Student - "About you" query
- Assistant ambulance practitioner apprenticeship
- Is a second degree worth it?
- Epilepsy and Fertility
- Unknown Chronic Illness
- Epilepsy and Seizures
- [nsfw/s] i did something embarrasing
- Anxiety + Depression + ADHD any benefits
- Do I have Epilepsy?
- newly qualified children's nurse
Latest
Trending
Last reply 1 month ago
Engineering vs. Medicine: Stuck Between Dreams and ExpectationsLast reply 1 month ago
heyyy , im new heree and im willing to have some friends xxxLast reply 1 month ago
Im 16 and never had a gf and it doesnt feel ok.
