I had epilepsy, AMA

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MrSandyWilly
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This is my second time making this thread, but I think its important that people understand and appreciate epilepsy (and it gives me something to do )

But here's my story:

After having a seizure at a friends house when I was about 8 or 9 - no that was not fun - I was diagnosed with a condition called benign childhood epilepsy. Its a type of epilepsy which affects children with varying severity and in slightly different ways - my seizures mostly affected my face and only ever occurred while I was just falling asleep or waking up. It usually disappears with the onset of puberty.

I'm 14 now, and its my 15th birthday in a couple of weeks, and I haven't had a seizure for about 5 years so I'm assuming my EEG is all normal now and I no longer have epilepsy!

AMA!
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billybob234
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(Original post by MrSandyWilly)
This is my second time making this thread, but I think its important that people understand and appreciate epilepsy (and it gives me something to do )

But here's my story:

After having a seizure at a friends house when I was about 8 or 9 - no that was not fun - I was diagnosed with a condition called benign childhood epilepsy. Its a type of epilepsy which affects children with varying severity and in slightly different ways - my seizures mostly affected my face and only ever occurred while I was just falling asleep or waking up. It usually disappears with the onset of puberty.

I'm 14 now, and its my 15th birthday in a couple of weeks, and I haven't had a seizure for about 5 years so I'm assuming my EEG is all normal now and I no longer have epilepsy!

AMA!
nice
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ecolier
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(Original post by MrSandyWilly)
...I'm 14 now, and its my 15th birthday in a couple of weeks, and I haven't had a seizure for about 5 years so I'm assuming my EEG is all normal now and I no longer have epilepsy!

AMA!
Congratulations. No questions but I wish you'd never have a seizure ever again in your life
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MrSandyWilly
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(Original post by ecolier)
Congratulations. No questions but I wish you'd never have a seizure ever again in your life
Hopefully I won't
If I don't I will probably still be able to fulfil my dream of becoming a pilot
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MrSandyWilly
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That's great! Were yours conscious or unconscious?
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CoolCavy
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Sorry to hear that :console: my nan lost her son (my uncle) to epilepsy and reguarly donated to epilepsy charities after that. I would like to hope there have been big progressions in epilepsy care and medicines since then
What are the things you find people have the biggest misconceptions about?
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MrSandyWilly
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That's lucky. Mine were conscious ones - less dangerous but also more unpleasant lol
(Original post by CoolCavy)
Sorry to hear that :console: my nan lost her son (my uncle) to epilepsy and reguarly donated to epilepsy charities after that. I would like to hope there have been big progressions in epilepsy care and medicines since then
What are the things you find people have the biggest misconceptions about?
I mean I don't think there are misconceptions as such. Nobody can really understand what its like to have a seizure until you have one.

Maybe that they could happen at any time? For some people thats the case, but for me for example mine only ever happened in the morning/evening when I was waking up/falling asleep
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gjd800
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Me too

Been dormant a long time now but I still need to be careful with strobe lights.
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MrSandyWilly
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My biggest thing was slurred speech post-seizure for a few minutes
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Masked Marauder
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Congratulations. What was the worst thing about having it?
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MrSandyWilly
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(Original post by Vardhan95)
Congratulations. What was the worst thing about having it?
Not knowing
Seizures are pretty unpleasant but the worst thing is not knowing when they will happen and then the shock when they do happen
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yeetouttawindow
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Not to pop your bubble bro
But saying such positive stuff just temps fate
I have it too and have gone 7 years I still have it
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