Anonymous #1
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Report Thread starter 2 weeks ago
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So I’ve seen on the mirror about coeliac disease mentioned in a shielding article (shielding from covid). Do coeliacs need to shield now then?
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Pathway
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Based on what Coeliac UK say, no. Although, you might be group 6, aka Clinically Vulnerable. This isn't the same as shielding which is also known as Clinically Extremely Vulnerable which is group 4 for the vaccine schedule.

Speak to your GP or whoever is treating you.
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Anonymous #1
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(Original post by Pathway)
Based on what Coeliac UK say, no. Although, you might be group 6, aka Clinically Vulnerable. This isn't the same as shielding which is also known as Clinically Extremely Vulnerable which is group 4 for the vaccine schedule.

Speak to your GP or whoever is treating you.
Hi there, good idea, I’m going to my surgeon and care team on Thursday so I’ll ask them. My only concern was that I’ve had quite a lot of problems with my coeliac disease and I’m worried that I’m meant to be shielding now but I’ll deffo ask... thank you!!!
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Pathway
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(Original post by Anonymous)
Hi there, good idea, I’m going to my surgeon and care team on Thursday so I’ll ask them. My only concern was that I’ve had quite a lot of problems with my coeliac disease and I’m worried that I’m meant to be shielding now but I’ll deffo ask... thank you!!!
You're welcome, good luck with the appointment.
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Kerzen
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(Original post by Anonymous)
Hi there, good idea, I’m going to my surgeon and care team on Thursday so I’ll ask them. My only concern was that I’ve had quite a lot of problems with my coeliac disease and I’m worried that I’m meant to be shielding now but I’ll deffo ask... thank you!!!
Check whether any appointments scheduled at the moment are actually in person, online or by telephone. In my area of London, most outpatient appointments are being conducted by phone.

For what it's worth, I have Coeliac Disease and haven't received any e-mails or texts re shielding; my GP has both my mobile number and my e-mail address. I have Coeliac UK membership too and haven't received any messages or seen anything on the FB page.

By the way, I hope you don't mind my asking, but do you have an appointment with a surgeon because of your Coeliac Disease? It's unusual to have a surgeon for Coeliac Disease unless something quite serious is happening.
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I am Mclovin
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Curious as to why we could come into this category. Auto-immune diseases don't mean immunosuppressed right?
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Pathway
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(Original post by I am Mclovin)
Curious as to why we could come into this category. Auto-immune diseases don't mean immunosuppressed right?
You guys wouldn't in terms of shielding.

According to Coeliac UK some of you might be Clinically Vulnerable if your spleen is impaired.

https://www.coeliac.org.uk/informati...covid-19-faqs/ Here you go.
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Final Fantasy
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Why is it that nobody in poor countries cares about celiac disease?
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Anonymous #1
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(Original post by Kerzen)
Check whether any appointments scheduled at the moment are actually in person, online or by telephone. In my area of London, most outpatient appointments are being conducted by phone.

For what it's worth, I have Coeliac Disease and haven't received any e-mails or texts re shielding; my GP has both my mobile number and my e-mail address. I have Coeliac UK membership too and haven't received any messages or seen anything on the FB page.

By the way, I hope you don't mind my asking, but do you have an appointment with a surgeon because of your Coeliac Disease? It's unusual to have a surgeon for Coeliac Disease unless something quite serious is happening.
Hi there, don’t want to go into too much detail (sorry!) but my large intestine struggled to repair itself with coeliac disease etc. I have ‘quite serious’ coeliac disease- my rate was 146- normals meant to be under 7. I ended up in a&e several times over the last few years (11 in total- the pain was so severe, a lot of things would happen). But yep, that’s why..... hehe 😉
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Kerzen
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(Original post by Anonymous)
Hi there, don’t want to go into too much detail (sorry!) but my large intestine struggled to repair itself with coeliac disease etc. I have ‘quite serious’ coeliac disease- my rate was 146- normals meant to be under 7. I ended up in a&e several times over the last few years (11 in total- the pain was so severe, a lot of things would happen). But yep, that’s why..... hehe 😉
Oh that is serious. I didn't realise that the areas affected could sometimes not repair properly. The specialist and the dietitian told me that compliance with the gluten free diet means that any damage heals over the space of a few months.

Were the admissions a response to gluten or did the pain flare up even though you were 100 per cent compliant?

Do the figures relate to the blood test?

I do hope that it settles down for you. Is it likely that with continued management you will be pain free?
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Anonymous #1
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Report Thread starter 1 week ago
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(Original post by Kerzen)
Oh that is serious. I didn't realise that the areas affected could sometimes not repair properly. The specialist and the dietitian told me that compliance with the gluten free diet means that any damage heals over the space of a few months.

Were the admissions a response to gluten or did the pain flare up even though you were 100 per cent compliant?

Do the figures relate to the blood test?

I do hope that it settles down for you. Is it likely that with continued management you will be pain free?
The admissions were before I was diagnosed. Then when I was diagnosed, it’s been a lot better.

Yep the figures relate to the blood test that they did.

Thank you, I hope so but it’s a long journey so I’ve got to see.
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Anonymous #1
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(Original post by Kerzen)
Check whether any appointments scheduled at the moment are actually in person, online or by telephone. In my area of London, most outpatient appointments are being conducted by phone.

For what it's worth, I have Coeliac Disease and haven't received any e-mails or texts re shielding; my GP has both my mobile number and my e-mail address. I have Coeliac UK membership too and haven't received any messages or seen anything on the FB page.

By the way, I hope you don't mind my asking, but do you have an appointment with a surgeon because of your Coeliac Disease? It's unusual to have a surgeon for Coeliac Disease unless something quite serious is happening.
Also, this appointments scheduled in person, purely because it’s a blood test and all that so we just speak to the doctors and all them there!
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Anonymous #1
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(Original post by Anonymous)
Also, this appointments scheduled in person, purely because it’s a blood test and all that so we just speak to the doctors and all them there!
And they also have a concern for non Hodgkin lymphoma so we need to check that out 😬🙂
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Bazookaboobs
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Interesting - I have coeliac and work in the NHS facing patients - just recovered from Covid.. I might need to query this.
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Anonymous #1
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(Original post by Bazookaboobs)
Interesting - I have coeliac and work in the NHS facing patients - just recovered from Covid.. I might need to query this.
Yep, I just read it in the mirror, if need to find it too
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Anonymous #1
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(Original post by Anonymous)
Yep, I just read it in the mirror, if need to find it too
Some bloggers have also said it too
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Kerzen
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https://www.mirror.co.uk/news/uk-new...w-17m-23514898
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Pathway
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#18
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Strange. Ehlers-Danlos Syndrome is on there as well which I have, I am shielding, have been since March last year, but I have a complicated set of health issues though.

Thanks for the link.
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Anonymous #2
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(Original post by Pathway)
Strange. Ehlers-Danlos Syndrome is on there as well which I have, I am shielding, have been since March last year, but I have a complicated set of health issues though.

Thanks for the link.
I think is says not rheumatological conditions themselves but treatments for them (e.g. steroids) cause issues.
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Pathway
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(Original post by Anonymous)
I think is says not rheumatological conditions themselves but treatments for them (e.g. steroids) cause issues.
Yea, I read that as well. I'm not shielding because of my EDS, but a whole load of other things (primarily neurological issues that impact my breathing and immune system issues).
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