Eyelid swelling

Help, I've develop swelling/inflammation in my left eyelid due to an eye operation 4 YEARS AGO, the doctors told me that it was normal few weeks after an operation but its been 4 years and it hasn't gone down. I have been to many doctors and had all kinds of tests done but they all came back negative, my last doctor put me on anti-inflammation steroids but its been 3 weeks and I have seen no improvement. This has deeply affect my life socially, emotionally, physically and mentally. I took a gap year just so I could get it fixed and try to have a normal life but now I'm going to university this September and I don't want a repeat of my final years in secondary school and sixth form where I was constantly bullied for it.
I look online for remedies and treatments to at least help reduce the swelling but nothing has worked so far, until yesterday where I read somewhere that placing cold black tea bags on the eye could help. Has anyone else experienced eyelid swelling and if so what did you do to reduce it and get it back to a normal size.
P.S. i will try anything

Reply 1

0le

I would strong advise you avoid any "home remedies".

This is not something you should have to put up with but unfortunately given the financial pressures on the NHS, sometimes you have to "fight your corner" to be heard.

What was the eye operation that you had, what doctors have you visited and what things have they ruled out? I would ask your GP to refer you to a specialist eye hospital such as Moorfields in London. They have multiple departments each of which have their own tests that they can do.

Have you got any other symptoms such as blurriness, flashing lights, floaters, distortion, a shadow appearing in your eye, a loss of peripheral vision etc?

Keep a record of all the tests that you have had and everything that has been ruled out. Show this list to the doctors each time you visit them because your medical records will often be scattered all over the place.

Reply 2

black tea

Have you been back to see the person who did the surgery (or another eye doctor) or have you just been speaking to your GP? H

Reply 3

Anonymous #1

Original post by 0le

my last doctor is at Moorfields they haven't diagnosed with anything because they say they cant find anything but i did research of my own and i have very similar symptoms to ptosis but they haven't conformed it and the operation i did was to lift my eyelid muscle up because it was droopy

Reply 4

Anonymous #1

Original post by black tea

Have you been back to see the person who did the surgery (or another eye doctor) or have you just been speaking to your GP? H

yes i am currently attending Moorfields eye hospital in London and the doctor who did the surgery was from my home town and apparently the surgery he did was unnecessary and in fact made the whole thing worse

Reply 5

0le

Original post by Anonymous

You can try to be referred to another department for different tests:
https://www.moorfields.nhs.uk/listing/services

The following services may perhaps be more related to your issue (but this is just purely speculative and I really don't know, it is just a guess...):
https://www.moorfields.nhs.uk/service/external-disease-and-corneal
https://www.moorfields.nhs.uk/service/adnexal-tissues-around-eye
https://www.moorfields.nhs.uk/service/ocular-oncology-eye-tumours

I would also advise you to contact PALS and politely explain your issue, explain the fact that you have not received a diagnosis and ask if other services could perhaps be in a better position to diagnose you. I'd recommend emailing them so that you have a personal record of correspondence between yourself and PALS:
https://www.moorfields.nhs.uk/service/patient-advice-and-liaison-service-pals

Also note that if your eye gets worse with any of the symptoms such as flashing lights (like lightning), sudden increase in floaters or a shadow appearing etc then to visit A&E as soon as possible.

(edited 2 years ago)

Reply 6

black tea

Original post by 0le

PALS deal with complaints, I'm not really sure how they would help OP to get a diagnosis.

Original post by Anonymous

What has the doctor at Moorfield been saying? Do they plan to do more tests? If they are not getting to the bottom of things, you could always ask to be referred for a second opinion - the people to speak to about this are either your GP or the eye doctor you are seeing (not PALS)

Reply 7

0le

Original post by black tea

PALS deal with complaints, I'm not really sure how they would help OP to get a diagnosis.

What has the doctor at Moorfield been saying? Do they plan to do more tests? If they are not getting to the bottom of things, you could always ask to be referred for a second opinion - the people to speak to about this are either your GP or the eye doctor you are seeing (not PALS)

We do not know the full story, but this individual has already said that they have had this issue for 4 years. It is not clear whether or not they have been referred to another department which may have further tests that could lead to a diagnosis. If they have not, then this is not acceptable and PALS should be made aware of this. PALS will not themselves refer the patient but by logging a complaint, it provides feedback to where things can be improved. It may also help improve the standard of care that the individual receives.