The Student Room Group

hypothyroidism + worry

in 2016 i was tested for pcos but tested negative. fast forward to now, i got some blood tests done again as the doctor said i could have pcos but the results came back and i found out i have an underactive thyroid and i'm now taking levothyroxine (for the rest of my life?)
im really worried bc it came as a shock and i never thought i'd have a lifelong condition, so ive just been really stressed out. to top it off, i start university in a month.
should i be worried? and will the medication and regular blood tests etc affect my university experience?
Reply 1
No.

It's just a pill once a day, but yes, for the rest of your life. But realistically that sounds harder than it is. Upsides? Free prescription items, even if they're not related to hypothyroidism. Downside? Stop taking the meds and you might have to take more, as well as the side effects that your doctor or the NHS website could explain better than I could.

Once you start taking it, you'll probably find your situation improves quite noticeable over the first few weeks. Less fatigued, less brain-fog, generally better off all round. In the grand-scheme of potential illnesses/diagnoses out there I would suggest that it's probably preferable, not least of all compared to PCOS. It is not uncommon in women, and often goes undiagnosed for many, many years, but it can occur in men as well.

You'll be fine. :smile:
the main annoyance is that levothyroxine needs to be taken on an empty stomach 30 minutes prior to any food. I've had hypothyroidism for a few years and it's alright. Sure beats a lot of other "life long" diseases in the grand scheme of things.
Does this condition just come on by itself or does something cause it to come on?
Reply 4
Original post by Kutie Karen
Does this condition just come on by itself or does something cause it to come on?


Original post by Kutie Karen
Does this condition just come on by itself or does something cause it to come on?


correct me if i’m wrong but i think it’s genetic… the symptoms become more obvious gradually rather than at once
Reply 5
Original post by Anonymous
in 2016 i was tested for pcos but tested negative. fast forward to now, i got some blood tests done again as the doctor said i could have pcos but the results came back and i found out i have an underactive thyroid and i'm now taking levothyroxine (for the rest of my life?)
im really worried bc it came as a shock and i never thought i'd have a lifelong condition, so ive just been really stressed out. to top it off, i start university in a month.
should i be worried? and will the medication and regular blood tests etc affect my university experience?

I also have hypothyroidism. Diagnosed a loooong time ago.
Reassurance from experience:
- it's 1 tablet a day. Keep taking it = everything ok.
- it's 1 blood test a year
- after the 1st 6 weeks of blood tests every 2 weeks... I'm on yearly bloods, 1 tablet a day, absolutely noone knows (or gives a s***) unless I tell them.
Reply 6
Original post by moonie2
correct me if i’m wrong but i think it’s genetic… the symptoms become more obvious gradually rather than at once

No, it isn't genetic. The symptoms come on reasonably quickly.

Original post by Kutie Karen
Does this condition just come on by itself or does something cause it to come on?

Vast majority of the time, it just happens.
Reply 7
Original post by Emily_B
Vast majority of the time, it just happens.


oh just out of nowhere? that’s strange
Original post by Emily_B
No, it isn't genetic. The symptoms come on reasonably quickly.


Vast majority of the time, it just happens.

I thought that too, but then I googled it - 30-60% of cases are genetic. :fyi:
Reply 9
Original post by Emily_B
I also have hypothyroidism. Diagnosed a loooong time ago.
Reassurance from experience:
- it's 1 tablet a day. Keep taking it = everything ok.
- it's 1 blood test a year
- after the 1st 6 weeks of blood tests every 2 weeks... I'm on yearly bloods, 1 tablet a day, absolutely noone knows (or gives a s***) unless I tell them.


blood tests every two weeks?!! or every 6 weeks? it’s stressful to think i went from not taking meds and not having blood tests to this :frown:
Original post by Anonymous
blood tests every two weeks?!! or every 6 weeks? it’s stressful to think i went from not taking meds and not having blood tests to this :frown:

You'll work through it soon. It's honestly not too difficult to manage tbh, coming from someone with autoimmune hypothyroidism. You'll be okay
Original post by Anonymous
blood tests every two weeks?!! or every 6 weeks? it’s stressful to think i went from not taking meds and not having blood tests to this :frown:

I only get a blood test once a year for my thyroid function.

On the other hand, I had weekly blood test due to another disease. Like I said, hypothyroidism isn't a big deal.
Original post by Anonymous
blood tests every two weeks?!! or every 6 weeks? it’s stressful to think i went from not taking meds and not having blood tests to this :frown:

You're concentrating on the wrong bit. Once a year bloods. I've not had fortnightly or 6 weekly bloods done since diagnosis 6 years ago! I only ever have them done: once. a. year.
Original post by Anonymous
blood tests every two weeks?!! or every 6 weeks? it’s stressful to think i went from not taking meds and not having blood tests to this :frown:

The poster said, after the first 6 weeks where you get blood tested every 2 weeks (so 3 blood tests in total as 6/2 is 3) presumably to check your tsh, t3, t4 levels and adjust dosage, then they only get blood tested once a year.
hi i know this was posted 3 yrs ago but wanted to ask how are you getting on? i have all the symptoms of hypothyroidism and waiting for my blood test results (apparently my thyroid function was borderline underactive in my last test 2 yrs ago but no one told me anything until i went to the GP w symptoms), and i’m also very concerned ab getting medication for the rest of my life, i also start uni in a month and i’m scared the brainfog will impact my academic ability
Original post by Anonymous
hi i know this was posted 3 yrs ago but wanted to ask how are you getting on? i have all the symptoms of hypothyroidism and waiting for my blood test results (apparently my thyroid function was borderline underactive in my last test 2 yrs ago but no one told me anything until i went to the GP w symptoms), and i’m also very concerned ab getting medication for the rest of my life, i also start uni in a month and i’m scared the brainfog will impact my academic ability

The medication for the rest of your life bit is a tablet a day, nothing major.
As for brainfog and uni.... the brainfog isn't really an issue once you're on the meds; you'll be able to run a normal life and get on with academia absolutely fine.