Unknown Chronic Illness
Hi everyone 
I've been having chronic pain, stiffness, exhaustion and such terrifying numbing brain fog. I wake up in pain every day and feel tired no matter how much sleep I get. All the advice I've been given is stuff like 'keep going' and 'distract yourself' but none of that is getting to the root of why I feel this way.
It's intensified now to the point that if I do anything physical one day the entire next day I have to spend in bed. It's getting harder and harder to balance work, uni and have any sort of a social life.
I am so so desperate at this point. The doctors just keep sending me in circles, and I'm not sure how to get them to listen. I want my life back.
Anyone experienced something similar? Is there anything specific I should be doing?
I've been having chronic pain, stiffness, exhaustion and such terrifying numbing brain fog. I wake up in pain every day and feel tired no matter how much sleep I get. All the advice I've been given is stuff like 'keep going' and 'distract yourself' but none of that is getting to the root of why I feel this way.
It's intensified now to the point that if I do anything physical one day the entire next day I have to spend in bed. It's getting harder and harder to balance work, uni and have any sort of a social life.
I am so so desperate at this point. The doctors just keep sending me in circles, and I'm not sure how to get them to listen. I want my life back.
Anyone experienced something similar? Is there anything specific I should be doing?
Reply 1
I have/still do. For me, it's due to depression. Sorry you also experience this.
Reply 3
Original post by mauve25
Just realised that I didn't mention I also get unresponsive/seizures.
I'm sorry you have depression. I've struggled with my mental health too.
I'm sorry you have depression. I've struggled with my mental health too.
What have the doctors said about the seizures? They can be a result of mental health issues as well as physical ones.
I am still on the waiting list. I'm waiting for an MRI, so nothing has been confirmed yet. But as I understand it, it's a grey area with seizures, and I want to get started with some sort of treatment, whatever that may be.
I've tried looking into stuff like chronic fatigue - don't want to self diagnose but what do you do when the waiting list is 4 months long!
I've tried looking into stuff like chronic fatigue - don't want to self diagnose but what do you do when the waiting list is 4 months long!
Reply 5
Original post by mauve25
I am still on the waiting list. I'm waiting for an MRI, so nothing has been confirmed yet. But as I understand it, it's a grey area with seizures, and I want to get started with some sort of treatment, whatever that may be.
I've tried looking into stuff like chronic fatigue - don't want to self diagnose but what do you do when the waiting list is 4 months long!
I've tried looking into stuff like chronic fatigue - don't want to self diagnose but what do you do when the waiting list is 4 months long!
Good luck, I hope you get your appointment and the answers you are looking for soon.
Reply 6
Original post by mauve25
Hi everyone
I've been having chronic pain, stiffness, exhaustion and such terrifying numbing brain fog. I wake up in pain every day and feel tired no matter how much sleep I get. All the advice I've been given is stuff like 'keep going' and 'distract yourself' but none of that is getting to the root of why I feel this way.
It's intensified now to the point that if I do anything physical one day the entire next day I have to spend in bed. It's getting harder and harder to balance work, uni and have any sort of a social life.
I am so so desperate at this point. The doctors just keep sending me in circles, and I'm not sure how to get them to listen. I want my life back.
Anyone experienced something similar? Is there anything specific I should be doing?
I've been having chronic pain, stiffness, exhaustion and such terrifying numbing brain fog. I wake up in pain every day and feel tired no matter how much sleep I get. All the advice I've been given is stuff like 'keep going' and 'distract yourself' but none of that is getting to the root of why I feel this way.
It's intensified now to the point that if I do anything physical one day the entire next day I have to spend in bed. It's getting harder and harder to balance work, uni and have any sort of a social life.
I am so so desperate at this point. The doctors just keep sending me in circles, and I'm not sure how to get them to listen. I want my life back.
Anyone experienced something similar? Is there anything specific I should be doing?
have you checked into lupus at all? I can't remember the name but there is a type which can also cause seizures. Alternatively you might have epilepsy and epilepsy is significantly more common in people who also have a chronic illness e.g. fibromyalgia.
Quick Reply
Related discussions
- Is it worth it?
- SQCF Level 7 Biology and Maths through Aberdeen Uni
- Annoyed with my family what can I do?
- UCL workload — languages courses
- Is there any point in doing a gap year?
- Personal statement advice med
- CSM/Chelsea Support for Chronic Illness
- Chance of getting into Oxford PPE
- Should I quit A-Levels due to ill health?
- options for uni without a levels
- How to apply for maintenance loan for an online degree due to disability?
- Application for Universal Credit: How much would I really get?
- Can I redo an A Level in one year?
- Deferring year 13 due to illness, college saying no
- Making friends
- Apply or defer due to chronic illness & surgery?
- Young people at the Open University
- am i a lost hope
- Is it possible to be diagnosed with depression by an NHS counsellor?
- Assisted euthanasia bill doesn’t go far enough?
Latest
Trending
Last reply 2 months ago
Does anyone feel like a "product" or a case" when treated by their therapist?Health
4
11
